Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Poster To The Board

melly

Recommended Posts

melly Rookie
melly
Posted

Hello, my name is Melly. I technically won't be a teenager till the sixteenth of October. I found out that I have celiac disease 2 weeks ago. I'm still not feeling well and still getting used to it. Sometimes it makes me sad seeing all I can't have and I think it would be really nice to talk to someone my age that's going through the same thing. If you are, please message me

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 53
  • Created
  • Last Reply
KaitiUSA Enthusiast
KaitiUSA
Posted

Hi Melly

Welcome to the board. I am Kaiti and I am 17(18 in a few days) so I am a bit older but feel free to email or instant message me anytime if you have any questions or would like to talk.

And you can have so many good tasting things that your friends can have. For just about everything that contains gluten there is another version that does not contain gluten. You can find out what the good brands of products are on here. If your friends tasted some of these products, I bet they would not know the difference

Hang in there

Canadian Karen Community Regular
Canadian Karen
Posted

Hi Melly,

Just wanted to welcome you to the board...... I am waay over the hill (42) lol! so I am not anywhere near your age, but still, I am young at heart!!!!

There is a young man here named celiac3270 who is your age and is our expert, and also, he is wise far beyond his years...... I'm sure he will be posting his own welcome soon.

Any questions you may have, just post and there are a bunch of great people here who are always willing to help you along (after all, we have all been there, at the beginning, when it feels so overwhelming.....) Also, our motto here is no question is too stupid to ask - so don't feel uncomfortable with any questions you may have.....

Welcome to the board!

Karen

DragonQueen Explorer
DragonQueen
Posted

Hi Melly :)

Welcome to the boards. I'm fairly new on these boards too. How old are you specifically? I've been on the diet for a couple weeks now, I don't think its a bad diet. Some of my favorite foods are gluten-free :lol: heres a list of some of them: Original Lays stacks, cheetos, Ben & Jerry's Ice Cream and these peanut butter cups (like reeses pieces) that you can find at a Trader Joes. Theres alot of sweets that are gluten-free :P

celiac3270 Collaborator
celiac3270
Posted
There is a young man here named celiac3270 who is your age and is our expert, and also, he is wise far beyond his years...... I'm sure he will be posting his own welcome soon.

Lol :lol: . Hi Melly,

Welcome to the board... I'm 14... and was diagnosed a year and a half ago. Read the board and you'll probably find everything you've wanted to know--and a lot that you didn't :lol: --about celiac. Ummm...oh yeah, there's lots of junk food we can have--gluten-free doesn't mean junk free. And I have lists to back it up. Well, I have lists for everything :lol: : mainstream food lists, medication lists, vendor phone number lists, ingredient lists, candy lists (actually, more candy is gluten-free than not), you name it and I have a list...so if you want a 70-some odd page food guide to help you as you start the diet, I can e-mail you that. Also, here is a good ingredient list from this site: https://www.celiac.com/st_prod.html?p_prodi...-59105193589.8f

Feel free to e-mail me. It's a huge challenge at first--not knowing what's gluten-free and what you're going to eat since the selection seems so small. Then there's the often disappointing stage in which you try gluten-free foods and get really down when you try some of them...and the whole thing is confusing because it seems to happen so quickly. I can relate... ;)

No question is too stupid to ask. LOL Kaiti, Karen, anyone who was there--I'm having flashbacks to the last time I said that under the Crest toothpaste thread. :lol:

-celiac3270

Carriefaith Enthusiast
Carriefaith
Posted

Welcome!

There are tons of yummy foods that we can have. I know the diet is overwhelming and discouraging at first and it's easy to feel like you can't have anything. But like Kaiti said, you can find a gluten-free alternative to almost anything. For example, you can still have foods like chocolate, ice cream (if you're not lactose intolerant), pizza, spaghetti, angel food cake (which I'm going to make with strawberries very soon!), pie, brownies, cookies, ect. I've had the gluten-free version of most of these foods and they all taste the same or better than gluten food.

Here are some good gluten-free brands:

Pasta - Tinkyada (comes in all the common pasta shapes)

Bread - Kinnikinick, Sterks, Glutino (toasted is best)

Pizza Crust - Glutino, Sterks, Kinnikinick

Browies and cookies - Patsy Pie

*I've heard that Kinnikinick makes good donuts but have never had them myself

KaitiUSA Enthusiast
KaitiUSA
Posted
No question is too stupid to ask.  LOL Kaiti, Karen, anyone who was there--I'm having flashbacks to the last time I said that under the Crest toothpaste thread. :lol:

-celiac3270

LOL :lol::lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


melly Rookie
melly
Posted
  • Author
Hi Melly :)

Welcome to the boards. I'm fairly new on these boards too. How old are you specifically? I've been on the diet for a couple weeks now, I don't think its a bad diet. Some of my favorite foods are gluten-free :lol: heres a list of some of them: Original Lays stacks, cheetos, Ben & Jerry's Ice Cream and these peanut butter cups (like reeses pieces) that you can find at a Trader Joes. Theres alot of sweets that are gluten-free :P

thanks specifically I am 12 and i will not be 13 till october 16 thats in 13 weeks 5 days 11 hours 40 minutes 38 seconds. How old are you?

ps I heared that we cant have cheetos but you say we can

KaitiUSA Enthusiast
KaitiUSA
Posted

We can have Cheetos :D

flagbabyds Collaborator
flagbabyds
Posted

Hi and Welcome

My name is Molly and I just turned 15. When I first came to this board I was for sure the youngest and couldn't relate to anyone really. That was like 3 years ago or so, I really don't know. I was diagnosed when I was 20 months old and don't remember what gluten foods taste like becasue I was so little. I don't know if I have the best tasting food but my mom does make really good bread and you can find the recipe on this website.

You can have a lot of junk food, and yes Cheetos are gluten-free, so are a lot of other Frito Lay products. They have a gluten free list on their website which is nice and they also list if it contains wheat in the ingredients or not. All Wonka candy except for the chocolate bar are gluten-free(at least they were a year ago) but they label if it contains wheat or not too.

You can e-mail me or IM me any time if you have questions.

melly Rookie
melly
Posted
  • Author
so if you want a 70-some odd page food guide to help you as you start the diet, I can e-mail you that. 

thanks celiac3270 if its not too much trouble

DragonQueen Explorer
DragonQueen
Posted

Carriefaith, Did you just say ANGEL FOOD CAKE! :P:P:P I'd for sure like to get the recipe for that. I'm elevan and my B-day is on December 29th.

melly Rookie
melly
Posted
  • Author

dragon queen are you turning eleven or twelve "How old are you specifically"

celiac3270 Collaborator
celiac3270
Posted
thanks celiac3270 if its not too much trouble

Sure...just get me your e-mail address (through a post, personal message, or e-mail) --we can't post attachments on here. ;)

melly Rookie
melly
Posted
  • Author
Sure...just get me your e-mail address

can't you just click on the button w/ the envelope on it

celiac3270 Collaborator
celiac3270
Posted

Yes--but you can't send an attachment through there. I can send writing, but not attachments...such as the list. If you'd prefer that I e-mail you first, I can do that ;)

Carriefaith Enthusiast
Carriefaith
Posted
Carriefaith, Did you just say ANGEL FOOD CAKE! tongue.gif tongue.gif tongue.gif I'd for sure like to get the recipe for that.
Yes! :D

I am going to make it very soon, I am so excited! Here is the recipe:

Angel Food Cake - seves 16

Preheat oven to 350 F, 10 inch tube pan, no grease

1/2 cup white rice flour

1/3 cup cornstarch

1/3 cup icing sugar

1 tsp xanthan gum

12 egg whites, warmed to room temperature

1 tbsp freshly squeezed lemon juice

1 1/2 tsp cream of tartar

1/4 tsp salt

3/4 cup granulated sugar

1 tsp almond extract

In a small bowl, sift together rice flour, cornstarch, icing sugar, and xanthan gum. Resift and set aside. In a separate bowl, using an electric mixer, beat egg whites until foamy. Whie beating, add lemon juice, cream of tartar and salt. Continue to beat until egg whites are stiff. Gradually add sugar. Continue to beat until mixture is very stiff and glossy but nor dry. Sift dry ingredients, one-quater at a time, over beaten egg whites. Gently fold in each addition until well blended. Fold in almond extract. Spoon into prepared pan. Run a knife through the batter to remove large air bubbles. Smooth top witha moist rubber spatula. Bake immediately in preheated oven for 30 to 40 minutes or until the cake springs back when lightly touched. Invert pan over a funnel or bottle until completly cooked. Using a spatual, loosen the outside and inside edges of the pan. Remove from pan.

**Add 1/4 cup unsweetened cocoa powder to the dry ingredients to make a chocolate angel food cake. To make it Mocha, add 1 tsp of instant coffe granules with the cocoa

melly Rookie
melly
Posted
  • Author

hey i was woundering how do you get that thing that says how you were diagnosed and stuff and how do you get that picture on the side of your message and how do you pm somebody

melly Rookie
melly
Posted
  • Author
Yes--but you can't send an attachment through there.  I can send writing, but not attachments...such as the list.  If you'd prefer that I e-mail you first, I can do that ;)

ok im unsungangel@netscape.net

Carriefaith Enthusiast
Carriefaith
Posted

for adding a signature (name, diagnosis date, ect.) Click on your name and then click on edit my signature, then type your info, and press update signature.

Carriefaith Enthusiast
Carriefaith
Posted

yay, it worked! The photo is a little harder, I'll refer to an older thread, that has descriptions.

Open Original Shared Link

melly Rookie
melly
Posted
  • Author
for adding a signature (name, diagnosis date, ect.) Click on your name and then click on edit my signature, then type your info, and press update signature.

thanks how do you change the size

Carriefaith Enthusiast
Carriefaith
Posted

hmmm, I am not sure, I just tried and couldn't get it to work myself. I'm sure someone else knows :)

melly Rookie
melly
Posted
  • Author

thanks how do you pm somebody

celiac3270 Collaborator
celiac3270
Posted

Signature -- scroll up, go to Open Original Shared Link and then scroll down and go to edit signature (look on left in the list of links). To change the size, highlight your signature, click on the size drop-down menu, choose small (which is a little larger than having no size), large, or largest. There will be something written like this about size and then something similar with SIZE in the name. It will change when you click to update it. The same applies to colors and fonts. I just chose to keep mine small.

PM -- two basic ways. Either, just click on the PM icon below someone's name or go to Open Original Shared Link and then click on "compose new message" on the left.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
    2. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t...
    3. Scott Adams
      - Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
      1

      About Celiac Remission

      This idea comes up often, but it’s important to separate theory from what’s actually supported by evidence. In celiac disease, the immune system does not “forget” gluten in a permanent or reliable way, even after long periods of avoidance, and the celiac genes do not turn off. While antibody levels (like tTG IgA) can normalize on a strict gluten-free diet an...
    4. Scott Adams
      - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      need help understanding testing result for Naked Nutrition Creatine please

      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold...
    5. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Medications

      Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fa...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,189
    • Most Online (within 30 mins)
      7,748
    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Scott Adams
      need help understanding testing result for Naked Nutrition Creatine please

      By Scott Adams · Posted

      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold; if it’s <0.025 mcg per kilogram, it would be extremely low and well within GF limits. Without the denominator, the result is incomplete. It’s reasonable to follow up with the company and ask them to confirm the result in ppm using a validated method (like ELISA R5)—that’s the standard used to assess gluten safety.
    • Scott Adams
      Medications

      By Scott Adams · Posted

      Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fact that it helped bloating suggests it may be affecting gut–nerve signaling, which makes sense in the context of SIBO, but that doesn’t mean the side effects should be ignored. You’re carrying a heavy load right now with ongoing skin, eye, and neurological uncertainty, and living in that kind of limbo is exhausting on its own. It’s understandable to feel overwhelmed and discouraged when systems and providers don’t meet you where you are—your experience is valid, and continuing to advocate for yourself, even when it’s hard, really does matter. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Gluten tester

      By Scott Adams · Posted

      I am not aware of an air detector for gluten, but Nima Partners sells a device that can detect gluten in minutes in a small sample of a meal or food that you eat. They are also a sponsor here for full disclosure: https://nimanow.com
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.