Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So, You Think You're Gluten Free?


bridgeofsighs

Recommended Posts

bridgeofsighs Apprentice

I'm sure this has been discussed on the forum before, so please forgive me...

In the following video, this Dr. Osborne fella is telling us that ALL grains contain their own forms of gluten and (may?) need to be avoided by those who have a gluten sensitivity. After watching this video, what is your take on the idea of the "true gluten free diet"?

Open Original Shared Link

-Thoroughly Cornfused in Ohio


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mothering3 Apprentice

I'm sure this has been discussed on the forum before, so please forgive me...

In the following video, this Dr. Osborne fella is telling us that ALL grains contain their own forms of gluten and (may?) need to be avoided by those who have a gluten sensitivity. After watching this video, what is your take on the idea of the "true gluten free diet"?

Open Original Shared Link

-Thoroughly Cornfused in Ohio

He'd have to make a pretty strong case that other grains are a problem in order to convince me to go grain-free. I didn't think he made that case. It seems like what he did was talk about many diseases that can be associated with gluten intolerance (as we know), and he brought up some studies that show other grains can have inflammatory action too (which we also know...many people with Celiac cannot tolerate corn or other grains.)

But seriously, I do not want to give up wheat gluten, and I am to save my health. I am currently on a diet of very restricted grains (rice, quinoa, amaranth) while I am healing, and I DO NOT wish to give up all grains forever.

Whats strange to me about this video is that he does not talk about how the majority of people with celiacs get drastically better after removing wheat-gluten from their diet. If they were all needing to be grain-free, wouldn't they see no improvement until they did so? Seems fishy to me. If even trace amounts of wheat gluten make us extremely ill, how could we go on eating rice and corn every day and feeling better than ever?

However, I would agree that American diets are overly grain-based. I have really tried to reduce grains in our house and eat more veggies, fruits, meats, nuts, and seeds because grains are too low in nutrients and I think we should eat smaller portions of them.

dilettantesteph Collaborator

I am sensitive to very low levels of gluten. I do react to a lot of gluten free grains, but not if I sort them and wash them carefully first. Some are contaminated with gluten, but they don't contain gluten themselves, or at least not the kind of gluten which harms celiacs. Gluten is a term used for storage protein of cereal grains. I think the guy is wrong. Also, I went through and read the references which he gives for why gluten free grains are harmful. Some which he used to say that they were harmful, actually said that they were not harmful. They were studies in which corn and rice were used as controls because they caused no harm. Another one was for corn which was contaminated with something like 80 ppm gluten. I don't have that number quite right, but it was around there.

salexander421 Enthusiast

I know some people do have problems with other grains, I think I probably don't do as well if I eat a lot of grains but I don't get the same obvious symptoms as when I eat gluten. So, I would say it might be the case for some, but certainly not all.

cassP Contributor

a lot of members on here do not like that guy or his site.... now i dont know if what he's saying is true. BUT i DO know that some of us feel better grain free or mostly grain free.... or free from certain grains. i think to some extent- his ideas may be true for some of us..

i for example get gluten symptoms from corn products... but others on here.. (& famous food bloggers) are completely okay with corn. some members on here cant do OATS- even certified gluten-free oats- but i can.

i also react badly to potatos and tapioca starch and most of the flours in gluten free substitutes.

im fine with rice HOWEVER- i feel better really only having rice 2 or 3 times a week.

the LESS grains i eat the BETTER i feel!!!! and i dont know if it has to do with gluten or similar "glutens" ... or if some of us were simply not designed to consume & digest grains

Mothering3 Apprentice

a lot of members on here do not like that guy or his site.... now i dont know if what he's saying is true. BUT i DO know that some of us feel better grain free or mostly grain free.... or free from certain grains. i think to some extent- his ideas may be true for some of us..

i for example get gluten symptoms from corn products... but others on here.. (& famous food bloggers) are completely okay with corn. some members on here cant do OATS- even certified gluten-free oats- but i can.

i also react badly to potatos and tapioca starch and most of the flours in gluten free substitutes.

im fine with rice HOWEVER- i feel better really only having rice 2 or 3 times a week.

the LESS grains i eat the BETTER i feel!!!! and i dont know if it has to do with gluten or similar "glutens" ... or if some of us were simply not designed to consume & digest grains

I'm not sure why other people on the site don't like him, but personally he did not strike me as a trustworthy source of information. He had that guruey, pyramid scheme style of communication. You know, throwing out a bunch of facts, out of context, not really developing them to make his case, etc. He obviously has some things to say that are very much true, and I certainly don't doubt that there are people who need to avoid consuming grains, as there are of any food. Grains are more commonly a problem I think, because of their relative newness. But couldn't you make a similar case for any food? Especially the part about pesticides. Like, I know that is true, but that is not just true of grains! Its in all our non-organic foods! Seems like this guy is doing one of those fear-based ________ food is eeeeeviiiiiil kind of cases. Just like the ____ food is the miracle that is going to make you invincible and immortal case. I don't buy it. I don't even think that is true of wheat, even though it is clearly bad for a number of people, even to the point of poisoning them (such as myself). I imagine there are people for whom whole wheat is a healthy source of nutrition....wish I was among them. sigh.

GFinDC Veteran

I think he has a point. If we all just assume the world is flat, we may never even think to check for a curve in the surface. So, if we all just assume there is no problem with any grain besides Wheat, rye, barley and oats, we may miss something about the whole situation. I think it would be good if some enterprising scientist-head did a study on other grains and how they affect people, especially celiacs and gluten sensitive people.

Probably that list of problem grains was "decided" decades ago, and it may be time for a re-evaluation.

I don't have much problem with other grains myself, except for white rice. But there are several of people with corn issues here. And some have problems with quinoa, which bothers me some too.

I have been looking up cross-reactions and allergies some late lately, and there are a number of allergens that have been associated with causing cross-reactions in people with IgE responses. They say that the protein in wheat, rye and barley and oats is very similar. I wonder how it compares to these other grains though?

I like his talk about gluten sensitivity causing a whole range of other conditions/symptoms also. It looks like this video was made in 2009. The only thing that bothered me was when he said ataxia is dizziness. It is actually much more serious than that. I think it is a good video. I liked his discussion of testing also, and how it is not very complete generally.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748

    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.