Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free, But Now Have Tingling In Feet


xxkristin

Recommended Posts

xxkristin Apprentice

I've been gluten free since the beginning of March. Recently, I've started having some tingling in one foot. I don't know if this has just started after going off gluten or if it was happening before, as I never really paid attention to it until recently, after having seen that this is a symptom of celiac. I had my B12 levels checked and I'm now taking B12 vitamins, as well as vitamin D and magnesium. I've read that taking B12 supplements might help stop the tingling. Does anyone know if this is true? Otherwise, will it just go away on its own after being gluten free for a while longer?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



The Fluffy Assassin Enthusiast

I've been gluten free since the beginning of March. Recently, I've started having some tingling in one foot. I don't know if this has just started after going off gluten or if it was happening before, as I never really paid attention to it until recently, after having seen that this is a symptom of celiac. I had my B12 levels checked and I'm now taking B12 vitamins, as well as vitamin D and magnesium. I've read that taking B12 supplements might help stop the tingling. Does anyone know if this is true? Otherwise, will it just go away on its own after being gluten free for a while longer?

In my gluten-eating days, the tingling wandered and might have been found anywhere. It wasn't just confined to the feet. Sometimes my head, sometimes my chest right over my heart. (As I thought the problem was poor circulation, this was particularly alarming.) Speaking only for myself, I find that tingling in hands and feet is more likely a result of allergies and incipient asthma. I amped up my squash and apple consumption with good results. It might be worth a try.

AgainstTheGrainIdaho Rookie

Also make sure your B12 is a kind that dissolves in the mouth because the stomach acids will kill the B12 and you'll keep taking huge doses without it ever absorbing into your body. Just found that out from the Dr.

xxkristin Apprentice

Good to know. I just bought Jamieson vitamins because those are gluten free. I'm assuming those are ones that dissolve in the stomach. Is there a certain kind that you know of that dissolves in the mouth?

ravenwoodglass Mentor

Good to know. I just bought Jamieson vitamins because those are gluten free. I'm assuming those are ones that dissolve in the stomach. Is there a certain kind that you know of that dissolves in the mouth?

Look for B12 tablets that are sublingual. They dissolve under the tongue or between the cheek and gums and go directly into the bloodstream.

You can find Sublingual B12 in most pharmacey or grocery stores. There are a lot of gluten free vitamins out there but do be sure to read the entire label as barley and wheat grass can be in some but they will still be able to put a gluten free label on them.

lynnelise Apprentice

I had terrible trouble with tingly spots in my legs and feet. I took B12 shots for awhile and then switched to the sublinguals. I have no issues now that my levels are high! Good luck!

chrissygirl0668 Rookie

I was just diagnosed with the celiac sprue as well as the herm/dermititis. I am having problem with my left foot, the toes. Started out tingly feeling, thought it was my sneakers or uggs. Went out bought new sneakers, etc. still having same problem; however, the tingly feeling now has gone and there is pain. I am seeing a podiatrist for second time tomorrow. I am also seeing another specialist on May 20th as the dapsone made me very sick. I am also getting the watery blisters on the bottom of my feet, but that I can tolerate. I bought everything that was gluten free, and thought I was safe; still wasn't feeling well, and noticed on all gluten-free products I bought from a gluten-free supermarket has soy. Get your feet checked out. IT's important.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I was just diagnosed with the celiac sprue as well as the herm/dermititis. I am having problem with my left foot, the toes. Started out tingly feeling, thought it was my sneakers or uggs. Went out bought new sneakers, etc. still having same problem; however, the tingly feeling now has gone and there is pain. I am seeing a podiatrist for second time tomorrow. I am also seeing another specialist on May 20th as the dapsone made me very sick. I am also getting the watery blisters on the bottom of my feet, but that I can tolerate. I bought everything that was gluten free, and thought I was safe; still wasn't feeling well, and noticed on all gluten-free products I bought from a gluten-free supermarket has soy. Get your feet checked out. IT's important.

Have you eliminated iodine from your supplements and foods? If you have DH that is important to do until the lesions have been gone for a while. Since you have DH make sure to eliminate gluten from toiletries as well. Since celiac can effect the nervous system do try some sublingual B12 to help the nerves heal.

OneStarTattoo Newbie

Thank you for this information. I had the tingling really bad, hands, feet, chest, face etc. I went to the ER one night thinking I was having a heart atack at 30! That was 4 years ago and I was just diagnosed. I wish more doctors knew to check for celiac disease when a patient presents tingling hands and feet. Years of needless suffering could be eliminated. I was sent home with a "We have no idea what's wrong with you, good luck."

I'm going to have my B12 checked, thank you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748

    Jean Kemling
    Newest Member
    Jean Kemling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...