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Still Spaced Out

ndw3363

By ndw3363
in Coping with Celiac Disease

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ndw3363 Contributor
ndw3363
Posted

I've been gluten free for about 2 weeks. However, I still have a very spaced out feeling. I've triple checked everything I've eaten today (including supplements), but my head is still all fuzzy. Am I just adjusting to the new diet? I've changed my bathroom products, my hand lotion, got rid of my chewing gum that had gum base in it...not sure what more I can get rid of at this point. By the way, this forum has helped a newbie like me SO much. Thank you all!!

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love2travel Mentor
love2travel
Posted

I've been gluten free for about 2 weeks. However, I still have a very spaced out feeling. I've triple checked everything I've eaten today (including supplements), but my head is still all fuzzy. Am I just adjusting to the new diet? I've changed my bathroom products, my hand lotion, got rid of my chewing gum that had gum base in it...not sure what more I can get rid of at this point. By the way, this forum has helped a newbie like me SO much. Thank you all!!

Me, too! I've been strictly gluten-free about 18 or so days and am not myself. I felt much better on gluten as I did not feel ill at all and now I do. Not bad, just yucky. Plus my short-term memory is atrocious - I struggle frequently to find a word when I am speaking. Sooooo unlike me. Hope this ends soon as it is sort of disconcerting!

IrishHeart Veteran
IrishHeart
Posted

I've been gluten free for about 2 weeks. However, I still have a very spaced out feeling. I've triple checked everything I've eaten today (including supplements), but my head is still all fuzzy. Am I just adjusting to the new diet? I've changed my bathroom products, my hand lotion, got rid of my chewing gum that had gum base in it...not sure what more I can get rid of at this point. By the way, this forum has helped a newbie like me SO much. Thank you all!!

Boy, I know that spacey feeling and it is very scary and depressing. I had it for 2 years and am happy to say it is disappearing!!. (I used to say to my husband that I felt like my brain was dipped in vaseline :unsure:) I had a really hard time with all that. Thought I was going mad sometimes.

It took me about 3-4 weeks to start to see that sensation diminish and I am greatly relieved and encouraged! I am not as sharp as I once was YET, but I hope that returns in time. Everyone on here says it will and to be patient.

As for the feeling worse after going gluten-free---I did too. It's withdrawal and it passes, too. Drink a lot of water -- hydration is essential. Try to exercise, take walks and clear your head. I couldn't really walk I was so bad before, so I just kept going outside and putting my face up to the sun. Stick to pure, whole foods. Try to relax. Soak in a tub. Be good to yourself. Your body is healing.

... Everyone is different and symptoms go when they go...I know, it stinks.

I never thought I'd be this clear again--I was fumbling for words and my short term memory suffered greatly and I was terrified I would never read and comprehend anything ever again, but I do now!! Hang in there!

pondy Contributor
pondy
Posted

I've been gluten free for about 2 weeks. However, I still have a very spaced out feeling. I've triple checked everything I've eaten today (including supplements), but my head is still all fuzzy. Am I just adjusting to the new diet? I've changed my bathroom products, my hand lotion, got rid of my chewing gum that had gum base in it...not sure what more I can get rid of at this point. By the way, this forum has helped a newbie like me SO much. Thank you all!!

I don't feel like myself either! I also get that "spaced out" feeling - plus zero motivation, memory lapses, extreme fatigue & anxiety.

I saw my GP today - when I told her these symptoms, she said that they are likely due to very poor absorption of essential nutrients. Doc also said that it can take 6 month to 2 years or so to heal.

My blood test confirmed my Celiac just about 1 week ago. I haven't been gluten free for long & they tell me not to expect instant results. I'm trying hard to be patient with my body & do it no further harm.

Just a note on the body lotions, etc... - I should change those too? I had no idea! Can anyone recommend some safe brands?

I know there is hope and that we will heal, and I agree that this forum is a great place to find support! I thank all here as well!

IrishHeart Veteran
IrishHeart
Posted

I don't feel like myself either! I also get that "spaced out" feeling - plus zero motivation, memory lapses, extreme fatigue & anxiety.

I saw my GP today - when I told her these symptoms, she said that they are likely due to very poor absorption of essential nutrients. Doc also said that it can take 6 month to 2 years or so to heal.

My blood test confirmed my Celiac just about 1 week ago. I haven't been gluten free for long & they tell me not to expect instant results. I'm trying hard to be patient with my body & do it no further harm.

Just a note on the body lotions, etc... - I should change those too? I had no idea! Can anyone recommend some safe brands?

I know there is hope and that we will heal, and I agree that this forum is a great place to find support! I thank all here as well!

Hi Pondy--I think I talked with you on another post!!

I use Savonnerie gluten free products. Check the Internet. But that's because I have some problems with soy (often in beauty products) and I cannot seem to figure out what I am reacting to (I have burning, red skin and itching).

AVOID shampoo and hair spray with HYDROLYZED WHEAT PROTEIN.

There are some threads on here that have "safe"beauty products listed. Mostly I find, some people think you have to change all the beauty products, others don't. (I do because I am sensitive to them.)

Hang in there. It really does get better!! :)

healinginprogress Enthusiast
healinginprogress
Posted

Pretty glad to read that others are feeling like this...the foggy-head, memory loss...yeah, just all around not feeling like myself! Really can't wait for things to get better.

With regards to shampoo... I guess I should really change mine. The thing is, I JUST dyed my hair pretty much platinum blonde, so I'm using a purple shampoo so it doesn't get brassy...and I have a pretty strong feeling that nobody makes a gluten-free purple shampoo lol. But maybe if I used gluten-free most of the week and then the purple just once a week and be very careful?

IrishHeart Veteran
IrishHeart
Posted

Pretty glad to read that others are feeling like this...the foggy-head, memory loss...yeah, just all around not feeling like myself! Really can't wait for things to get better.

With regards to shampoo... I guess I should really change mine. The thing is, I JUST dyed my hair pretty much platinum blonde, so I'm using a purple shampoo so it doesn't get brassy...and I have a pretty strong feeling that nobody makes a gluten-free purple shampoo lol. But maybe if I used gluten-free most of the week and then the purple just once a week and be very careful?

um...I'm not sure. I know some people use the Garnier line?

I had to stop coloring my hair because my hair fell out and my scalp was peeling and had sores on it...this nasty disease! anyway, I am happy you have good hair!!

I pray mine returns and I can look pretty once more... :)

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healinginprogress Enthusiast
healinginprogress
Posted

um...I'm not sure. I know some people use the Garnier line?

I had to stop coloring my hair because my hair fell out and my scalp was peeling and had sores on it...this nasty disease! anyway, I am happy you have good hair!!

I pray mine returns and I can look pretty once more... :)

Wow, that's terrible, I hope it does, too! I had only been gluten-free for about 4 days when I got it dyed and it was blindingly painful, my scalp was soooooo sensitive and I ended up with scabs and dry scalp...I hear that can happen with bleach sometimes...but I can put up with a lot of pain and it was pretty much unbearable. If I don't start feeling better on the very limitied diet that I'm on now then I imagine I won't be dying again and will be changing shampoos and scrubbing my house from top to bottom I guess :P

Not only is this disease nasty, painful, and a lot of time just plain gross...it is also a LOT of work!!! :blink:

IrishHeart Veteran
IrishHeart
Posted

Wow, that's terrible, I hope it does, too! I had only been gluten-free for about 4 days when I got it dyed and it was blindingly painful, my scalp was soooooo sensitive and I ended up with scabs and dry scalp...I hear that can happen with bleach sometimes...but I can put up with a lot of pain and it was pretty much unbearable. If I don't start feeling better on the very limitied diet that I'm on now then I imagine I won't be dying again and will be changing shampoos and scrubbing my house from top to bottom I guess :P

Not only is this disease nasty, painful, and a lot of time just plain gross...it is also a LOT of work!!! :blink:

That's what happened to me. I have been coloring my hair for years, no problems, but during the last year, my scalp went crazy. Sores, beet red, itchy, peeling...gosh, I hope yours "behaves" for you. the real bummer is...it grew in gray/white :blink: YUCK and it's so thin right now from malabsorption...I'm not happy about it at all.

I hear you. I just had to eliminate MORE foods. Pretty soon, I'll be down to lettuce and water. :angry:

This disease sucks.

I try to focus on how much better I'm going to feel in the coming months after years in agony... :unsure:

Anything will be better than the way I was! :)

Fire Fairy Enthusiast
Fire Fairy
Posted

I had that spaced out feeling for years. Thankfully mine is gone now that I've been gluten free. I hope yours passes soon.

That's what happened to me. I have been coloring my hair for years, no problems, but during the last year, my scalp went crazy. Sores, beet red, itchy, peeling...gosh, I hope yours "behaves" for you. the real bummer is...it grew in gray/white :blink: YUCK and it's so thin right now from malabsorption...I'm not happy about it at all.

I hear you. I just had to eliminate MORE foods. Pretty soon, I'll be down to lettuce and water. :angry:

This disease sucks.

I try to focus on how much better I'm going to feel in the coming months after years in agony... :unsure:

Anything will be better than the way I was! :)

One of my friends thought a picture of me with my new natural hair color was a photo of my mom (she's in her 70's I'm in my 30's). Another friend said, "When are you going to dye your hair again, you look old?" Oh well at least now I don't feel old! :)

IrishHeart Veteran
IrishHeart
Posted

I had that spaced out feeling for years. Thankfully mine is gone now that I've been gluten free. I hope yours passes soon.

One of my friends thought a picture of me with my new natural hair color was a photo of my mom (she's in her 70's I'm in my 30's). Another friend said, "When are you going to dye your hair again, you look old?" Oh well at least now I don't feel old! :)

The spacey thing is gradually subsiding for me...thanks for telling me it has gone away you-- :) it's encouraging! As for the hair, I can learn to accept the grey/white thing IF it would just grow in some more!!...sigh...

and yes, I am all for not feeling like I'm older than my very active Mom (she's 84 and still goes to the gym 3X a week, cardio kick boxes, uses a stair master & lifts weights!!.. ):blink: ..I'm so weak I can't lift a bag of potatoes and climbing stairs is exhausting....oh well, time will heal me!!

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