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Hello, I Was Diagnosed With Celiac Last Month.


Runner86

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Runner86 Newbie

Hi everyone, last month while in the hospital I was diagnosed with Celiac and Crones. We couldn't figure out what was wrong with me when it started up a week after Christmas. I lost a lot of weight due to the Celiac and I couldn't go out much. Now that I am aware of whats wrong I have been keeping to being gluten, wheat and dairy free. I am glad to know there is a site like this so I can discuss this. So far from what I have seen this site is my Wikipedia for Celiac Disease. Thank you.


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Lisa Mentor

Hi everyone, last month while in the hospital I was diagnosed with Celiac and Crones. We couldn't figure out what was wrong with me when it started up a week after Christmas. I lost a lot of weight due to the Celiac and I couldn't go out much. Now that I am aware of whats wrong I have been keeping to being gluten, wheat and dairy free. I am glad to know there is a site like this so I can discuss this. So far from what I have seen this site is my Wikipedia for Celiac Disease. Thank you.

Welcome Runner! This is a great place to be and we welcome you! Please feel free to walk around this site and and join in and ask any questions you may have. We have all walked in your shoes and here to help. :)

I stayed home for two months, until my gluten free life took hold. B)

We are glad you're here and glad to be helpful!!!!

dmdavis Newbie

Hi everyone, last month while in the hospital I was diagnosed with Celiac and Crones. We couldn't figure out what was wrong with me when it started up a week after Christmas. I lost a lot of weight due to the Celiac and I couldn't go out much. Now that I am aware of whats wrong I have been keeping to being gluten, wheat and dairy free. I am glad to know there is a site like this so I can discuss this. So far from what I have seen this site is my Wikipedia for Celiac Disease. Thank you.

Hi, I am dmdavis. I was just diagnosed yesterday with Celiac eventhough I had a blood test on March 15 that showed a high count of anti-bodies. My Dr. insisted I have an endoscopy to confirm. I am 67 years old and as I look back at my medical life I realize I have probably had this for most of those 67 years. I have periphal neuropthy, osterporsisi, and a list of things I cannot even remember. I feel healthy and I still manage a 500 unit apartment community. I have taken all of my health issues in stride because when there is no obvious diagnose it becomes a stress related issue or so said all my Dr.'s. I am seeing a Dietician soon to help me through the new eating life I am about to embark on. I have read articles that says long term celiac can be fatal. Please help me find people like me who are older and may have be mis-diagnosed most of their lives.

Thank you!

eatmeat4good Enthusiast

Welcome Dmdavis,

I am glad you finally found out what is wrong. I try to educate everyone I can about Celiac young and old alike. I just try not to be obnoxious about it but I say, Check it out on Celiac.com...and see if you have it too!

Like the commercial Got Milk?

They have a T-shirt Got Celiac?

no kidding. Anyway, welcome to feeling better and getting healthy!

Cattknap Rookie

Hi Runner - welcome! You should be feeling better soon - the diet changes should eventually make a big difference in the way you feel. I too was recently diagnosed with celiac. It was a nurse practitioner who put my symptoms together and believed I might have celiac - finally I was tested - 2 blood tests and a biopsy and every test was positive.

I am 60 and believe that I, like you, have probably had undiagnosed celiac for a while - at least 12 years or longer. Each day I am finding it easier to cope with the dietary restrictions. I am anemic even after taking large does of iron complex for 2 years and I have recent thyroid issues - I have been on the lowest prescribed thyroid meds dose for years until a few months ago - my meds have been raised 3 times this year alone...all caused ultimately from celiac. I also began having shingles (twice in 8 months). I too consider myself healthy and active so this all has been difficult for me to understand what is going on with my body.

I have only been eating gluten free for a three weeks but it was made a positive difference in the way I feel. I'm surprised at all the choices there are for us gluten free people both at restaurants, on-line and at most grocery stores. Truly it is not that difficult to live with, well at least for me.

Good luck to you - do all that you can to live gluten free and your health and energy should improve.

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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