Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin/mineral Levels Normal With Gluten Intolerance?


Buffheart

Recommended Posts

Buffheart Apprentice

Hi all! I am still somewhat new here and haven't posted a lot. In August 2010 my GI doctor told me I might have gluten intolerance/sensitivities. From what I have read a lot of people with Celiac/gluten intolerance have deficiencies in vitamins and minerals. I have blood drawn a couple times a year and they always come back fine. No anemia, thyroid fine, all levels completely normal, even though I don't take multivitamins and don't always eat too healthy. How is this possible? Is this normal for people with gluten issues?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Vitamin deficiency is common in celiacs, but is not universal. Depending on the level of damage to the villi, you may absorb enough nutrients to not test as deficient. I would guess, though, that you are at the lower end of the "normal" range.

healinginprogress Enthusiast

I think it really depends on how much damage has been done to your intestines...it's different time frames for different people, it seems. My symptoms have progressively gotten worse over the years, this last year being particularly awful and with significant weight loss. I think it's possible that maybe your insides aren't that damaged, yet...but trust me, you don't want to get to that point! Will your doctor send you for the blood test for gluten sensitivity?

Buffheart Apprentice

I had some kind of tests done in May. They were in-depth tests and they came back indicating that something was amiss, but my endoscopy was totally normal. I even have the pictures! Unfortunately I do not have a copy of my test results.

Strawberry-Jam Enthusiast

My iron always came back normal, but "a little on the low side." And I've never had other bloodwork come back abnormal until the celiac blood panel, which was very positive.

Buffheart Apprentice

Actually, I did have blood work done about a month ago to test vitamin/mineral/blood sugar, but my doctor never called and told me the results like she said she would...

I can only assume everything was normal, like usual.

shopgirl Contributor

All of my vitamin and mineral levels checked out too


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

Actually, I did have blood work done about a month ago to test vitamin/mineral/blood sugar, but my doctor never called and told me the results like she said she would...

I can only assume everything was normal, like usual.

We can never ass-u-me anything. I make it a point to always pick up a copy of my lab work. You're entitled to copies of all your test results.

mushroom Proficient

I agree with Sylvia. Your readings can be strictly interpreted as normal, but you can be on the very bottom rung of the ladder, barely hanging on. With most nutrients that gluten intolerants become deficient in, you need to be mid-range, not at the lowest possible level of normal :huh:

Buffheart Apprentice

Next time I see my doctors I will ask for copies. How long does blood work take? I can't imagine it would take a month to test fir vitamin, minerals, and blood sugar, especially when there are several labs nearby.

What is lower "normal" range? Is it good?

mushroom Proficient

Well, I guess what I was trying to say is, if a hypothetical range of normal for Vitamin D is 32 to 320, and you measured 32 on the test, you would not be at optimum health and it wouldn't take much to push you under. Also, what is being measured is what is circulating in your blood stream only, not what is actually contained in your cells, which could be lower. So it is a real warning flag that you need some more Vitamin D. A better reading would be around 200, which is a lot different than 32. Vitamin D controls so many functions in the body, including the making of bone, and you want to make sure your bones are as strong as possible, I would think.

Some tests take longer to process than others, some cannot be done in house and have to be sent to specialized labs. I believe Vitamin D is one of these.

anabananakins Explorer

Well, I guess what I was trying to say is, if a hypothetical range of normal for Vitamin D is 32 to 320, and you measured 32 on the test, you would not be at optimum health and it wouldn't take much to push you under. Also, what is being measured is what is circulating in your blood stream only, not what is actually contained in your cells, which could be lower. So it is a real warning flag that you need some more Vitamin D. A better reading would be around 200, which is a lot different than 32. Vitamin D controls so many functions in the body, including the making of bone, and you want to make sure your bones are as strong as possible, I would think.

Some tests take longer to process than others, some cannot be done in house and have to be sent to specialized labs. I believe Vitamin D is one of these.

Yeah and a lot of doctors just look at the range and if you're 'normal' you're ok. I don't think that gives the whole picture. For what reason are we at the bottom of the range? My doctor isn't worried about my iron levels, but I'm sitting on the very bottom rung of that ladder.

Also there are unrelated issues that could cause problems in the future. My B12 was within the normal range but I'm taking a drug that can cause B12 levels to deplete (Metformin) so they could get worse despite me being gluten free. The "normal" results might only be at a moment in time, not necessarily indicative of ongoing good health.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.