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Gluten Intolerant. Now What?

dbhickma

By dbhickma
in Coping with Celiac Disease

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dbhickma Rookie
dbhickma
Posted

I've been diagnosed with IBS, spastic colon, acid reflux disease, and an over active gallbladder (chronic D) by a GI. I had an ultrasound of my stomach etc, but there was so much gas in there the tech had a hard time seeing. Never had a "retake." Blood test came back borderline. The last GI I saw asked me where I was from. I said Mexico. To which he replied, You don't look Mexican, if you're Mexican you definitely don't have Celiac. Really? I didn't know if I should slap the man on his head or drop kick him. NEVER WENT BACK.

I've been diagnosed with fatty liver even though I limit my oil consumption to a tablespoon a day and eat as low fat as I can. I work out at least 3 days a week. Every other part of me loses weight except my stomach, which makes me look like I'm pregnant. I don't drink, smoke or do drugs. Anemia, eczema, frequent kidney infections, hipoglicemia, extreme exhaustion (I have 3 kids,) and depression by a general Dr. I'm glad that I didn't end up having Autoimmune Hepatitis like they originally thought.

My OBGYN told me to up my water intake because of frequent bladder infections. At one point a Gyno thought I might have uterine cancer.

I've tried to stay gluten free for months, but keep getting cc. I am the only gluten free in my house and I have little kids so there is MAJOR potential for cc. Took a recent trip with the hubbie and had major CC somewhere along the way. MAJOR reaction. So bad my husband who thought I was a hypochondriac asked me to see a Dr. SO, my dilemma!

I'm SO dizzy and have major brain fog. My grammar skills and spelling have tanked through the years so I wonder if I'm some how brain damaged and to what extent. Do I see a neurologist?

My joints have hurt on a consistent basis my whole life and my knuckles swell on and off. Do I see a rheumatologist?

Is there ONE Dr. that can help me with all this or do I have to keep seeing different Drs for different things and pray they can collectively heal me?

Is there a GOOD Dr on Maui or Oahu for that matter!! I'm at a loss. Please help me out.

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JenniLu Newbie
JenniLu
Posted

I've been reading the book (free download) from this doctor and I'm thinking maybe getting tested this summer. He seems to be very thorough with his testing and looks at all of the symptoms together....but I'm no expert. I like the idea of "functional" medicine anyway. He is out of Minnesota, but he can consult and order the tests long distance.

Open Original Shared Link

JenniLu Newbie
JenniLu
Posted

I just wrote a post on the autoimmune book. Here is the website for the Upper Room in Minneapolis, where Dr. Conner, the functional doctor has his office and there is more information there: Open Original Shared Link

ravenwoodglass Mentor
ravenwoodglass
Posted

What you really need to do is to get strictly gluten free. I know it's hard but that is your answer. You may need to make the house gluten free to do that but your health is more important than the kids having cheerios. It won't hurt the rest of the family to be gluten free in the home and will help you end your pain.

dbhickma Rookie
dbhickma
Posted
  • Author

I talked to my hubbie about it and I told him he could get his gluten fix when he's at work. He eat's out all the time because of his job so he shouldn't have a hard time with being gluten free at home. My kids are just going to have to eat what I make for them. I'm cleaning my house out this weekend. Thanks you guys!

eatmeat4good Enthusiast
eatmeat4good
Posted

Good for you sweetie! And the kids won't even mind after a while.

I hope you feel better soon.

nmthommy Rookie
nmthommy
Posted

go to enteroLab www.enterolab.com

they do stool tests which are far better than blood tests.

My blood work for gluten came back fine but my stool test came back highly sensitive and I found out that I inherited it from both my parents and am passing it on to my boys. : (

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

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    • trents
      Accuracy of testing concerns

      By trents · Posted

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