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Hello, I Was Diagnosed With Celiac Last Month.


Runner86

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Runner86 Newbie

Hi everyone, last month while in the hospital I was diagnosed with Celiac and Crones. We couldn't figure out what was wrong with me when it started up a week after Christmas. I lost a lot of weight due to the Celiac and I couldn't go out much. Now that I am aware of whats wrong I have been keeping to being gluten, wheat and dairy free. I am glad to know there is a site like this so I can discuss this. So far from what I have seen this site is my Wikipedia for Celiac Disease. Thank you.


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Lisa Mentor

Hi everyone, last month while in the hospital I was diagnosed with Celiac and Crones. We couldn't figure out what was wrong with me when it started up a week after Christmas. I lost a lot of weight due to the Celiac and I couldn't go out much. Now that I am aware of whats wrong I have been keeping to being gluten, wheat and dairy free. I am glad to know there is a site like this so I can discuss this. So far from what I have seen this site is my Wikipedia for Celiac Disease. Thank you.

Welcome Runner! This is a great place to be and we welcome you! Please feel free to walk around this site and and join in and ask any questions you may have. We have all walked in your shoes and here to help. :)

I stayed home for two months, until my gluten free life took hold. B)

We are glad you're here and glad to be helpful!!!!

dmdavis Newbie

Hi everyone, last month while in the hospital I was diagnosed with Celiac and Crones. We couldn't figure out what was wrong with me when it started up a week after Christmas. I lost a lot of weight due to the Celiac and I couldn't go out much. Now that I am aware of whats wrong I have been keeping to being gluten, wheat and dairy free. I am glad to know there is a site like this so I can discuss this. So far from what I have seen this site is my Wikipedia for Celiac Disease. Thank you.

Hi, I am dmdavis. I was just diagnosed yesterday with Celiac eventhough I had a blood test on March 15 that showed a high count of anti-bodies. My Dr. insisted I have an endoscopy to confirm. I am 67 years old and as I look back at my medical life I realize I have probably had this for most of those 67 years. I have periphal neuropthy, osterporsisi, and a list of things I cannot even remember. I feel healthy and I still manage a 500 unit apartment community. I have taken all of my health issues in stride because when there is no obvious diagnose it becomes a stress related issue or so said all my Dr.'s. I am seeing a Dietician soon to help me through the new eating life I am about to embark on. I have read articles that says long term celiac can be fatal. Please help me find people like me who are older and may have be mis-diagnosed most of their lives.

Thank you!

eatmeat4good Enthusiast

Welcome Dmdavis,

I am glad you finally found out what is wrong. I try to educate everyone I can about Celiac young and old alike. I just try not to be obnoxious about it but I say, Check it out on Celiac.com...and see if you have it too!

Like the commercial Got Milk?

They have a T-shirt Got Celiac?

no kidding. Anyway, welcome to feeling better and getting healthy!

Cattknap Rookie

Hi Runner - welcome! You should be feeling better soon - the diet changes should eventually make a big difference in the way you feel. I too was recently diagnosed with celiac. It was a nurse practitioner who put my symptoms together and believed I might have celiac - finally I was tested - 2 blood tests and a biopsy and every test was positive.

I am 60 and believe that I, like you, have probably had undiagnosed celiac for a while - at least 12 years or longer. Each day I am finding it easier to cope with the dietary restrictions. I am anemic even after taking large does of iron complex for 2 years and I have recent thyroid issues - I have been on the lowest prescribed thyroid meds dose for years until a few months ago - my meds have been raised 3 times this year alone...all caused ultimately from celiac. I also began having shingles (twice in 8 months). I too consider myself healthy and active so this all has been difficult for me to understand what is going on with my body.

I have only been eating gluten free for a three weeks but it was made a positive difference in the way I feel. I'm surprised at all the choices there are for us gluten free people both at restaurants, on-line and at most grocery stores. Truly it is not that difficult to live with, well at least for me.

Good luck to you - do all that you can to live gluten free and your health and energy should improve.

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    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
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      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
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