Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Darn Near Narcoleptic, Glutened Symptom?


Aphreal

Recommended Posts

Aphreal Contributor

I confess that Sunday I snuck a piece of regular pizza because it smelled SO GOOD and I was weak. figured... how bad could it be right? The next morning I could NOT manage out of bed. I was beyond exhausted and literally can not keep my eyes opened, every moment able, I would go back to sleep. I blew it off.

Last night I got up in the middle of the night and ate a bowl of life cereal. I thought it was a dream, I mean I remember doing it but not fully conscience of doing it.. I have heard of sleep eating but this was just odd. So today, I am dealing with the same symptom. I can't keep my eyes open, I am so out of it.

Is this a glutened symptom? I just want to sleep and do nothing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nutzieone Newbie

Oh dear! I dont know if I could knowingly do that to myself! poor you though! I've been glutened a few times accidentally and the symptoms range from what you have explained to mildish with just some bloating and nausea. I am chronically fatigued and exhausted. Most days I cant keep my eyes open so for me this is just nomral day to day stuff! I unfortunately also have Rheumatoid Arthritis so that also slams me with the fatigue, etc.

I've also had sleep eating episodes! I once got up in the middle of the night and ate some sweets my husband was keeping on his desk! I remembered it the next morning as a dream but when he asked where his candy was I had to own up!

Good luck!

IrishHeart Veteran

I confess that Sunday I snuck a piece of regular pizza because it smelled SO GOOD and I was weak. figured... how bad could it be right? The next morning I could NOT manage out of bed. I was beyond exhausted and literally can not keep my eyes opened, every moment able, I would go back to sleep. I blew it off.

Last night I got up in the middle of the night and ate a bowl of life cereal. I thought it was a dream, I mean I remember doing it but not fully conscience of doing it.. I have heard of sleep eating but this was just odd. So today, I am dealing with the same symptom. I can't keep my eyes open, I am so out of it.

Is this a glutened symptom? I just want to sleep and do nothing.

It is for me! I feel as if I have been drugged and can barely make a sentence.

I am just wondering... why you would eat gluten NOW after being gluten-free for so long?

lynnelise Apprentice

I will be extremely fatigued for a week or so after a glutening incident. I have never consumed an entire slice of pizza or a bowl of cereal though...just CC. Hope you feel better soon and get over your gluten cravings! I wonder why you are having cravings all the sudden? Is this your first cheat since July?

Looking for answers Contributor

Many people with gluten intolerance share the same gene that puts you at higher risk of narcolepsy, so research is beginning to link the two. Of couse, it could just be an auto-immune reaction as well. But, just thought you might find that interesting.

glutenfreeresistant Newbie

Many people with gluten intolerance share the same gene that puts you at higher risk of narcolepsy, so research is beginning to link the two. Of couse, it could just be an auto-immune reaction as well. But, just thought you might find that interesting.

This is interesting to read. Besides Lactose intolerance, fatigue seems to be my only other physical symptom. (I also suspect depression and anxiety, but have not been able to prove that.)My entire life I have been a very tired person. It was all difficult to figure out because I have also worked the nightshift for the past 5 years. I would be so tired intermittently.So because of this, I got tested. Now that I have been attempting to be gluten-free I notice more of the connection.

LivesIntheSun Apprentice

Gluten makes me 'sleep for England'. In the years before I found out I would wake up in the morning, have breakfast (toast...) then intend to just lie back down for a few minutes (I'd always sleep right through til lunchtime), get up and have lunch (a sandwich), then sleep again til 4 or 5pm. I'd go back to bed at 10pm and sleep til morning. What a waste.

And when I was working I'd drag myself through the morning with lots of strong tea and on my lunchbreak lie down on a bench or anywhere and set the alarm on my mobile phone for when I had to be back on my shift, and fall asleep with dreams and everything.

Now if I find myself wanting a nap in the morning after sleeping all night I know I've been glutened.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bella001 Explorer

I confess that Sunday I snuck a piece of regular pizza because it smelled SO GOOD and I was weak. figured... how bad could it be right? The next morning I could NOT manage out of bed. I was beyond exhausted and literally can not keep my eyes opened, every moment able, I would go back to sleep. I blew it off.

Last night I got up in the middle of the night and ate a bowl of life cereal. I thought it was a dream, I mean I remember doing it but not fully conscience of doing it.. I have heard of sleep eating but this was just odd. So today, I am dealing with the same symptom. I can't keep my eyes open, I am so out of it.

Is this a glutened symptom? I just want to sleep and do nothing.

I had extreme fatigue before I went gluten free. I couldn't stay awake past 8-8:30 and no matter how much sleep I got, I was tired all the time and had a hard time getting out of bed. Within a week of getting rid of the gluten, my energy came back full force.

Jestgar Rising Star

Many people with gluten intolerance share the same gene that puts you at higher risk of narcolepsy, so research is beginning to link the two.

Where did you see this?

Looking for answers Contributor

Where did you see this?

I have two copies of the 0602 gene

Open Original Shared Link

glutenfreesavvy Rookie

Wow...you are so not alone. I have several symptoms that hit me hard after a glutening & severe exhaustion & sleepiness is one of them. There have been a few times that I felt "drugged" & that was just from CC. I'm scared to think what would happen if I ate a piece of gluten-filled pizza. Yikes! :o

I hope you're feeling better... :)

warmly,

Faydra

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

    2. - Kirita replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    3. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

    5. - trents replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,285
    • Most Online (within 30 mins)
      7,748

    Kenny Waites
    Newest Member
    Kenny Waites
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scatterbrain
      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
    • Scott Adams
      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.