Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What's Your Vote?

snifter

By snifter
in Coping with Celiac Disease

Recommended Posts

snifter Apprentice
snifter
Posted

First let me thank you in advance! You are appreciated!! Ok so I've been gluten free since October 2010 of course I have a ton of questions!

This weekend was babysitting at another house and might have got glutened but it could have been something else. I had a fruit cup, maybe the pears in it? I can't have bananas anymore. I can't be around a mango tree so I was thinking there might be some kind of fruit connection? Anyway I broke out in a rash that night. And I have been icthy all week ! I just can't stand it anymore it's just not going away like I thought it would. Do you have a rash from gluten or is it more likely from something else?

Gluten free kitchen- right now my kitchen is not gluten free because I have a 16 month old baby and I am letting her eat gluten because her pediatrician said we can test her blood for celiac at 18 months and I figure she needs to eat gluten for it to show up! Mine did not show up in blood. I have a mass in my stomach and had a biopsy. Is there any harm with her being gluten free. I feel I really need my kitchen to be gluten free so that I won't get conaminated left and right from my own baby! She will have visible crumbs all over her! I feel like I can't kiss and hug all over her because of the gluten! Ahhhh! Frustration!!

So what's your opinion and advice. Again thank you thank you, I can't show my gratitude enough I hope you have a great day

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

In my opinion there is nothing wrong with having a gluten free house. Testing on children has a higher rate of false negatives anyway at that age. It isn't going to hurt her to be gluten free and will help you be a healthier mommy. Once she is old enough to be less 'crumbly' and will be able to sit at a table to have her gluten foods and not make an extreme mess then go ahead and let her have it. She isn't going to be more likely to develop celiac or issues with gluten because of being gluten free now. However if she does have an issue with gluten once you start feeding it to her again you may notice symptoms in her behavior, growth or tummy aches.

zimmer Rookie
zimmer
Posted

My vote is to go totally gluten free. Take care of yourself! Your little one will never miss it. It will make life so much easier for you.

As for getting her tested, I wouldn't worry about it right now. If symptoms or problems develop in the future, then deal with them at that time.

My perspective on this - my kitchen is gradually going gluten-free. I still have a few gluten items for small children (6 & 4) who have favorite snacks. However, I am making changes to their habits and brands. FYI, they tested negative but I'm not going to take that as an all clear for them. Like was posted before, they probably have a higher false-negative rate. If they develop issues, then we will do something then.

mamaw Community Regular
mamaw
Posted

Dr.Alessio Fasano is doing a study on this ..He has clients /patients that are not giving their children any gluten for the first two years of life. The study is new so h ecan't make a judgement call at present but down the road this study will make a difference.He's not sure if it will keep or help a child from developing celiac or if it will only prolong the child to develop at a later age.He is with the University of Maryland,may be you can look up his research to date. I'm on my way out for supper or I'd do it...

I for one have never seen a death from not eating wheat/gluten....

I would follow your heart & decide for yourself &your child.You know best.........

blessings

mamaw

K8ling Enthusiast
K8ling
Posted

My rule is they can eat whatever they want outside the house, but in the house, the kitchen is my domain and I need to be safe. The kid and my husband had pizza outside today and I ate my lunch inside. Then we washed up lil guys hands and face and brushed his teeth. At school (he's 2.5) they adhere to the same rules.

It has seemed to help me a lot and I am hoping to have continued success with the new baby as well!

Loey Rising Star
Loey
Posted

I agree with keeping the house gluten free. Your little one's not going to suffer by your keeping the house gluten-free and you can possibly make her own gluten-free baby food (or check Whole Foods and see if they carry it). Your baby is going to need a healthy energetic mother more than a diet with gluten in it.

Sending positive energy!

Loey smile.gifsmile.gif

snifter Apprentice
snifter
Posted
  • Author

You have just confirmed my thoughts! Again thank you!

Add smiley faces here

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,671
    • Most Online (within 30 mins)
      7,748
    Paul1567
    Newest Member
    Paul1567
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.