Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Delayed Reaction Time - Fustrated!


dube

Recommended Posts

dube Contributor

I'm getting so fustrated lately. Does anyone have a delayed reaction time when eating gluten? How do you know what caused the problem...I had dinner tonight, absolutely NO gluten! (gluten-free Spegetti, Sauce, Salad and Wishbone Ranch)...after dinner I've been in the bathroom three times with the big D! Look back because I've been keeping a food log and I think my reaction time is two days. I think I'm having this problem from something I ate two days ago..this morning I went completely normal...Does this make any sense???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StephHappens Rookie

Some people seem to have a reaction RIGHT AWAY. Mine is always the same. I eat and everything is pretty normal, then I go to bed and wake up with a horrible intense headache, heartburn, intestinal cramping, D, and pain in my jaw joints. It lasts about 24 hours and then I feel ok again. But, it's always after I go to sleep and wake up. I never start feeling it right away. That's just me though...everyone is different. It is good you are keeping a journal. I am starting that too. It's only been 4 months since I've been diagnosed and I am averaging getting glutenated about 1-2 times a month. I think it'll get to the point where you'll know exactly how your body will react and what you ate. Hang in there!

iamsarar Rookie

Some people seem to have a reaction RIGHT AWAY. Mine is always the same. I eat and everything is pretty normal, then I go to bed and wake up with a horrible intense headache, heartburn, intestinal cramping, D, and pain in my jaw joints. It lasts about 24 hours and then I feel ok again. But, it's always after I go to sleep and wake up. I never start feeling it right away. That's just me though...everyone is different. It is good you are keeping a journal. I am starting that too. It's only been 4 months since I've been diagnosed and I am averaging getting glutenated about 1-2 times a month. I think it'll get to the point where you'll know exactly how your body will react and what you ate. Hang in there!

I am the same way when I eat gluten. I go to bed fine and wake up feeling awful. Some times it can be 24 or 48 hours after.

dilettantesteph Collaborator

I feel it the next morning like the two previous posters. It takes my son 2 days to feel it. Boy was that confusing until we figured it out!

GFreeMO Proficient

THis wouldn't happen to be Deboles pasta would it? I ate some last night and got really really sick. I emailed them and they don't have ddedicated equipment apart from their whole wheat pasta.

dube Contributor

THis wouldn't happen to be Deboles pasta would it? I ate some last night and got really really sick. I emailed them and they don't have ddedicated equipment apart from their whole wheat pasta.

I eat Tinkyada pasta...which is not the culprit. I've been eating it for six months now. I think I'm having a problem with vinegar...damn...or maybe dairy. I'm going to have to do the process of elimination....this really ticks me off...

Googles Community Regular

I also take a long time to react. I think that I react about 24 hours after ingestion of the culprit. But I can't be for sure. But that is my guess.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,170
    • Most Online (within 30 mins)
      7,748

    Lisa Crowley
    Newest Member
    Lisa Crowley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...