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How Common Is Gastroparesis Here?

Chopper

By Chopper
in Coping with Celiac Disease

Recommended Posts

Chopper Apprentice
Chopper
Posted

Hello,

After discovering celiac with an upper endoscopy (it was a silent disease for me), at the same time they discovered antral gastritis and gastroparesis. The gastroparesis continues to worsen even though I've been gluten free since August. Gastritis remains the same. I now have a positive ANA (1:320), so there might be a connective tissue disease we're looking for, maybe sjogren's. But I have two questions:

1. Can celiac (even though gluten free for nearly 8 months) cause a positive ANA of 1:320, speckled?

2. Does celiac cause gastroparesis, and if so would it worsen after being gluten free for nearly 8 months?

Anyone with similar experience?

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Chopper Apprentice
Chopper
Posted
  • Author

Maybe I got my answer by no one replying. Maybe celiac and gastroparesis aren't really connected. And maybe celiac and a positive ANA aren't connected either. It seems we're looking at a connective tissue disease.

Marz Enthusiast
Marz
Posted

Hi there

I think quite a few suffered from it before going gluten free. How strict is your diet - any chance of small amounts of gluten getting in? Have you had follow up tests to check blood antibodies or intestine to see if you are healing?

I was " diagnosed" with non ulcerative gastoparesis while trying to figure out what was wrong with me. Turns out I was gluten intolerant instead!

Hope you figure out what the problem is. You do know there is often greater chance of developing other auto-immune diseases like sjorens, when you have celiac? Bu if you are gluten-free it shouldn't be such a problem still?

Woody Rookie
Woody
Posted

Chooper: When I hwas dignosed with Celiac in 2005 [by an upper GI, blood test neg.] My Dr. had me do the test for gastroparesis[stomach empting]. Showed I had it.

So no more salds. Woody

Nor-TX Enthusiast
Nor-TX
Posted

I also have Gastroparesis diagnosed by the capsule test. In addition I have GERD, hiatal hernia, IBS. I am dairy free and gluten free.

Darn210 Enthusiast
Darn210
Posted

My daughter was diagnosed with it at about the same time as she was diagnosed with celiac disease. Doc thought it was related. He put her on a med for a couple of months to help motility until she had a chance to heal. She has intermittent issues...when glutened and strangely enough about once a month around the same time which I think may be hormonal.

Cinderella10 Newbie
Cinderella10
Posted

I definitely have gastroparesis, and that diagnosis came a year after being strictly gluten-free. About 4 months later I discovered I had several food allergies, and I thought that was the cause of the gastroparesis. It wasn't. If I'm gluten- and allergy-free and do my best to eat what I need for my gastroparesis, I'm mostly okay. Still have good days and bad days, and it's a delicate balance, but I do feel better.

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Chopper Apprentice
Chopper
Posted
  • Author

Hi Marz,

I took the celiac diagnosis very seriously and I consider myself very strict, which I why I'm puzzled why the GP is worsening. And maybe it's another AI underlying it. Thank you for your reply.

Chopper Apprentice
Chopper
Posted
  • Author

Thank you all for your replies. If it turns out I don't have another AI disease causing it, I'll take comfort in knowing there are others with celiac and GP! Thank you!

deezer Apprentice
deezer
Posted

Hi Marz,

I took the celiac diagnosis very seriously and I consider myself very strict, which I why I'm puzzled why the GP is worsening. And maybe it's another AI underlying it. Thank you for your reply.

How strict are you? Do you eat "gluten free" packaged food, or do you prepare everything for yourself? Have you ever tested your food?

Chopper Apprentice
Chopper
Posted
  • Author

How strict are you? Do you eat "gluten free" packaged food, or do you prepare everything for yourself? Have you ever tested your food?

Sorry, just saw your question! I prepare most everything from scratch using gluten-free flours, like muffins and bread. There are a few gluten-free prepackaged items I buy, like Riceworks crackers and a couple other snacks. I avoid dairy except an occasional indulgence in a hard cheese. How do you 'test' your food?

I just got the diagnosis this week of limited scleroderma and hoshimotos, so maybe that's contributing to my tummy problems. I guess only time will tell!

  • 4 years later...
dawn777 Newbie
dawn777
Posted

Hi,

I got diagnosed with Celiac first and when I only improved halfway, I got tested and diagnosed with gastroparesis, the medicine works well, but it has its own diet, no greasy foods or strawberry seeds, many things, I am two different diets for Celiac and GP. GP diet is important too. I take Eyrthmycin Tabs as well for GP.

GFinDC Veteran
GFinDC
Posted

Welcome Dawn!  Since celiac disease interferes with the ability to absorb vitamins, it can cause nerve problems.  It's a good idea to be tested for vitamins levels at the beginning of the gluten-free diet, so we know if we are lacking any.  Some people are low in B vitamins, and that can cause nerve issues.  Which could cause gastroparesis.  So might be worth looking at.

  • 2 weeks later...
zenjess1980 Contributor
zenjess1980
Posted

I have gastroparisis, or go through phases of it [have had the testing for it.]  I think its related to both celiac and my diabetes. 

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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