Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergist?


dube

Recommended Posts

dube Contributor

Has anyone ever gone to an allergist for food allergy testing? I was looking at the enterolab and they are so expensive? I want to get tested but I want to make sure I go to the right kind of doctor....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MrsMonteSS Newbie

Has anyone ever gone to an allergist for food allergy testing? I was looking at the enterolab and they are so expensive? I want to get tested but I want to make sure I go to the right kind of doctor....

Hi, I just went yesterday, after being misdiagnosed for the last two months (Hyperthyroidism / Diabeties). I am Gluten Free for two days now, and slowly feeling myself coming back together. I went and had no food allergies, but he ordered the Gluten work up. A Gastro typically deals with the effects of Celiac, but my allergist wanted this done right away. I would avoid as much sugar as possible because it is the reason I was misdiagnosed, stay hydrated, and start reading labels. I was allows in bouts with Lactose Intolerance as well. Hope this helps! RoseAnne - NY

hnybny91 Rookie

I went to a natropath for food sensitivity testing. Some on here think it is not reliable but I knew there were other food issues after going gluten free and, to be honest, I did not want to do an elimination diet to figure them out. I came back positive for 36 foods (including gluten and wheat....surprise surprise.) Since I have cut all of those foods out I have felt so much better. I highly recommend testing.

pondy Contributor

Has anyone ever gone to an allergist for food allergy testing? I was looking at the enterolab and they are so expensive? I want to get tested but I want to make sure I go to the right kind of doctor....

Hi Dube,

I'm seeing an allergist/immunologist this week.

My primary doctor recommended him because I get bothersome (sometimes scary) reactions to foods & other things - can't seem to figure out which foods, etc...

Fortunately, the allergist is covered by my insurance. Even if he wasn't though, I'd still go.

Personally, a bad allergic reaction for me sometimes involves a "choking" feeling in the throat or shortness of breath. Seems potentially dangerous so I'm covering all my bases.

Good luck to you :)

T.H. Community Regular

Has anyone ever gone to an allergist for food allergy testing? I was looking at the enterolab and they are so expensive? I want to get tested but I want to make sure I go to the right kind of doctor....

I have, and I'd recommend finding a doctor who specializes in food allergies. There are usually one or two in a city, at least. The others? They tend to focus more on environmental allergies and allergy shots, these days.

I went to the latter first, and it was awful. My food allergies were, essentially, 'all in my head' and the fact that I started having trouble with food after going gluten free was a 'coincidence' and...it just went down hill from there.

I persevered and found an amazing allergist. He admitted that most food allergy tests aren't that accurate. The more mild your reactions are, the less accurate the tests were, in his opinion. He recommends a food journal for his patients who aren't having hives as reactions to foods. Sometimes a patch test, but he thinks a food journal is as accurate, if not more so, than patch tests if you are having issues with foods that aren't hives.

You also need to find someone who is aware of Celiac Disease, if possible. Probably need to shop around. Maybe ask people in a local celiac group if there are any they would recommend?

Robert16 Newbie

Yes i did and was very helpful found out about half my problem foods were allergies the one that suprised me was highly allergtic to pork was worth it.

Marilyn R Community Regular

Has anyone ever gone to an allergist for food allergy testing? I was looking at the enterolab and they are so expensive? I want to get tested but I want to make sure I go to the right kind of doctor....

I went to an allergist eight months after going gluten-free against the advice of my Gastro. I learned I was highly allergic to pecans, even though I'd never had a problem with them before. They're an ingredient in a gluten-free SF DF bar I'd been snacking on. The other thing I was highly allergic to is turkey, which I've never cared for, but occasionally ate when it was on sale.

I turned up 2's and 3's on some things (egg yolk, tomato, clams, wheat and barley.) I just avoid repeating the first 3 items in that list in my diet or going overboard on them. For instance, I'll have eggs for breakfast, but eat just the white. I still make things with a beaten egg though (like gluten-free pancakes or refried rice, etc), just wait a few days before eating anything with egg yolk in it again. I don't make tomato sauce anymore, but can deal with tomato sauce or paste as an ingredient in a dish every few days.

I break out in hives but I know my triggers, so I refused the hive panel on the initial visit. We talked about environmental allergies and he told me I probably have mold and dust allergies. He offered that panel as well, and I declined.

So I definitely recommend going to an allergist. You can be selective about the panels ordered, but it's important to discuss this on your initial visit.

I was pretty impressed with how much better I felt after eliminating my other culprits from my diet combined with minimizing the mild allergins. And just so you know, the nurse that does your tests might tell you what popped up on the day of your test if you ask her. (Vs. waiting two weeks for the doctor to tell you. )

If you haven't been tested for celiac disease yet, I think an allergist would order that the day you see them, especially if you ask them to.

Good luck to you! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dube Contributor

Well, going to the alergist was a waste of time! The did the food pricks right there in the office...hardly nothing! She said, alittle on pork, walnuts and crab...well whoopie doo....I dont eat walnuts or crab...and pork well, very little but never had a problem with it...

Oh well...it was worth a try, not to mention a very nice scenic drive in the country!!! LOL

burdee Enthusiast

Well, going to the alergist was a waste of time! The did the food pricks right there in the office...hardly nothing! She said, alittle on pork, walnuts and crab...well whoopie doo....I dont eat walnuts or crab...and pork well, very little but never had a problem with it...

Oh well...it was worth a try, not to mention a very nice scenic drive in the country!!! LOL

Skin tests for food allergies (esp. delayed reaction allergies) are totally worthless, UNLESS your only reaction to food is hives or eczema. We don't put food under our skin when we eat. Many people get gastrointestinal reacions to food allergens. Skin tests will not reproduce those kinds of reactions. However, blood tests can show to which foods our blood creates antibodies. Nevertheless, skin tests can rule out some IgE (immediate reaction, anaphylactic reaction) types of allergies. Some allergy 'experts' consider IgE mediated reactions the only 'true' allergies, despite the fact that most people have delayed reaction food allergies.

  • 2 weeks later...
Deedeedum Newbie

I read the same thing - that a patch (skin) test only uncovers allergies that you have an immediate reaction to. From what I've read, most people with intolerance to certain foods, chronic fatigue, gluten, yeast, celiacs, etc, won't find their allergies with a patch test. Symptoms can take up to 3 days to show up, and they can be subtle: gas, bloating, mood, fatigue, low energy, skin problems and so on. And that's not counting long-term organ and nerve damage.

I would seriously consider getting a blood test done, since this is the only way to see what foods you can tolerate well. And the point isn't only to find what is debilitating, but to find what foods are stopping you from living life to the fullest, or on a full tank of gas.

Cheers

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.