Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help


aking3028

Recommended Posts

aking3028 Newbie

Well, I've been gluten free for almost a month now and things are still pretty shaky. I get nauseous quite a bit but now I've been having horrible headaches. I've tried all kinds of pain relievers but nothing is taking it away. I called my dr and the receptionist said it has nothing to do with going gluten free, but it seems a little funny that they started after I went off of gluten. I've also noticed I've been really irritable also. Not sure if that has anything to do with the gluten or just because I have a constant headache. Has anyone else experienced any of these symptoms? Thank you


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I have and it was when I was experiencing severe headaches and took Ibuprofen on a regular basis. It lasted for years until I found out about salicylic acid intolerance or sensitivity. It can cause irritability and constant rebound headaches. If you are allergic to aspirin you will react to Ibuprofen.

You could have withdrawal headaches on eliminating gluten, but I would think those would have resolved by now unless you are getting cross contamination somewhere. That would certainly cause headaches too.

There are some threads on here about SA sensitivity.

Try googling Salicylic Acid sensitivity and see if any of the symptoms match yours. Fruits and vegetables also have salicylates...and if you are ingesting a lot more....could cause headaches in those who are sensitive.

I hardly ever get a headache now since I got rid of gluten and salicylates...and I no longer limit salicylates in fruits and vegetables but had to in the beginning.

Just something to think about, I'm sure you will get other answers.

domesticactivist Collaborator

What kind of headaches are they?

When we went off gluten, and especially when we went totally grain free and added probiotic foods one of the symptoms of candida die off was a bad sinus headache - front of head, face, etc. I also got ear aches with it. My partner got eczema flare-ups as well. When the yeast dies off it's got to get out of your system somehow. We trudged through it to the other side and feel much better.

I've always had migraine auras before going gluten-free, and when we first went off gluten I had the worst migraine auras of my life, as well as flare-ups of every other health problem that's ever plagued me. Now that it's been a few months (and especially after starting the GAPS diet) all those symptoms are long gone. I can not believe how healthy I've been feeling!

I think for me the main thing that caused all the flare-up, headaches, auras, etc was the sugar withdrawal. Removing so much hidden sugar from our diet was hard at first because it was an addiction. But once I got through the withdrawal and through the die-off I've felt much, much better.

WinterSong Community Regular

I'm 2 1/2 weeks gluten-free, and last week I had my first ever migraine. It lasted for two days. It started again yesterday and I finally took something for it today when I almost passed out at work. My doctor agreed that it's probably from withdrawl and said that it should go away in time...I can't wait. Hope you feel better soon, too.

aking3028 Newbie

I'm hoping they go away soon too. It's awful waking up with a headache and then lasting all day and going to bed with it still in full force. What did you take that it went away? My doctor's receptionist said it has nothing to do with it, thats when I went on here and figured I'd check on my own.

ravenwoodglass Mentor

I'm hoping they go away soon too. It's awful waking up with a headache and then lasting all day and going to bed with it still in full force. What did you take that it went away? My doctor's receptionist said it has nothing to do with it, thats when I went on here and figured I'd check on my own.

What are you typically eating? Have you deglutened your home? Have you checked all scripts and OTC drugs as well as supplements? Have you eliminated gluten from all your toiletries? I used to get horrible migraines when I was consuming gluten and thankfully they ended once I got rid of every possible source of gluten. They do return full force with even a small amount of CC which is why I asked the questions.

Junot Newbie

joint.webp

when im feeling my worst worst worst and the nausea is uncontrollable and the pain is to much and I think I just cant do this anymore, this is what saves me, no joke.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WinterSong Community Regular

I'm hoping they go away soon too. It's awful waking up with a headache and then lasting all day and going to bed with it still in full force. What did you take that it went away? My doctor's receptionist said it has nothing to do with it, thats when I went on here and figured I'd check on my own.

The first one went away after I took a dose of tylenol. Then I found out that Excedrin Migraine was on the Gluten Free Drug List, and that helped a lot with this last one.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,326
    • Most Online (within 30 mins)
      7,748

    Jaxon Reed
    Newest Member
    Jaxon Reed
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.