Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergy Testing This Week. What Should I Ask For?


ilikepie

Recommended Posts

ilikepie Apprentice

I told my doctor that I keep becoming allergic to new foods, as well as feel incredibly sick for days and days when I eat any type of sugar, unless it's a whole, fresh piece of fruit. I also can't tolerate ANY chemicals, ingested or on my skin, including non-organic food. He referred me to an allergist, who I am seeing this Tuesday.

They sent me a form in the mail to fill out, with questions like "what season are your allergies the worst?" and "Do your eyes water and does your nose run?" I think only one of the questions even applies to me.

I'm not sure what to ask for when I have my appointment. They are planning to do a skin prick test on me. If they prick me with gluten, that will effectively gluten me, correct? I don't care that they see or don't see that I have problems with my already known allergens. I feel like this test might be a complete waste of my time, but it's also something I HAVE to do in order to get another referral to someone who could potentially help me, after this doctor fails to diagnose my problems.

I would like to get the most out of this appointment if I can. Like I said, I don't know what questions to ask, or what kind of tests I could ask for or bring up might be helpful for me.

Most of the time, if I don't have a specific test in mind, the doctors just turn me away because they don't want to find out for themselves what tests could give us answers.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Evangeline Explorer

Hm, I had allergy testing for $700 and they found nothing. Meanwhile, I was sensitive (NOT ALLERGIC) to over 30 foods because of Celiac Disease.

Doctors fail to educate their patients that a mere 3% of the population has allergies. Patients usually don't need a skin prick test or RAST test to tell them whether or not they get hives, a swollen throat, sneezing, watery eyes, puffy face after eating a certain food. However, over 20% of the population has food sensitivities - which is not an allergy. Symptoms of food sensitivities can be sleepiness, depression, anxiety, diarrhea, cramps (four hours later), vomiting, mood changes or feeling worse. If you have a food sensitivity, it will not be caught by an allergy test. I used NowLEAP's MRT test ($500) and it accurately caught about 14 of my food sensitivities (yes, I have a LOT). I had no idea that I was sensitive to broccoli, kale, carrots, but once I removed those foods from my diet, I did feel better. www.NowLEAP.com

It is also very common for Celiacs to not be able to tolerate any sugar but natural sugar. This holds true for me as well and it might be due to a cross-reactivity.

I, too, am becoming allergic to new foods on a daily basis. And yes I cannot tolerate any chemicals on my skin. They seem to be coming faster and faster as if I have not solved my case of leaky gut at all. I am now having reactions to all but 5 foods (ice berg lettuce, squash, nuts (but not seeds!) and some fruit). You might want to look into the Gluten Free Society's idea that 45% of Celiacs are truly gluten sensitive, not just gliadin sensitive. Gluten is found in corn (55% by weight) and rice (5% by weight). There have been two studies revealing that corn causes intestinal damage to Celiacs just as much as wheat gluten. When I removed ALL traces of corn from my diet for one month, I was able to eat nuts again (that had been impossible for over 4 years). I have heard that other Celiacs who are grain-free can eventually eat the foods to which they were sensitive. Also, when I was eating corn and rice, my skin sensitivities were beginning to drive me insane: My own jeans caused my legs to have hives, I would get hives in the bathtub (suddenly a sensitivity to soap??), hives to socks! AHH!

If you decide to remove corn, remember that it is in everything: Citric acid, xanthan gum, ascorbic acid, vitamins and supplements, even iodized salt. If you are really desperate, you may want to try a grain-free diet for 2 months and see if your health and sensitivities improve. Best of luck :).

jenngolightly Contributor

I told my doctor that I keep becoming allergic to new foods, as well as feel incredibly sick for days and days when I eat any type of sugar, unless it's a whole, fresh piece of fruit. I also can't tolerate ANY chemicals, ingested or on my skin, including non-organic food. He referred me to an allergist, who I am seeing this Tuesday.

They sent me a form in the mail to fill out, with questions like "what season are your allergies the worst?" and "Do your eyes water and does your nose run?" I think only one of the questions even applies to me.

I'm not sure what to ask for when I have my appointment. They are planning to do a skin prick test on me. If they prick me with gluten, that will effectively gluten me, correct? I don't care that they see or don't see that I have problems with my already known allergens. I feel like this test might be a complete waste of my time, but it's also something I HAVE to do in order to get another referral to someone who could potentially help me, after this doctor fails to diagnose my problems.

I would like to get the most out of this appointment if I can. Like I said, I don't know what questions to ask, or what kind of tests I could ask for or bring up might be helpful for me.

Most of the time, if I don't have a specific test in mind, the doctors just turn me away because they don't want to find out for themselves what tests could give us answers.

My allergy testing was a complete waste of time and money. It was obvious that I was allergic to certain foods-I had very allergic responses when I ate them. The testing was surely just to support those allergies, right? Then why do them? It cost thousands of dollars!

And guess what? The skin pricks came back with all false negatives. It showed I was allergic to nothing - not even the control prick of histamine which EVERYONE is allergic to. So they did the backup blood tests and said, "Yah, well, since you showed false negatives on the skin pricks, this probably won't show anything either." Thousands of dollars later, false negatives again. I was stupid. I knew my allergies, so why did I go through those dumb tests? Maybe I'd feel differently if they had confirmed my allergies. But hell, my celiac tests all came back with false-negatives, too. Geesh, even my pregnancy test was negative and out popped a baby 8 months later. I guess my body just doesn't like tests.

If you have Celiac, tell them and they won't prick you with gluten. They aren't there to confirm your gluten issues, you're looking for other things.

Evangeline Explorer

My allergy testing was a complete waste of time and money. It was obvious that I was allergic to certain foods-I had very allergic responses when I ate them. The testing was surely just to support those allergies, right? Then why do them? It cost thousands of dollars!

And guess what? The skin pricks came back with all false negatives. It showed I was allergic to nothing - not even the control prick of histamine which EVERYONE is allergic to. So they did the backup blood tests and said, "Yah, well, since you showed false negatives on the skin pricks, this probably won't show anything either." Thousands of dollars later, false negatives again. I was stupid. I knew my allergies, so why did I go through those dumb tests? Maybe I'd feel differently if they had confirmed my allergies. But hell, my celiac tests all came back with false-negatives, too. Geesh, even my pregnancy test was negative and out popped a baby 8 months later. I guess my body just doesn't like tests.

If you have Celiac, tell them and they won't prick you with gluten. They aren't there to confirm your gluten issues, you're looking for other things.

You must be one of those people who have undetectable or absent antibodies? I've heard that 1 in 500 people are this way. You are absent of IgG or IgA or something so all tests will be negative. I forget the proper name for it - I'm sure someone on this forum was know what I'm talking about.

jenngolightly Contributor

You must be one of those people who have undetectable or absent antibodies? I've heard that 1 in 500 people are this way. You are absent of IgG or IgA or something so all tests will be negative. I forget the proper name for it - I'm sure someone on this forum was know what I'm talking about.

Interesting - I'll have to follow up on that. Thanks for the info.

Evangeline Explorer

Interesting - I'll have to follow up on that. Thanks for the info.

Actually I JUST read that absent antibodies is a one of the many symptoms of Celiac Disease, LOL.

"IgA Deficiency"

Open Original Shared Link

jenngolightly Contributor

Actually I JUST read that absent antibodies is a one of the many symptoms of Celiac Disease, LOL.

"IgA Deficiency"

Open Original Shared Link

I just dug up my old IgA and IgG tests from when I was first tested for Celiac in 2007. They caused false negatives and I never knew why, but your posts now explain it clearly. :)

My IgA level was 3 and IgG was 0. That's pretty deficient. I'm not sure if that warrants a trip to the doctor... I'm a little shaken up now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,970
    • Most Online (within 30 mins)
      7,748

    GA Peach
    Newest Member
    GA Peach
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Interesting, when I suffered for a few months with ectopics I noticed that carbohydrates would cause indigestion and bloating in my stomach, then that would lead to my heart skipping beats, and I could feel it in my throat, it was very unsettling.  My last serious bout of this was after eating a Muller Rice Pudding for breakfast.   I happened to be wearing a 48 hour halter at the time and cardiology picked it up, but they weren't worried about what they saw. There was some British doctor who'd made some videos on the Vagus nerve that I remember watching at the time which made sense of what I was experiencing, there did seem to be some sort of connection.
    • Scott Adams
      Here are summaries of research articles on celiac disease and migraines: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • Yaya
      I asked my cardiologist about stopping vitamins.  He said his tests account for all detectable vitamins from sources other than food.  I only need to stop them for a couple of days.  He has me keep records of meds and vitamins I've ingested over the past 10 days and prior and he does his calculations.   
    • jessysgems
      Reply to treats I try and eat to bring up the glucose. Sometime I get up 3 times a night and eat something. I don't think food is the issue. A lot of the food they say should help doesn't.  Many mornings my level is 59 and I feel sick, sometimes for hours. It has been recommended I go to an Endocrinologist.  
    • Scott Adams
      Welcome to the forum! This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    This article may also be helpful:
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.