Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Darn Near Narcoleptic, Glutened Symptom?


Aphreal

Recommended Posts

Aphreal Contributor

I confess that Sunday I snuck a piece of regular pizza because it smelled SO GOOD and I was weak. figured... how bad could it be right? The next morning I could NOT manage out of bed. I was beyond exhausted and literally can not keep my eyes opened, every moment able, I would go back to sleep. I blew it off.

Last night I got up in the middle of the night and ate a bowl of life cereal. I thought it was a dream, I mean I remember doing it but not fully conscience of doing it.. I have heard of sleep eating but this was just odd. So today, I am dealing with the same symptom. I can't keep my eyes open, I am so out of it.

Is this a glutened symptom? I just want to sleep and do nothing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nutzieone Newbie

Oh dear! I dont know if I could knowingly do that to myself! poor you though! I've been glutened a few times accidentally and the symptoms range from what you have explained to mildish with just some bloating and nausea. I am chronically fatigued and exhausted. Most days I cant keep my eyes open so for me this is just nomral day to day stuff! I unfortunately also have Rheumatoid Arthritis so that also slams me with the fatigue, etc.

I've also had sleep eating episodes! I once got up in the middle of the night and ate some sweets my husband was keeping on his desk! I remembered it the next morning as a dream but when he asked where his candy was I had to own up!

Good luck!

IrishHeart Veteran

I confess that Sunday I snuck a piece of regular pizza because it smelled SO GOOD and I was weak. figured... how bad could it be right? The next morning I could NOT manage out of bed. I was beyond exhausted and literally can not keep my eyes opened, every moment able, I would go back to sleep. I blew it off.

Last night I got up in the middle of the night and ate a bowl of life cereal. I thought it was a dream, I mean I remember doing it but not fully conscience of doing it.. I have heard of sleep eating but this was just odd. So today, I am dealing with the same symptom. I can't keep my eyes open, I am so out of it.

Is this a glutened symptom? I just want to sleep and do nothing.

It is for me! I feel as if I have been drugged and can barely make a sentence.

I am just wondering... why you would eat gluten NOW after being gluten-free for so long?

lynnelise Apprentice

I will be extremely fatigued for a week or so after a glutening incident. I have never consumed an entire slice of pizza or a bowl of cereal though...just CC. Hope you feel better soon and get over your gluten cravings! I wonder why you are having cravings all the sudden? Is this your first cheat since July?

Looking for answers Contributor

Many people with gluten intolerance share the same gene that puts you at higher risk of narcolepsy, so research is beginning to link the two. Of couse, it could just be an auto-immune reaction as well. But, just thought you might find that interesting.

glutenfreeresistant Newbie

Many people with gluten intolerance share the same gene that puts you at higher risk of narcolepsy, so research is beginning to link the two. Of couse, it could just be an auto-immune reaction as well. But, just thought you might find that interesting.

This is interesting to read. Besides Lactose intolerance, fatigue seems to be my only other physical symptom. (I also suspect depression and anxiety, but have not been able to prove that.)My entire life I have been a very tired person. It was all difficult to figure out because I have also worked the nightshift for the past 5 years. I would be so tired intermittently.So because of this, I got tested. Now that I have been attempting to be gluten-free I notice more of the connection.

LivesIntheSun Apprentice

Gluten makes me 'sleep for England'. In the years before I found out I would wake up in the morning, have breakfast (toast...) then intend to just lie back down for a few minutes (I'd always sleep right through til lunchtime), get up and have lunch (a sandwich), then sleep again til 4 or 5pm. I'd go back to bed at 10pm and sleep til morning. What a waste.

And when I was working I'd drag myself through the morning with lots of strong tea and on my lunchbreak lie down on a bench or anywhere and set the alarm on my mobile phone for when I had to be back on my shift, and fall asleep with dreams and everything.

Now if I find myself wanting a nap in the morning after sleeping all night I know I've been glutened.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bella001 Explorer

I confess that Sunday I snuck a piece of regular pizza because it smelled SO GOOD and I was weak. figured... how bad could it be right? The next morning I could NOT manage out of bed. I was beyond exhausted and literally can not keep my eyes opened, every moment able, I would go back to sleep. I blew it off.

Last night I got up in the middle of the night and ate a bowl of life cereal. I thought it was a dream, I mean I remember doing it but not fully conscience of doing it.. I have heard of sleep eating but this was just odd. So today, I am dealing with the same symptom. I can't keep my eyes open, I am so out of it.

Is this a glutened symptom? I just want to sleep and do nothing.

I had extreme fatigue before I went gluten free. I couldn't stay awake past 8-8:30 and no matter how much sleep I got, I was tired all the time and had a hard time getting out of bed. Within a week of getting rid of the gluten, my energy came back full force.

Jestgar Rising Star

Many people with gluten intolerance share the same gene that puts you at higher risk of narcolepsy, so research is beginning to link the two.

Where did you see this?

Looking for answers Contributor

Where did you see this?

I have two copies of the 0602 gene

Open Original Shared Link

glutenfreesavvy Rookie

Wow...you are so not alone. I have several symptoms that hit me hard after a glutening & severe exhaustion & sleepiness is one of them. There have been a few times that I felt "drugged" & that was just from CC. I'm scared to think what would happen if I ate a piece of gluten-filled pizza. Yikes! :o

I hope you're feeling better... :)

warmly,

Faydra

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,600
    • Most Online (within 30 mins)
      7,748

    rita jean
    Newest Member
    rita jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.