Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Psyllium Allergy

sherrylynn

  

10 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

sherrylynn Contributor
sherrylynn
Posted

Me and my Grandmother are allergic to Psyllium. So, I just wondered how many others are allergic to psyllium or flax and wondered if it could be connected.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sa1937 Community Regular
sa1937
Posted

I don't have any problem with either psyllium or flax. Do you think it could just be too much fiber instead of an actual allergy?

sherrylynn Contributor
sherrylynn
Posted
  • Author

I don't have any problem with either psyllium or flax. Do you think it could just be too much fiber instead of an actual allergy?

No, it is a definite allergy. I am an LPN and have to give Metamucil to my patients alot, when ever I give it you have to mix it up for them, and when I do if I breath any of it which is going to happen no matter how careful I am, I end up wheezing itching and my throat closes up. Dr. Wright told me since I have that kind of a reaction I should never take Metamucil because I will end up having an anaphylactic reaction.

My grandmother said it makes her throat close up too.

The reason I wondered about Psyllium is because another poster stated she cannot tolerate it either. She wondered if there was a connection.

ravenwoodglass Mentor
ravenwoodglass
Posted

I said yes but I think it is more of an intolerance for me than an allergy. I eat a lot of fiber rich foods that don't give me an issue so in my case I don't think it is the fiber content. My body just doesn't like either of them.

Mari Contributor
Mari
Posted

I answered yes because I don't tolerate either. Can't remember the problems I had with psyllium it was so long ago but took flax seed meal for a year or so and since I stopped don't get swollen throat and difficulty swallowing only rarely so it might be an allergy.

  • 10 months later...
RiFi Newbie
RiFi
Posted

I too have been wondering if psyllium allergy is related to celiac disease. At this point my celiac status is unknown (in the process of testing now) but about 5 years ago I developed a severe allergy to psyllium. I had chronic urticaria for over a year and it was only be sheer fluke that I finally worked out psyllium was the cause. Since then I have gone on to develop an allergy to oats (which I happily ate for decades without a problem) and then quinoa, which I began using as a substitute for the oats. The oats gave me incredibly painful mouth ulcers, not the common garden-variety ones. But the quinoa allergy went from causing urticaria to throat swelling. Reticent to give it up, I tested quinoa several times and each time the allergy got worse and the throat swelling more severe. Now flax seeds bring on urticaria as well.

Apart from rhinitis, I've pretty much been allergy free my whole with no obvious food sensitivities, but my allergy to psyllium seems to have precipitated a cascading series of new allergies :(

There's a theory that a subset of people with celiac disease have a reaction to oats, not because of the often suspected cross-contamination with gluten, but because of a cross-reactivity between gliadin and avenin (the protein in oats).

  • 5 months later...
wheatweary Newbie
wheatweary
Posted

I don't know about celiac yet, might just be gluten sensitive--just got blood drawn for celiac test the other day, but I'm definitely allergic to flax--it makes me throw up and I got skin prick tested by the allergist and now carry an epipen for it. I also have hay fever and allergy to various other inhaled things (dust, animal dander, mold), latex contact sensitivity, and oral allergy syndrome. One does wonder about the connection between theses things.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748
    Jamie0230
    Newest Member
    Jamie0230
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...