Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Leaky Gut Diet


Salax

Recommended Posts

Salax Contributor

Hi Guys,

I am begining to suspect I have Leaky Gut. And I am trying to find accurate resources on diet information for this. Does any one have any really good sources on Leaky Gut and the Diet? Any personal experiences with De-toxing or not? I was thinking about going Paleo anyways, but I am not sure on the fruit side of things and the whole discussion on Quinoa and Rice, do I eat them or not. I like them, they seem ok for me...but not sure where to begin.

Thanks much! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



laura4669 Apprentice

Hi Guys,

I am begining to suspect I have Leaky Gut. And I am trying to find accurate resources on diet information for this. Does any one have any really good sources on Leaky Gut and the Diet? Any personal experiences with De-toxing or not? I was thinking about going Paleo anyways, but I am not sure on the fruit side of things and the whole discussion on Quinoa and Rice, do I eat them or not. I like them, they seem ok for me...but not sure where to begin.

Thanks much! :D

Hi,

I am in the same boat. I have been gluten-free since last October, but I am sure I have food intolerances. Tried to do elimination diet twice, but I just can't stick to it! I am strongly considering going Paleo, but a "modified" version. I ate Paleo for several days last week, but was starving without a small amount of rice or white potatoes. Been looking at Robb Wolf's web site, and it is very informative on the Paleo lifestyle. Best of luck to you!

cahill Collaborator

I am watching this thread in hopes of getting some ideas/information.

I am currently doing an elimination diet,,, and the way things are looking I am going to be pretty much eating Paleo wither I want to or not

mushroom Proficient

You may find this article on leaky gut syndrome helpful: Open Original Shared Link

LivesIntheSun Apprentice

Me too :-(

As if being gluen-free wasn't enough hard work I need to heal my gut and I'm fed up, especially because I have to study it and do it all by myself, I feel like I'm climbing a mountain.

If anyone wants to study the issue or work together PM me.

Salax Contributor

Thanks for the responses guys. I guess this is my next adventure challenge. B)

Jestgar Rising Star

Thanks for the responses guys. I guess this is my next adventure challenge. B)

Why don't you choose skydiving, or something less challenging next time.......


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

As if being gluen-free wasn't enough hard work I need to heal my gut... especially because I have to study it and do it all by myself, I feel like I'm climbing a mountain.

AMEN! I'm with you on that!

I've been on this elimination/challenge diet with a list of food allergies I tested pos. to for one year now. Got some back but gained new allergies in the process and lost some. It's a revolving door, although the gains outweigh the losses,...I think. I'm going to give it one more year with the new allergies and trying to ditch some of the repeat offenders for a longer time period and see if I can ditch them. Then I may have to come up with a new plan. I'm SO tired of thinking about EVERY thing I put in my mouth EVERY meal, EVERY day. I do feel so much better still overall so not complaining about my symptoms anymore, but it's just hard work as you said and too many restrictions.

missy'smom Collaborator

Why don't you choose skydiving, or something less challenging next time.......

LOL! :lol: Skydiving would actually be easier!, even for those of us who are afraid of heights!

cahill Collaborator

LOL! :lol: Skydiving would actually be easier!, even for those of us who are afraid of heights!

:lol:

I agree Skydiving would be easier!!!

cahill Collaborator

I'm SO tired of thinking about EVERY thing I put in my mouth EVERY meal, EVERY day. I do feel so much better still overall so not complaining about my symptoms anymore, but it's just hard work as you said and too many restrictions.

I am right there with you

mushroom Proficient

:lol:

I agree Skydiving would be easier!!!

And a lot more thrilling :lol:

Salax Contributor

Why don't you choose skydiving, or something less challenging next time.......

I know right. Except I hate heights LOL, so no. :P Hehe.

  • 2 months later...
Mother of a Celiac Rookie

Hi,

I am in the same boat. I have been gluten-free since last October, but I am sure I have food intolerances. Tried to do elimination diet twice, but I just can't stick to it! I am strongly considering going Paleo, but a "modified" version. I ate Paleo for several days last week, but was starving without a small amount of rice or white potatoes. Been looking at Robb Wolf's web site, and it is very informative on the Paleo lifestyle. Best of luck to you!

I am halfway thru the Paleo Solution book by Robb Wolf. It is one of the most eye opening books I've ever read. I started reading it because my daughter has Celiac and her symptoms have returned after being gluten free and symptom free for a year. Our whole family is now going Paleo. It is hard and is taking some time to get used to, but I'm hoping it is the answer to healing.

eatmeat4good Enthusiast

I wanna do Paleo, but I wanna keep chocolate too. ;)

  • 4 months later...
GottaSki Mentor

Hi All-

Bumping this back to the top as I have just started full elimination diet. I was dx'd Celiac in March 2009 - was very slow to get better, but did finally improve a great deal - felt healthy for the first time in years!

Unfortunately good health only lasted about 8 months - my digestive symptoms stayed at bay for a long time with mainly fibromyalgia symptoms worsening. Over the past six months I have become very sick again - muscle/joint pain, foggy is an understatement - my brain has been mush - severe memory problems and more. During the past few months my digestive symptoms have gotten nearly as bad as they were when I was dx'd Celiac and that was pretty darn bad.

Research finally brought me to Lectin Intolerance & Leaky Gut Syndrome (which I had heard before, but I thought it was just other names for Celiac).

In the past I've tried removing nightshades and dairy, but not all the problem lectin groups at once.

I just finished two days of green smoothie detox. Today was day three - I woke up still sluggish, but a couple hours later I felt wired (like I'd had several cups of coffee). Was able to stay vertical the majority of the day and my brain is still fairly clear at 10PM!!! As of today I'm eating meat/vegies/fruit only. In a week or a month (depending on improvement) I'll start challenging each group: eggs, nightshades, nuts, dairy and grains (really hope I get rice, corn and quinoa back).

Guess I'm curious to hear from others that:

1) isolated their Lectin Intolerance with elimination diet - which groups of foods you lost or re-gained?

2) had significant healing - how long did it take?

Thanks!

mushroom Proficient

I am a major lectin intolerant. I am glad that I tolerate dairy lectins, because I do not tolerate corn, soy, legumes. nightshades, citrus and of course gluten. I don't believe I will ever regain soy or corn, but I have recently been eating occasional slices of Udi's bread (potato starch) without any problems, so I am going to continue testing potato. After quitting gluten I acquired lectin intolerance to nightshades, legumes and citrus. and also had problems with quinoa and amaranth during my leaky gut syndrome period. I must say I was a little slow in making the lectin connection but I fit the pattern so perfectly. The nightshades came first so they were the first ones for reintroduction testing, but I am doing it REAL slow :P - don't want to slip back again and still not confident about leaky gut 100%.

I am almost four years post gluten, but only made a determined leaky gut cure effort a year ago when I continued to come up with more lectin intolerances. Up till then I was still using digestive enzymes quite consistently. I consulted with a nutritionist (Krispin Sullivan - I am sure you have read her Lectin Report) last summer and followed her supplement recommendations and believe it has helped. All the other commercial breads are so awful and I had so wanted to try Udi's and have been limiting it to every 3-4 days. Next I will try it more frequently. :)

Bubba's Mom Enthusiast

I asked my GI Dr about leaky gut after seeing it mentioned here. She had never heard of it!

I read the article that was posted and it seems like so many things would be eliminated..I'm wondering what we COULD eat?

I wish there was a treatment center we could just go to where they'd give us our meals and and suppliments and we'd focus on doing nothing but healing! :blink:

mushroom Proficient

I found that it was the things I was eating too frequently that became a problem for me. A rotational diet where you don't keep eating the same things over and over seems to work best with a leaky gut.

GottaSki Mentor

Mushroom-

Thank you so much for sharing - it is very encouraging to hear that you have been able to add a few things back carefully after a year.

Today - Day 4 - I feel like I'm coming out of a year long sleepwalk! I rode my bike and cleaned my kitchen - can't tell you how bad our house got over the past several months. Trying not to get too excited, but I am VERY hopeful for the first time in a very long time.

Yes, I've read Krispin's report - I'll include the link along with another that I found helpful for others reading this entry:

Open Original Shared Link

Open Original Shared Link

Bubba's Mom-

I'm eating meat, fruit and vegies now and will for about a month depending on improvement before I challenge each lectin group: nightshades, nuts, dairy and grains. It has been easy for the past several days, especially because I'm already seeing improvement - I'm sure I'll have a panic attack soon without rice and quinoa! As long as I improve it will be worth it as for the past several months I've had no life (about an hour in the morning functional) and had major symptoms for the past year.

Doctors can be extremely frustrating (no words to say how frustrating) with our symptoms. I've had mild versions of my Celiac and Fibromyalgia symptoms since my early 20s - took 23 years of going to docs for the same symptoms before they found Celiac - by that time I had only about 5-6 functional hours per day with severe digestive problems along with a whole host of other problems...the only thing that was "normal" about me was my bloodwork for every flipping thyroid and autoimmune disease - except celiac of course. It does seem that western medicine is starting to come around to some links between food and autoimmune disease - yet it has a very, very long way to go and such a shame that so many of us have been suffering for so long with no where to turn for help.

At least there is this forum!

:)

Bubba's Mom Enthusiast

I think we had the holy grail of bad ingredients for supper last night? It was chile with kidney beans, tomatoes, bell pepper, over pasta which was corn/rice based. Hubby put cheese on his. :o

I noticed I burped it up, which I haven't been doing with other foods lately.

I'm going to do some experimenting.

GottaSki Mentor

I think we had the holy grail of bad ingredients for supper last night? It was chile with kidney beans, tomatoes, bell pepper, over pasta which was corn/rice based. Hubby put cheese on his. :o

I noticed I burped it up, which I haven't been doing with other foods lately.

I'm going to do some experimenting.

I used to love Chili - until I went gluten-free and it caused stomach upset - guess my gut was trying to tell me something about other lectins - my brain just took a bit longer to figure it out!

This diet is extreme, but I woke up this morning (day 5) ready to get out bed and start doing things for the first time in over a year!

mushroom Proficient

. It does seem that western medicine is starting to come around to some links between food and autoimmune disease - yet it has a very, very long way to go and such a shame that so many of us have been suffering for so long with no where to turn for help.

At least there is this forum!

:)

I wouldn't go quite so far as to say that. I still get this chilly look like "You must be whacko" if I have the temerity to mention lectin intolerance to someone with M.D. after their name (with only one exception so far and she is my cardiologist).

I think we had the holy grail of bad ingredients for supper last night? It was chile with kidney beans, tomatoes, bell pepper, over pasta which was corn/rice based.

Sounds like the meal from h*ll - all those spices, legumes and nightshades :unsure:

I used to love Chili - until I went gluten-free and it caused stomach upset - guess my gut was trying to tell me something about other lectins - my brain just took a bit longer to figure it out!

This diet is extreme, but I woke up this morning (day 5) ready to get out bed and start doing things for the first time in over a year!

Way to go, GottaSki. Either legumes or nightshades gotcha ;). I used to love chili over a baked potato!!!

GottaSki Mentor

I wouldn't go quite so far as to say that. I still get this chilly look like "You must be whacko" if I have the temerity to mention lectin intolerance to someone with M.D. after their name (with only one exception so far and she is my cardiologist).

You are absolutely right - I've had the there is nothing physically wrong with you, so it must be mental look from doctors so many times over the years I don't think I count them. I think my thought this morning was more along the lines of docs starting (and I mean only starting) to understand that celiac isn't just a childhood illness anymore ;)

mushroom Proficient

I think my thought this morning was more along the lines of docs starting (and I mean only starting) to understand that celiac isn't just a childhood illness anymore ;)

Well, you're right of course -- we can't expect strides, only baby steps. And they don't have as much invested in the issue as we do

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.