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Can Celiac Be Confused With AS?


kiki2005

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kiki2005 Newbie

Hello Everyone,

I have been diagnosed with AS for about 2 years, and just last month I met a new rheumatologist who thought that the main problem could be Celiac disease. I had tested positive last year on my blood work for the sprue test, but the biopsy was negative. For AS I tested negative on the Hlab27, but some xrays show fusion. I am a little confused, I think that now since 2 weeks ago when I started a gluten free diet, the pain in my joints, which were the worst pain I can imagine got soooo much better.I don't have the inflammation anymore that I experienced in my pelvis. I could not even walk some times because of the severe pain I would get on my pelvic area. Now that I started the glute free diet, I'm able to function about a 80 percent better. Has anyone ever experienced the same thing????? I wonder if I truly have AS or maybe both autoimmune disorder. Any suggestions are greatly appreciated.

Thanks :)


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domesticactivist Collaborator

My son's most severe symptom was joint and bone pain and inflammation/fluid. He got it in his hip so bad that he had to have surgery. Turns out that eliminating gluten completely removed these symptoms.

Guest

Celiac disease interferes with the consumption of nutrients from food. human being who have celiac disease cannot tolerate gluten. Gluten is mainly found in foods and it also in medicines, vitamins, lip balms etc.

It is vary from person to person.

  • 4 weeks later...
gotme3gorgeousboys Newbie

Hi Kikki2005,

I have had RA for years and years. I when I was younger the Rheumatologist had diagnosed as probable AS, as I had slight fusion, however after having children, the fusion is gone. Anyway, I have had heaps and heaps of pain over the years, indescribable pain in my feet and hands. Have been on various NSAIDS, stomach protectants and cortisone injections. During the cooler months I usually can't walk too well in the mornings as my feet are normally sooooo full of pain, I cried many mornings! I started a gluten free diet to control my digestive system issues and it has worked so well for that. I have now (after a year of being gluten-free) noticed that I can't remember the last time I felt sore. I have a slight 'thickness'feeling in my problem joints, eg feet, and little finger, but none in my knees or anywhere else and definately no pain!! I remember last year after I'd been gluten-free for just a few months (but still cooking with gluten-free so had lots cross contamination) I still had pain in my feet, but this year there's nothing!! I can only assume that it's from going gluten-free. I haven't been pain free since before I was diagnosed with arthritis at 16!! I'm 28 now, so that's a lot of time to be sore!! I don't think the two can get confused, however I think they go hand in hand. I'm not celiac as tests all came back negative but non-celiac gluten intolerant. I would never never never go back onto a gluten diet as this has helped me with all the pain in my body. I feel like a 28 year old, not a 60 year old, like I have since I was 16!!! :lol:

ravenwoodglass Mentor

If your blood test was positive you have celiac. It sounds like the diet is helping you a great deal so keep with it. I only expected my gut issues to go away gluten free and was shocked when my arthritis went away also. Glad your having such good improvement and I hope it continues.

mushroom Proficient

I first became aware of the association between diet and AS when our builder refused to eat any gluten, and told me that AS was the reason. I went gluten free hoping it would help my RA. Unluckily for me, it didn't, but it sure helped my digestive symptoms :D

maximoo Enthusiast

Glad you are improving but whats SA?


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mushroom Proficient

It's AS - ankylosing spondlitis - a rheumatoid-type arthritis of the spine

maximoo Enthusiast

ok thanks

AS also stands for Asperger's Syndrome

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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