Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help


aking3028

Recommended Posts

aking3028 Newbie

Well, I've been gluten free for almost a month now and things are still pretty shaky. I get nauseous quite a bit but now I've been having horrible headaches. I've tried all kinds of pain relievers but nothing is taking it away. I called my dr and the receptionist said it has nothing to do with going gluten free, but it seems a little funny that they started after I went off of gluten. I've also noticed I've been really irritable also. Not sure if that has anything to do with the gluten or just because I have a constant headache. Has anyone else experienced any of these symptoms? Thank you


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I have and it was when I was experiencing severe headaches and took Ibuprofen on a regular basis. It lasted for years until I found out about salicylic acid intolerance or sensitivity. It can cause irritability and constant rebound headaches. If you are allergic to aspirin you will react to Ibuprofen.

You could have withdrawal headaches on eliminating gluten, but I would think those would have resolved by now unless you are getting cross contamination somewhere. That would certainly cause headaches too.

There are some threads on here about SA sensitivity.

Try googling Salicylic Acid sensitivity and see if any of the symptoms match yours. Fruits and vegetables also have salicylates...and if you are ingesting a lot more....could cause headaches in those who are sensitive.

I hardly ever get a headache now since I got rid of gluten and salicylates...and I no longer limit salicylates in fruits and vegetables but had to in the beginning.

Just something to think about, I'm sure you will get other answers.

domesticactivist Collaborator

What kind of headaches are they?

When we went off gluten, and especially when we went totally grain free and added probiotic foods one of the symptoms of candida die off was a bad sinus headache - front of head, face, etc. I also got ear aches with it. My partner got eczema flare-ups as well. When the yeast dies off it's got to get out of your system somehow. We trudged through it to the other side and feel much better.

I've always had migraine auras before going gluten-free, and when we first went off gluten I had the worst migraine auras of my life, as well as flare-ups of every other health problem that's ever plagued me. Now that it's been a few months (and especially after starting the GAPS diet) all those symptoms are long gone. I can not believe how healthy I've been feeling!

I think for me the main thing that caused all the flare-up, headaches, auras, etc was the sugar withdrawal. Removing so much hidden sugar from our diet was hard at first because it was an addiction. But once I got through the withdrawal and through the die-off I've felt much, much better.

WinterSong Community Regular

I'm 2 1/2 weeks gluten-free, and last week I had my first ever migraine. It lasted for two days. It started again yesterday and I finally took something for it today when I almost passed out at work. My doctor agreed that it's probably from withdrawl and said that it should go away in time...I can't wait. Hope you feel better soon, too.

aking3028 Newbie

I'm hoping they go away soon too. It's awful waking up with a headache and then lasting all day and going to bed with it still in full force. What did you take that it went away? My doctor's receptionist said it has nothing to do with it, thats when I went on here and figured I'd check on my own.

ravenwoodglass Mentor

I'm hoping they go away soon too. It's awful waking up with a headache and then lasting all day and going to bed with it still in full force. What did you take that it went away? My doctor's receptionist said it has nothing to do with it, thats when I went on here and figured I'd check on my own.

What are you typically eating? Have you deglutened your home? Have you checked all scripts and OTC drugs as well as supplements? Have you eliminated gluten from all your toiletries? I used to get horrible migraines when I was consuming gluten and thankfully they ended once I got rid of every possible source of gluten. They do return full force with even a small amount of CC which is why I asked the questions.

Junot Newbie

joint.webp

when im feeling my worst worst worst and the nausea is uncontrollable and the pain is to much and I think I just cant do this anymore, this is what saves me, no joke.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WinterSong Community Regular

I'm hoping they go away soon too. It's awful waking up with a headache and then lasting all day and going to bed with it still in full force. What did you take that it went away? My doctor's receptionist said it has nothing to do with it, thats when I went on here and figured I'd check on my own.

The first one went away after I took a dose of tylenol. Then I found out that Excedrin Migraine was on the Gluten Free Drug List, and that helped a lot with this last one.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748

    Rockette47
    Newest Member
    Rockette47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.