Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Celiacs Who Decided To Be Completely Grain-Free?


Evangeline

Recommended Posts

mushroom Proficient

Do you have any indications that you have candida overgrowth? Naturopaths seem to be big on that right now :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 56
  • Created
  • Last Reply
jenngolightly Contributor

Do you have any indications that you have candida overgrowth? Naturopaths seem to be big on that right now :P

I'm glad you said that. I was starting to wonder if I had candida because I'm seeing it pop up all over the forum.

Jestgar Rising Star

There is a lab test for yeast overgrowth. I personally happen to be very skeptical of this "untestable" level of Candida growth that some holistic practitioners seem to diagnose. You know, the kind that isn't curable with anti-fungals. You need to purchase their supplements and follow a rigorous diet for months/years to cure it....

chasbari Apprentice

There is a lab test for yeast overgrowth. I personally happen to be very skeptical of this "untestable" level of Candida growth that some holistic practitioners seem to diagnose. You know, the kind that isn't curable with anti-fungals. You need to purchase their supplements and follow a rigorous diet for months/years to cure it....

Now this is where I totally agree with your skepticism. When I started looking into some supposed helpful supplements for this I was astonished to read things like "although no studies have been done to show this, it is suspected..." Yikes! Seem suspect to me. I am also going radically in the direction of if it can't be managed by proper diet and rest I am not interested. Where the heck did our ancestors buy all the stuff that kept them healthy anyway?

  • 1 month later...
jstwnttbhealthy Newbie

hi cass, i am an optimist and believe in the body fixing itself. that might be ignorant on my part, but anything to avoid meds.

yes i did have them tested in march 2010 (b 12 = 198 and vitamin d = 21) have been taking supplements for it and got retestet just a few days ago. still waiting for results. will keep you posted to see if the supplementation has helped.

ok, here is my update on the tests: b 12 went up to 865 and vitamin d to 35.9 :)

sb2178 Enthusiast

There is a lab test for yeast overgrowth. I personally happen to be very skeptical of this "untestable" level of Candida growth that some holistic practitioners seem to diagnose. You know, the kind that isn't curable with anti-fungals. You need to purchase their supplements and follow a rigorous diet for months/years to cure it....

Yes, indeed. However, I do believe that many people feel better on them because typically many of the restricted things are not so great for you. For example sugar, or caffiene, or refined grains, etc. Most of those lead to the high followed by the crash.

T.H. Community Regular

Just a quick reply to the original question (oh, a few months late, eek.).

Usually, I'm completely grain free. Every once in a while I try a grain, and so far, it has bombed out every time.

Honestly, I am not certain if this is because the grains themselves are bad, or if the contamination of the grains is what is getting me.

Some grains I get gluten symptoms from (neurological symptoms), some I get some of my allergy responses to (like headaches, which I get with soy) along with the gluten reaction. I'm so crazy sensitive to gluten that it feels impossible to tell if the grains or the cc is the issue, so I'm doing some home testing, growing my own grains, and I'm going to test those out once I've harvested them this year.

Ha, take that, modern food industry! ;)

I have become "allergic" to almost all foods - you name it, I can't eat it.

This SO resonated. This was me in a nutshell. I had less than 10 foods I could eat for nearly a year, and everything else I tried made me sick as a dog, no matter what it was. It was so freaking crazy!! The allergist couldn't figure it out, though, because I didn't test highly allergic to the foods (so perhaps not the same - i wasn't sure how you reacted?), but I still felt miserable.

For myself, while I do have a few food allergies, what really ended up being an issue was an extremely high level of sensitivity to gluten.

So, for example, strawberries from the market, which were grown with wheat or oat straw covering them (which they usually are) made me sick. Strawberries grown in my own garden? No problem at all.

Fruits with wax coatings (including organic ones)? Sick as a dog, with gluten symptoms. Fruits from farmers that didn't wash their produce with soap (that had gluten) and didn't use sprays or coatings (that often have grain derived ingredients) - fine.

Meat that I bought from areas that made sausages or other wheat containing varieties in the same facility? SO bad. Meat I purchased from facilities that didn't use wheat in the same facility? I was fine. This one, I even had a fine-then-death moment, where I was getting sicker and sicker on the food that had been perfectly safe before. Finally started calling around, and found out that my meat company had started making wheat containing sausage in the same facility. I dropped the meat, and started improving.

I have had gluten reactions to my salt (I have only one brand I have tried that I didn't react to), my oils (again, so far, just one brand), honey and other sweeteners, produce with the wrong coatings or compost or coverings used. It's been a real change of lifestyle to figure it out.

So right now, we have a farmer we go to who is safe for produce, a cattle ranch with 100% grass fed beef that works for us (trialing a salmon company, too), an oil, a salt, an iodine supplement and...that's it. We are trying a honey and a sorghum that seemed like they might be safe, but while they seemed okay at first, it seems like there may be a build up of symptoms lately, so grain and sweetener free all over again, sigh.

If you are really gluten sensitive, it might explain why you are reacting to everything, or it seems like it. At least, if your reactions are similar to your gluten reaction. If they are quite different, obviously it has nothing to do with them.

Oh! One thing that made a difference for me in figuring out a few issues for us, though, was tracking down produce from farms/companies that use different techniques. For example, many sweet potatoes are gassed to reduce sprouting. If they are, I get SO sick. If they aren't, I'm fine. We have that same issue with a couple of common pesticides on certain types or fruit/veggies.

So if one brand is okay, and another brand isn't, that's usually a good sign that it's contamination of some sort rather than the food itself, if that makes sense?

good luck - I hope your health is improving after these few months!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    2. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    3. - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    4. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - Scott Adams replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,263
    • Most Online (within 30 mins)
      7,748

    Fruitypebbles
    Newest Member
    Fruitypebbles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.