Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had My Colonoscopy Thursday.


cahill

Recommended Posts

cahill Collaborator

Last Thursday I had a colonoscopy.

I am 54, have celiacs and have been having some symptoms that lead my doc to believe a colonscopy was in order.

Actually my doc has been after me to have one for the last couple of years ,, something about being over 50 <_< . I always have come up with excuses to put it off.

Well my GI doc was not so easy to put off :P

So I agreed to have one :huh:

From the time I agreed to have it until it was done I did nothing but whine and worry about having it.

I even posted in these fourms whining about the prep and my worrys.

Everyone was patient and informative. I was still nervous and embarrassed.

So ,I do the prep ( not nearly as bad as I expected)

I go in Thursday and staff was wonderful,they were patient ,professional and listened to me whine and worry :rolleyes: and said " it will be OK"

And it was, they gave me some meds, I dont remember anything of the procedure, got up ( after the procedure :P ) and walk to the car and went home. Had lunch and took a nap B)

After spending the last couple of years putting it off ,then when I finally agree to have one,I wasted 2 weeks whining and worrying over something that turned out to be simpler then many other procedures I have had.

A simple procedure that potentially could have saved my life.

I had my colonoscopy last Thursday. Have you had yours??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

After spending the last couple of years putting it off ,then when I finally agree to have one,I wasted 2 weeks whining and worrying over something that turned out to be simpler then many other procedures I have had.

:lol: :lol: :lol: So true for many things in life. It's generous of you to be so honest about your actions so the rest of us can't put up any excuses.

Diane-in-FL Explorer

Yes, I have had mine, but, for some of us, the prep is absolutely awful. :( I guess it depends on your doctor and what method he or she uses. The procedure itself was a piece of cake and they didn't find anything, so I'm glad for that. But I will be VERY reluctant to ever have another one.

cahill Collaborator

:lol: :lol: :lol: So true for many things in life. It's generous of you to be so honest about your actions so the rest of us can't put up any excuses.

sooooo ya had one :P ??

cahill Collaborator

Yes, I have had mine, but, for some of us, the prep is absolutely awful. :( I guess it depends on your doctor and what method he or she uses. The procedure itself was a piece of cake and they didn't find anything, so I'm glad for that. But I will be VERY reluctant to ever have another one.

I sorry the prep was awful for you Diane,,, can I ask what kind of prep your doc had you do??

Jestgar Rising Star

sooooo ya had one :P ??

:lol: :lol: I have a few more years to fuss and whine before I'm expected to go under the "scope". :P

Diane-in-FL Explorer

I sorry the prep was awful for you Diane,,, can I ask what kind of prep your doc had you do??

I had to take enormous pills. 4 at a time every 15 minutes until I had taken 12. First round was at 11am, then again at 5pm. They started to work before I even finished the first dose and I literally had to sit in a chair by the bathroom door all day and well into the evening. It was brutal. I drank lots and lots of liquid but still got dehydrated. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

I had to take enormous pills. 4 at a time every 15 minutes until I had taken 12. First round was at 11am, then again at 5pm. They started to work before I even finished the first dose and I literally had to sit in a chair by the bathroom door all day and well into the evening. It was brutal. I drank lots and lots of liquid but still got dehydrated. :(

WOW, I would be reluctant to do that too :(

Mine was 1 pill then I mixed a powder into 2 liters of water and had to drink 8 oz every 15 to 30 min until it was gone. I started the prep at 3;30 and was done by 9;30 went to bed and got up once during the night and one more time in the morning and I was done.

WOW I guess what the prep is makes a BIG difference

sa1937 Community Regular

I had my colonoscopy last Thursday. Have you had yours??

Yes, and I whined and worried, too. The prep was nasty but thankfully I wasn't nauseated and I managed to drink every last drop. The procedure itself was easy except I was dehydrated and they had a hard time with the IV.

But overall, I was more concerned when I had my endoscopy as I'm not used to invasive procedures.

luvs2eat Collaborator

I had mine at age 48, when I went to a GI doc for what turned out to be celiac disease. He ordered a bunch of bloodwork and said that 48 was close enough to 50, so a screening colonoscopy was in order. He then warned me that he wasn't a doc to use tons of anesthesia. I'd seen colonoscopies and endoscopies in nursing school many years before (where they gave you a valium and shoved a huge scope tube down your throat and kept saying, "Swallow!! Swallow!!" Yikes!!) so I wasn't worried.

I had a Go-Lightly prep... a gallon of soapy water to drink till "things" ran clear. I only had to drink about 2/3 of it. The procedure itself was fascinating. I got to watch the whole thing and ask lots of questions.

It was after the procedure that my doc said to me... "I have good news and bad news." I opted for the good news first. He said, "I know how to stop your unrelenting diarrhea." I asked for the bad news and he told me I could never eat wheat, rye, barley, or sometimes oats again."

The procedure itself was such a NOTHING that my PCP asked me to please tell all my friends so they wouldn't be so worried when it was their turn!

sreese68 Enthusiast

WOW, I would be reluctant to do that too :(

Mine was 1 pill then I mixed a powder into 2 liters of water and had to drink 8 oz every 15 to 30 min until it was gone. I started the prep at 3;30 and was done by 9;30 went to bed and got up once during the night and one more time in the morning and I was done.

WOW I guess what the prep is makes a BIG difference

I had this prep (the liquid) and my reaction was as brutal as the above poster's. It was awful. Took me two days to recover; however, I don't react well to anesthesia, so that doesn't help. Saying that, I'll do it again when I turn 50. It really is an important screening tool.

Gemini Experienced

I had to take enormous pills. 4 at a time every 15 minutes until I had taken 12. First round was at 11am, then again at 5pm. They started to work before I even finished the first dose and I literally had to sit in a chair by the bathroom door all day and well into the evening. It was brutal. I drank lots and lots of liquid but still got dehydrated. :(

You never know how awful it may be until you go through it so it isn't something I intend to do anytime soon. I know many who complained they became horribly dehydrated. So sorry it was a bad experience for you. Colonoscopies are a valuable tool for screening but I think they pressure people too much and not everyone needs to have one just because they have a 50th birthday. I admire the bravery of those who do!

Roda Rising Star

Yep I had a colonoscopy two months after my celiac diagnosis in 2008. I was 35 so I really whined and worried. Doc removed a polyp and after he told me that the pathology came back as benign, I don't have to have another one for 10 years. Still, that puts another one at 45. I'll whine again because that will still be two colonoscopies before age 50!! :o:P:lol:

cap6 Enthusiast

I've had 2 and both were nasty. The preps were no big deal but both times I woke up during the procedure and compare the pain to childbirth. Dr says I have a badly twisted colon so that was part of the intense pain. Hopefully it will be a looong time till the next. I hope.....

Cattknap Rookie

I had my first colonoscopy (actually I had both upper and lower GI) and was amazed how easy it was. The prep is not fun but certainly it is only short term...the procedure itself was a piece of cake...sorry I put it off for so long.

ravenwoodglass Mentor

I've had 2 and both were nasty. The preps were no big deal but both times I woke up during the procedure and compare the pain to childbirth. Dr says I have a badly twisted colon so that was part of the intense pain. Hopefully it will be a looong time till the next. I hope.....

I have had 3 and during the second one I had the same experience. My bowel wasn't twisted with the first and that was an easy experience. The second one was after the horrible reaction to the second gluten challenge and I had the same experience you did. That doctor, the same who ordered the second challenge, said they would do it again but with a general anesthesia in the hospital with an anesthesiologist rather than in the outpatient facility. I then decided to change GI doctors and my new doctor was told of the experience I had. He did a double scope with an anesthesiologist present and the procedure went smoothly. If you have the procedure done again tell them what happened and ask for a general anesthesia and you should have no problems.

sa1937 Community Regular

I guess I was fortunate. I had an anesthesiologist for both my endoscopy and colonoscopy even though I was not under general anesthesia. I can't imagine having either one any other way.

Roda Rising Star

I guess I was fortunate. I had an anesthesiologist for both my endoscopy and colonoscopy even though I was not under general anesthesia. I can't imagine having either one any other way.

I had a CRNA (Nurse Anesthetist) for all of my procedures and they gave me diprivan(Propofol) IV. At work we jokingly refer to it as milk of amnesia. I don't remember a blasted thing. During my first EGD the doc said I kept waking and was swinging at people. I don't have any recollection of it at all. When it came to the colonoscopy and my second EGD they must have given me more because I was groggy a lot longer afterwards and no reports that I was swinging at anyone. I still didn't remember anything which is good!

sa1937 Community Regular

I had a CRNA (Nurse Anesthetist) for all of my procedures and they gave me diprivan(Propofol) IV. At work we jokingly refer to it as milk of amnesia. I don't remember a blasted thing. During my first EGD the doc said I kept waking and was swinging at people. I don't have any recollection of it at all. When it came to the colonoscopy and my second EGD they must have given me more because I was groggy a lot longer afterwards and no reports that I was swinging at anyone. I still didn't remember anything which is good!

I also had diprivan and thankfully it worked beautifully. I don't *think* I came out swinging but I was really loopy after the endoscopy but not so much after the colonoscopy. On each follow-up, my GI asked me if I felt anything and I didn't. And I don't remember a thing either...now that's all good!

cahill Collaborator

I also had diprivan and thankfully it worked beautifully. I don't *think* I came out swinging but I was really loopy after the endoscopy but not so much after the colonoscopy. On each follow-up, my GI asked me if I felt anything and I didn't. And I don't remember a thing either...now that's all good!

I dont remember any thing of the procedure either.

I remember being in the procedure room,telling the nurse I "felt funny" she said it was the meds they were giving me.

The next thing I remember I was in recovery with the Doc talking to me telling me how things went. I vaguely remembered what he said and had to ask the nurse to read me the report the next day when she call check in on me.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748

    tiffanygosci
    Newest Member
    tiffanygosci
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.