Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What's With Doctors?


mbrookes

Recommended Posts

mbrookes Community Regular

Yesterday I went to a new orthopedic doctor about a foot problem. He looked at my paperwork and said "I see you have Celiac. What do you take for it?" This was a very young (think Doogie Howser) doctor who must have been in med school fairly recently. Don't they teach them about Celiac? OK, he's not a GI specialist, but I would think he would pick up a little basic info somewhere along the way! Is this unusual? Am I being unreasonable?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Yesterday I went to a new orthopedic doctor about a foot problem. He looked at my paperwork and said "I see you have Celiac. What do you take for it?" This was a very young (think Doogie Howser) doctor who must have been in med school fairly recently. Don't they teach them about Celiac? OK, he's not a GI specialist, but I would think he would pick up a little basic info somewhere along the way! Is this unusual? Am I being unreasonable?

I once read on here that doctors get the equivalent of maybe one 30 minute lecture on celiac in med school if they get that at all. With all the other major illnesses (like heart disease, cancer, etc) they have to take entire courses. So the chance of getting a doctor that knows about celiac is slim. That's no excuse of course. I tend to think that if a doctor looks at your chart, sees celaic and doesn't have any clue what that is they should look it up for a refresher first. Is there any chance he was asking if you take vitamin supplements or something? I guess I would just be glad he was NOT my GI or primary doctor. :unsure:

Gfreeatx Apprentice

Reminds me of a joke. What do you call someone who finishes last in their class in medical school? Doctor :) In all seriousness sadly there are many out there who are uninformed about Celiac. I did actually have a pleasant experience the other day while eating out for my husband's b-day. Our waiter was wonderful and seemed to know so much about Celiac disease as I was thanking him for all of his help he said he is in nursing school and they just spent a week studying Celiac disease. Good to know someone is getting educated. :)

jenngolightly Contributor

Yesterday I went to a new orthopedic doctor about a foot problem. He looked at my paperwork and said "I see you have Celiac. What do you take for it?" This was a very young (think Doogie Howser) doctor who must have been in med school fairly recently. Don't they teach them about Celiac? OK, he's not a GI specialist, but I would think he would pick up a little basic info somewhere along the way! Is this unusual? Am I being unreasonable?

And this is exactly why it takes us so long to get a correct diagnosis.

I hope you took a few minutes to get him up to speed. Doctors are really busy and I doubt he'd take the time to look it up later.

Camp Laffalot Newbie

I just spent four days in a regional hospital here in Florida and the Dietary Department has NO CLUE what gluten is! They claimed to serve me a "gluten free diet", but the first breakfast offered 2 pieces of whole WHEAT toast, a box of Rice Crispies which lists the 4 ingredient as "malt flavoring", etc., etc. They just got angry with me and insisted that everything was gluten free. I asked to speak to the REGISTERED DIETICIAN and was told that she wasn't available on weekends! But she refused to talk with me on Monday, Tuesday, and Wednesday, too, while I continued to get gluten in most meals. The nurses were definitely on my side and the charge nurse raised hell with dietary, but that just made them mad at all of us. When I mentioned all this to my doctor, she said "The Dietary Department in this hospital is from another planet! Watch out!" So, I paid for the food they put in front of me and ate the gluten free food that my dear husband brought me. I will never go to that hospital again, and they will hear more from me!!!!

Melstar23 Apprentice

I had to stay overnight in hospital a couple of months ago, when I told the nurses I couldn't eat gluten, they offered me All Bran or toast for breakfast. They genuinely had no idea and were tryig to help me.

Camp Laffalot Newbie

And while we're at it, what's with pharmacists? I wanted to find out if any of my Rx drugs had gluten and talked with the pharmacist at WalMart the other day. Told him I had Celiac and wanted it noted in his computer. He said "I've heard of Celiac, but what is it?" I gave him a 5 minute crash course.

Keep educatin' 'em, gang!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I just spent four days in a regional hospital here in Florida and the Dietary Department has NO CLUE what gluten is! They claimed to serve me a "gluten free diet", but the first breakfast offered 2 pieces of whole WHEAT toast, a box of Rice Crispies which lists the 4 ingredient as "malt flavoring", etc., etc. They just got angry with me and insisted that everything was gluten free. I asked to speak to the REGISTERED DIETICIAN and was told that she wasn't available on weekends! But she refused to talk with me on Monday, Tuesday, and Wednesday, too, while I continued to get gluten in most meals. The nurses were definitely on my side and the charge nurse raised hell with dietary, but that just made them mad at all of us. When I mentioned all this to my doctor, she said "The Dietary Department in this hospital is from another planet! Watch out!" So, I paid for the food they put in front of me and ate the gluten free food that my dear husband brought me. I will never go to that hospital again, and they will hear more from me!!!!

You need to document this in a letter. Send them in separate envelopes addressed to: ( by title if you can't find a name). Chief Financial Officer, chief Executive Officer, Head of Nursing, legal Department, head of dietary, head of clinical dietician, chief of Staff, & your doctor. If you want, send them to every director of every hospital department - medical records, maintenance, housekeeping, radiology, lab, labor & delivery, etc. You will get the attention of at least one of these people. The others will send it to dietary or legal. You might send it to the head of Finance & the Billing Supervisor with a little note about wanting a $30 a day refund for the food you were medically unable to eat. Be sure to note right at the beginning of the letter the fact that serving you this food would make you very ill ( bold letters) If you know an attorney, even if they don't deal with malpractice, cc them in big print if they are willing ( this is what your BIL is finally good for).

notme Experienced

If you know an attorney, even if they don't deal with malpractice, cc them in big print if they are willing ( this is what your BIL is finally good for).

LOLOL LOLOLOLOL that made me choke on my tea! my *good* BIL is an electrician. the rest are not attorneys!!! thanx for a great laugh :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Accuracy of testing concerns

    2. - Theresa2407 replied to chrish42's topic in Doctors
      4

      Doctors and Celiac.com

    3. - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Healthy Gluten Free Foods low sugar that you found?

    5. - trents replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,252
    • Most Online (within 30 mins)
      7,748

    Kahuna
    Newest Member
    Kahuna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships
    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.