Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee Causing Gluten Like Symptoms

GlutenGladi8or

Recommended Posts

GlutenGladi8or Apprentice
GlutenGladi8or
Posted

Anybody else have problems with coffee? Causing diuretic type issues?

I had some issues this past week, that seemed like the old gluten days and I have a sneaking suspicion that it might be coffee.

I have since cut out the coffee and am sticking with just green tea.

Anybody else have these issue?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Poppi Enthusiast
Poppi
Posted

Yup. I cut out coffee at the same time as gluten and have since found that it doesn't agree with me. Stomach cramps, slight muscle ache and headache within the hour. I just drink tea now. I do miss my coffee though.

sa1937 Community Regular
sa1937
Posted

I drink black coffee without any problem. That would be far harder for me to give up than gluten.

Poppi Enthusiast
Poppi
Posted

I only drink the Starbucks Via sticks though so I think I'll try some other coffee in case there is some contamination in the Via.

GlutenGladi8or Apprentice
GlutenGladi8or
Posted
  • Author

I never had an issue with coffee until recently. In fact, I was a swimmer in high school and I used to drink it before morning practice when I was only 15 or so.

And, I have been drinking the Via packages as well.

Looks like is sayonara coffee for awhile. No big deal. I have a 100 pack of green tea in my office and at home.

Poppi Enthusiast
Poppi
Posted

I never had an issue with coffee until recently. In fact, I was a swimmer in high school and I used to drink it before morning practice when I was only 15 or so.

And, I have been drinking the Via packages as well.

Looks like is sayonara coffee for awhile. No big deal. I have a 100 pack of green tea in my office and at home.

Interesting! I wonder if we are both reacting to some contamination in the Via packets. Maybe I'll try a double double from the Tim Horton's across the street tomorrow and see how that affects me.

GlutenGladi8or Apprentice
GlutenGladi8or
Posted
  • Author

Interesting! I wonder if we are both reacting to some contamination in the Via packets. Maybe I'll try a double double from the Tim Horton's across the street tomorrow and see how that affects me.

Hmmm I never thought about it being from the via pack. And, I've been traveling extensively in the last week. WHEN I travel, I take a dozen via packets with me. And, I've been on the road for the last week.

Yesterday was a really bad day (as was the last week). I had my last Via at approximately 11am yesterday morning. This morning, was a little bad. But, I'm fine today.

Interesting that it could be the Via.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Poppi Enthusiast
Poppi
Posted

Hmmm I never thought about it being from the via pack. And, I've been traveling extensively in the last week. WHEN I travel, I take a dozen via packets with me. And, I've been on the road for the last week.

Yesterday was a really bad day (as was the last week). I had my last Via at approximately 11am yesterday morning. This morning, was a little bad. But, I'm fine today.

Interesting that it could be the Via.

Which kind do you drink? Last week I had the Caramel and was fine but this week I bought the Italian Roast and it's been bothering me.

GlutenGladi8or Apprentice
GlutenGladi8or
Posted
  • Author

Which kind do you drink? Last week I had the Caramel and was fine but this week I bought the Italian Roast and it's been bothering me.

I don't do any flavored. It's been Columbian this whole past week.

ravenwoodglass Mentor
ravenwoodglass
Posted

Interesting! I wonder if we are both reacting to some contamination in the Via packets. Maybe I'll try a double double from the Tim Horton's across the street tomorrow and see how that affects me.

It would be a better idea to try making coffee at home. That way you eliminate any possible issues with cross contamination.

cassP Contributor
cassP
Posted

instant coffee always makes me more nauseaous than reg. brewed coffee... i just assumed it was an acidic problem rather than a cc issue.. but i could be wrong.

coffee can be irritating for some- because of the acidity and the tannins. if i just have 1 big cup with some kind of creamer im okay... but if i overdo it- i will get nausea & diarreaha.. same thing with tea- if i overdo it. tea's a lot less harsh than coffee- but one night i had like 4 cups with friends- and i had intestinal sounds ALL NIGHT

and yes- im also real sensitive bladder wise- so i try to keep my coffee dose down.. and i try to mix decaf with caf

oh- ps- at home, when i brew, i top the coffee with salt- it's supposed to cut the acidity. i also never could drink french press as it was WAY TOO ACIDIC- and would make me sick to my stomach, but my bff made it last time, and it was delish. ??

Cypressmyst Explorer
Cypressmyst
Posted

Could be a cross reactivity issue. I have it with Chocolate and I know Coffee is also common. Cross reactivity sets off some of the gluten symptoms but there is hope that if you heal your leaky gut you can have these things again without issue.

I hope so. I miss my chocolate. :(

dilettantesteph Collaborator
dilettantesteph
Posted

I am sensitive to very low levels of gluten and have problems with coffee. The way I solved it was to buy organic coffee beans and then do a 3 times wash cycle with soap, rinse well, grind and make coffee. No reaction!

I don't know if you are very sensitive like me, or if you just have problems with coffee, but maybe it's worth a try.

GlutenGladi8or Apprentice
GlutenGladi8or
Posted
  • Author

I'm happy to report that I've been on only green tea for 48 hours and all of the gluten like symptoms have subsided. Well, okay..... maybe two false alarm dashes to the bathroom, but we've all been there haven't we?

It's just strange that I've been a coffee drinker my whole life and now this happens. I won't be drinking coffee and I make that statement with 100% Certain-"tea".

Poppi Enthusiast
Poppi
Posted

So after about a week with no coffee I made a Caramel Via when my sister in law came by this afternoon. Half way through the cup the headache and muscle aches started. Still not sure if it's the Via or coffee in general but I think I'll be going back to my Rooibos tea from now on.

cassP Contributor
cassP
Posted

So after about a week with no coffee I made a Caramel Via when my sister in law came by this afternoon. Half way through the cup the headache and muscle aches started. Still not sure if it's the Via or coffee in general but I think I'll be going back to my Rooibos tea from now on.

it might not be ALL via.. ive always heard from the gluten free community- to stay away from FLAVORED coffee.. possible gluten contamination... so maybe it's just the caramel via and not regular via. ??

but of course- Rooibos is probably healthier. altho, i am NOT a pro in knowing which tea bags dont have gluten contamination.?? ive only had publix decaf black tea- and it's been fine.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
    2. par18
      - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free...
    3. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    4. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748
    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      IBS-D vs Celiac

      By par18 · Posted

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.