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Symptom Question


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PMC Newbie

Has anyone had itching without a rash? I have noticed a lot of itching mostly on the back of my neck for a couple of months now and more recently near my ears and on my neck below the ears, but never have a rash, once in awhile I will get a bump but seems to go away pretty quickly. All of my symptoms seem pretty mild in comparison to many of you but I seem to have mild symptoms of all three areas digestive, skin and neurological. I'm waiting on biopsy results but received a weakly positive blood test.


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heather Goble Rookie

Has anyone had itching without a rash? I have noticed a lot of itching mostly on the back of my neck for a couple of months now and more recently near my ears and on my neck below the ears, but never have a rash, once in awhile I will get a bump but seems to go away pretty quickly. All of my symptoms seem pretty mild in comparison to many of you but I seem to have mild symptoms of all three areas digestive, skin and neurological. I'm waiting on biopsy results but received a weakly positive blood test.

Itching is always my first reaction when I accidentally ingest something with gluten. I itch all over without any visible rash. I do however get a couple pimple like bumps here and there, which I never experienced before going gluten free. Actually, I only remember having the itching issue once before going gluten free, it was while I was pregnant with my son, I started itching all over, for hours and couldn't figure out what it was.

Happyw5 Explorer

I just went through this last night...I was glutened on Sunday (my mother in law) and I had such crazy itching on my neck and back, with no rash.

salexander421 Enthusiast

I've wondered about this also. My daughter had a rash on her bottom that was really itchy and lasted for a few months and then went away but she has continued to itch at it even though the rash is gone. Can you do a biopsy if there is no rash, only itchy skin?

divamomma Enthusiast

My daughter also gets very itchy on her back but has no rash.

mushroom Proficient

I also developed rashless itching on my shoulders after quitting gluten. In my case it was from soy - I was eating gluten free substitute foods that contained a lot of soy, I found out.

Gfreeatx Apprentice

I get that as well. It's usually just on the front of my calves and there are some tiny bumps at times as well. After being diagnosed with Celiac I thought possibly I had DH as well, but Dr. said the rash would be very visible with DH. I cut out some of the processed gluten-free foods I was eating on a regular basis and that seems to have helped.


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Roda Rising Star

Could the itching be unrelated to celiac? I get itchy from dry skin and from certain products. I itch like mad if I use sented/colored laundry detergent or scented fabric softner sheets. I have to use dye/fragrance free laundry stuff or I will itch until I drive myself insane. I also get contact dermatitis from certain female toiletries as well.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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