Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin/mineral Levels Normal With Gluten Intolerance?


Buffheart

Recommended Posts

Buffheart Apprentice

Hi all! I am still somewhat new here and haven't posted a lot. In August 2010 my GI doctor told me I might have gluten intolerance/sensitivities. From what I have read a lot of people with Celiac/gluten intolerance have deficiencies in vitamins and minerals. I have blood drawn a couple times a year and they always come back fine. No anemia, thyroid fine, all levels completely normal, even though I don't take multivitamins and don't always eat too healthy. How is this possible? Is this normal for people with gluten issues?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Vitamin deficiency is common in celiacs, but is not universal. Depending on the level of damage to the villi, you may absorb enough nutrients to not test as deficient. I would guess, though, that you are at the lower end of the "normal" range.

healinginprogress Enthusiast

I think it really depends on how much damage has been done to your intestines...it's different time frames for different people, it seems. My symptoms have progressively gotten worse over the years, this last year being particularly awful and with significant weight loss. I think it's possible that maybe your insides aren't that damaged, yet...but trust me, you don't want to get to that point! Will your doctor send you for the blood test for gluten sensitivity?

Buffheart Apprentice

I had some kind of tests done in May. They were in-depth tests and they came back indicating that something was amiss, but my endoscopy was totally normal. I even have the pictures! Unfortunately I do not have a copy of my test results.

Strawberry-Jam Enthusiast

My iron always came back normal, but "a little on the low side." And I've never had other bloodwork come back abnormal until the celiac blood panel, which was very positive.

Buffheart Apprentice

Actually, I did have blood work done about a month ago to test vitamin/mineral/blood sugar, but my doctor never called and told me the results like she said she would...

I can only assume everything was normal, like usual.

shopgirl Contributor

All of my vitamin and mineral levels checked out too


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

Actually, I did have blood work done about a month ago to test vitamin/mineral/blood sugar, but my doctor never called and told me the results like she said she would...

I can only assume everything was normal, like usual.

We can never ass-u-me anything. I make it a point to always pick up a copy of my lab work. You're entitled to copies of all your test results.

mushroom Proficient

I agree with Sylvia. Your readings can be strictly interpreted as normal, but you can be on the very bottom rung of the ladder, barely hanging on. With most nutrients that gluten intolerants become deficient in, you need to be mid-range, not at the lowest possible level of normal :huh:

Buffheart Apprentice

Next time I see my doctors I will ask for copies. How long does blood work take? I can't imagine it would take a month to test fir vitamin, minerals, and blood sugar, especially when there are several labs nearby.

What is lower "normal" range? Is it good?

mushroom Proficient

Well, I guess what I was trying to say is, if a hypothetical range of normal for Vitamin D is 32 to 320, and you measured 32 on the test, you would not be at optimum health and it wouldn't take much to push you under. Also, what is being measured is what is circulating in your blood stream only, not what is actually contained in your cells, which could be lower. So it is a real warning flag that you need some more Vitamin D. A better reading would be around 200, which is a lot different than 32. Vitamin D controls so many functions in the body, including the making of bone, and you want to make sure your bones are as strong as possible, I would think.

Some tests take longer to process than others, some cannot be done in house and have to be sent to specialized labs. I believe Vitamin D is one of these.

anabananakins Explorer

Well, I guess what I was trying to say is, if a hypothetical range of normal for Vitamin D is 32 to 320, and you measured 32 on the test, you would not be at optimum health and it wouldn't take much to push you under. Also, what is being measured is what is circulating in your blood stream only, not what is actually contained in your cells, which could be lower. So it is a real warning flag that you need some more Vitamin D. A better reading would be around 200, which is a lot different than 32. Vitamin D controls so many functions in the body, including the making of bone, and you want to make sure your bones are as strong as possible, I would think.

Some tests take longer to process than others, some cannot be done in house and have to be sent to specialized labs. I believe Vitamin D is one of these.

Yeah and a lot of doctors just look at the range and if you're 'normal' you're ok. I don't think that gives the whole picture. For what reason are we at the bottom of the range? My doctor isn't worried about my iron levels, but I'm sitting on the very bottom rung of that ladder.

Also there are unrelated issues that could cause problems in the future. My B12 was within the normal range but I'm taking a drug that can cause B12 levels to deplete (Metformin) so they could get worse despite me being gluten free. The "normal" results might only be at a moment in time, not necessarily indicative of ongoing good health.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,672
    • Most Online (within 30 mins)
      7,748

    Kate cavanaugh
    Newest Member
    Kate cavanaugh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • StevieP.
      Thanks so much for that information!! That helps me out alot!!
    • Scott Adams
      It’s completely understandable to feel confused and anxious—colonoscopy prep can feel overwhelming, especially when you’re already dealing with symptoms like loose stools and elevated inflammation markers (that high calprotectin and CRP definitely warrant further investigation!). Regarding the senna tablets: The warning about avoiding senna with IBD (like Crohn’s or colitis) is typically because it can irritate an already inflamed colon. Since you don’t yet have a confirmed diagnosis—but your brother has colitis—it might be worth calling your gastroenterologist’s office today to clarify if you should skip the senna given your symptoms and family history. Some clinics have an on-call nurse who can advise quickly. For the prep itself: Plenvu is strong, so if your bowels are already loose, the senna might be overkill. Stick to clear liquids tomorrow (broth, apple juice, etc.) and stay near a bathroom! For anxiety, remember the procedure itself is painless (you’ll likely be sedated), and the prep is the hardest part. Bring a phone charger or book to the clinic, and treat yourself afterward to something gentle on your stomach (like mashed potatoes or yogurt). Hang in there—this is a big step toward answers. You’re doing great advocating for yourself!
    • Scott Adams
      Great question! Wheat straw dishes are typically made from the stalks of wheat plants (which are naturally gluten-free) combined with a binding resin. While the straw itself shouldn’t contain gluten, the safety depends on how the product is processed. Some manufacturers may use wheat-based binders or process the straw in facilities that handle gluten, creating cross-contact risks. To be safe, I’d recommend reaching out to the company directly to ask: 1) If their wheat straw material is tested to confirm it’s free of gluten proteins, and 2) Whether the production line avoids cross-contamination with gluten-containing ingredients. Many brands now cater to gluten-free consumers and will provide detailed answers. If you’re uncomfortable with the uncertainty, alternatives like bamboo, ceramic, or glass dishes are inherently gluten-free and worry-free. Always better to double-check—your diligence is totally justified!
    • Scott Adams
      I’m so sorry you’ve been struggling for so long without the answers or relief you deserve. It’s incredibly frustrating to have a celiac diagnosis yet still face debilitating symptoms, especially after decades of strict gluten-free living. Your history of chronic health issues—SIBO, food allergies, recurrent infections, and now potential complications like nerve pain (left leg) and mucosal ulcers—suggests there may be overlapping conditions at play, such as autoimmune comorbidities (e.g., Hashimoto’s, Sjögren’s), nutrient deficiencies, or even refractory celiac disease (though rare). Stanford is an excellent step forward, as their specialists may uncover missed connections. The medical gaslighting you’ve endured is unacceptable, and while legal action is an option, focusing on thorough testing (e.g., repeat endoscopy, micronutrient panels, autoimmune markers, skin biopsy for dermatitis herpetiformis) might be more immediately helpful. Menopause can absolutely exacerbate underlying inflammation, so hormonal imbalances should also be explored. For symptom relief, some in the celiac community find low-dose naltrexone (LDN) or mast cell stabilizers helpful for systemic issues, but a functional medicine doctor (if accessible) could tailor supplements to your needs. You’re not alone in this fight—keep advocating fiercely at Stanford. Document everything meticulously; it strengthens both medical and potential disability claims. Sending you strength—this shouldn’t be so hard, and you deserve real solutions.
    • Scott Adams
      Since you have a confirmed celiac disease diagnosis alongside severe IgA deficiency, consulting an immunologist is a reasonable step to better understand the implications of your immune status. While many IgA-deficient individuals remain asymptomatic, the deficiency can occasionally be linked to increased susceptibility to infections, autoimmune conditions, or other immune-related concerns. An immunologist can assess whether additional monitoring or preventive measures (e.g., vaccinations, infection screening) are warranted. Given your location in Atlanta, academic medical centers like Emory University may have immunologists familiar with IgA deficiency, even if they don’t specialize exclusively in it. Telemedicine is also a great option—consider reaching out to specialists at institutions like the NIH, Mayo Clinic, or Cleveland Clinic, many of whom offer remote consultations. If you haven’t already, checking with the Immune Deficiency Foundation (IDF) for provider recommendations might help. It’s always wise to gather expert insight, especially since celiac and IgA deficiency can coexist with other immune dysregulation.
×
×
  • Create New...