Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There A Food You Miss So Much That It's Worth The Consequences?


zus888

Recommended Posts

zus888 Contributor

Granted, I haven't started the diet yet (just one more week!), but I was thinking as I was downing a sweet roll at Golden Corral that I might just take the consequences of being glutened by eating one of those rolls. Obviously, I have no idea how bad being glutened will be for me, but I'm wondering if I'll cheat and deal with the consequences. Drinking alcohol affects my digestive system quite dramatically. Last time, I was sick for 2 days. But I know I'll probably drink again. Prior to my last time, it had been 6 months since my last drink and prior to that it had been years. It's just that, sometimes, it's worth the consequences.

Does anyone here cheat at all and just deal with the consequences or is everyone very stringent?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Strawberry-Jam Enthusiast

I've only just started the gluten-free diet myself (diagnosed two days ago), but still... why would you want to cheat if it's gonna make you sick? I guess it would depend on how sick you were gonna get, but... I'm pretty good about enduring pain/discomfort in the present to avoid it in the future (or at least I like to think so).

zus888 Contributor

Sorry! I didn't see the other post that asks pretty much the same exact question. I would delete this if I could.

waterlily- Explorer

Sooo many foods. ack!

GlutenFreeManna Rising Star

No. I never cheat. Well, I did once, when I was early in the diet and unsure if I really needed to stick to it. Never again. The consequences for me are so severe--everything from bleeding to seizures--and the pain and fatigue lasts for almost a week. I would rather not go back to having my driver's license medically revoked because I wanted a certain food. And if I forget how bad the symptoms are, the word CANCER keeps me on the straight and narrow. I know the cancer is not common but I have a strong family history of intestinal cancer. I saw those family members suffer and waste away before my eyes and I suspect they really had untreated celiac. No cinnimon roll or slice of pizza is worth the risk of cancer surgery and chemo in my future.

hockeymomofceliacchild Rookie

I've only just started the gluten-free diet myself (diagnosed two days ago), but still... why would you want to cheat if it's gonna make you sick? I guess it would depend on how sick you were gonna get, but... I'm pretty good about enduring pain/discomfort in the present to avoid it in the future (or at least I like to think so).

Cheating is a personal choice those with serious and very uncomfortable symptoms probably wouldn't even dream of it. My brother was diagnosed about 10 years ago he wouldn't dream of cheating his DH (skin rash) kicks in. My son was just diagnosed and I hope to get him gluten free as soon as I can (need to learn where all it is hiding first). As for myself I cringe at the thought of my test results coming back positive but it would explain so many other things I would never have assotiated with celiac.

My sons pediatrician explained it like this "gluten is a carsinegin (spelling?) to a celiac if it is ingested it can cause cancer amoung many other issues" She said it would be like handing my son a cigarette, lots of people know the consequences but still do it.

I just had a conversation with an acquintance who told me she has it too then I watched her eat at the arena at least three things she should not have eaten. I of course pointed a few things out then realized she is aware and chooses to eat as she likes and suffer for it later :( You have to want to do it no one can make you do it. Good luck and hope you find the will power to stay on track and get healthy :) I may have to find some support too if my results come back not in my favor :(

Terri O Rookie

No. I never cheat. Well, I did once, when I was early in the diet and unsure if I really needed to stick to it. Never again. The consequences for me are so severe--everything from bleeding to seizures--and the pain and fatigue lasts for almost a week. I would rather not go back to having my driver's license medically revoked because I wanted a certain food. And if I forget how bad the symptoms are, the word CANCER keeps me on the straight and narrow. I know the cancer is not common but I have a strong family history of intestinal cancer. I saw those family members suffer and waste away before my eyes and I suspect they really had untreated celiac. No cinnimon roll or slice of pizza is worth the risk of cancer surgery and chemo in my future.

I agree totally with you! You must equate eating gluten with eating rat poison (that was in an article I read) would you do it? Nope!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast

I can't bring myself to cheat. If you think of human biology, we have negative associations with things that make us sick. It's negative reinforcement. I even have trouble eating at restaurants that gluten me by accident.

I don't characterize it as rat poison, I liken it to arsenic because a little will make you sick but a lot will kill you...you just don't know how much it will take to kill you. But a carcinogen is a good analogy too.

annegirl Explorer

I'm finding that there really is nothing that is good enough to make up for feeling sick for days after. I'm still recovering from a double whammy of ranch of my dressing (hopeful test of my lactose tolerance....fail!) and hot wings that I took a chance on because my gluten intolerant friend ate them.

I guess it would depend on you, but I sorta feel like Pavlov's dog. After a couple times of getting sick, I am conditioned to see things with gluten (and lactose!) as poison.

ravenwoodglass Mentor

There is nothing that would tempt me to cheat. It is so not worth it.

India Contributor

Easting gluten sets off an immune reaction that attacks the lining of the intestines and can cause a myriad of seen and unseen symptoms that can last for weeks. I can't see why anyone would you deliberately do that to themselves for the sake of eating a roll.

There is nothing that would make me consider eating gluten. I'm lucky that I was diagnosed with coeliac disease before getting seriously ill but in lots of lower level ways it has had such a bad effect on my quality of life. I know from being accidentally glutened that it's not just a matter of feeling ill for a week or so but also how unpredictable my health will be for some time afterwards.

cahill Collaborator

Does anyone here cheat at all and just deal with the consequences or is everyone very stringent?

When I first started eating gluten free ( I was gluten free MAYBE 2 or 3 months) , I did cheat ONCE,, never ,ever,NEVER will I intentionally consume gluten again . There is no food worth that !!

luvs2eat Collaborator

I miss LOTS of foods... but NONE are worth a cheat... EVER.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.