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Crappy Gi Visit


CruiseWriter

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CruiseWriter Apprentice

Went to GI for follow-up after colonoscopy/upper endoscopy in March. Follow-up lasted all of 5 minutes,if that. He said colonoscopy was normal,endoscopy showed mild erosion,but that's common,so he wasn't too concerned. Said biopsies were all normal,no Celiac or gluten sensitivity. I'd told him I'd gone gluten-free and felt better and he said if I wanted to stay on diet I could,but I don't need to. I'll need acid reflux meds forever,he said. Follow-up in a year's time. The end.


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ravenwoodglass Mentor

Don't be surprised if the 'acid reflux' clears up gluten free. I was told that also and was given a handful of meds to try and told to call and let him know what worked best and he would give me a script. I put the samples in a drawer and although I did need to use Pepto Bismal a few times within a short time gluten free the stomach issues were a thing of the past.

If the diet is working for you stick with it.

Takala Enthusiast

More like The Beginning.

Roda Rising Star

I had horrible acid reflux before being diagnosed. I REFUSED medicine and my pcp at the time thought I was stupid. I didn't want a bandaid, I wanted to know why I suddenly had reflux. I did rely on tums for the next 2 years after when needed. When I went gluten free that was my first symptom that cleard up!! Go with your gut instinct. :P

L Ceezy Newbie

Went to GI for follow-up after colonoscopy/upper endoscopy in March. Follow-up lasted all of 5 minutes,if that. He said colonoscopy was normal,endoscopy showed mild erosion,but that's common,so he wasn't too concerned. Said biopsies were all normal,no Celiac or gluten sensitivity. I'd told him I'd gone gluten-free and felt better and he said if I wanted to stay on diet I could,but I don't need to. I'll need acid reflux meds forever,he said. Follow-up in a year's time. The end.

Grrr!! Perhaps we went to the same doc! Completely pisses me off. I'm having an attack right now so I can't type too much, but same thing happened to me and worse. Luckily I have a great GP who told me that ya that guy is a jerk, and he only took a few biopsies and it doesn't mean anything (my GI pushed a colonoscopy on me instead of the endoscopy I came in asking for, so he could make more money). I don't understand how they look at one or two things and then tell us we're not sick when we know we are sick! I was already gluten free for many months when I even went to my doctor to tell him this is what was going on, and there was no way I was going to start eating it again just to get tested.

Acid-reflux meds don't do anything. And mild erosion is common?? It's not meaningless, he's crazy. Like, it's common in people complaining of stomach issues I bet... cause they have a problem! Def don't listen to this guy, his ego is out of control. He thinks he knows everything and you can't possibly know anything about your own body because you did't go to school for it. Do what you know is right, regardless of what any tests say because those are updated and discovered all the time!

Marilyn R Community Regular

Went to GI for follow-up after colonoscopy/upper endoscopy in March. Follow-up lasted all of 5 minutes,if that. He said colonoscopy was normal,endoscopy showed mild erosion,but that's common,so he wasn't too concerned. Said biopsies were all normal,no Celiac or gluten sensitivity. I'd told him I'd gone gluten-free and felt better and he said if I wanted to stay on diet I could,but I don't need to. I'll need acid reflux meds forever,he said. Follow-up in a year's time. The end.

This is going to sound like a fairy tale but I swear it is true. I chose a gastro in my smallish town after I went gluten-free. He spent a complete hour with me on my initial visit, and I was seen within five minutes of my appointment time.

It took me a few visits before I would agree to an endoscopy, and he scheduled it himself, and gave me the instructions for prep himself. (I was a hard sale, because I knew it would turn out negative because I'd been gluten-free too long.)

After the procedure, I received a call from his office that I needed to schedule an office visit. That kind of ticked me off, because I thought that the results should be reported with a phone call, and my crappy insurance has a $50 co-pay for specialists.

I showed up for my appointment with an attitude. Dr. Ngo reviewed each and every symptom I described on my initial office visit. (15 plus or minus, including GERD). I told him that every symptom was better. Each symptom was questioned one by one.

Then he said "Your biopsy was negative, even under the microscope. I cannot diagnose you with celiac disease, but I highly recommend that you continue what you are doing."

Then he told me there would be no charge for my visit because it could have been handled with a phone call. He wanted to make sure I understood, so he had me come in. I offered to at least give them my co-pay, and they refused.

I currently have no current gastro problems. I'll still see him once a year because he's so nice, and I'll always be indebted to him when I look at the faces of doctors who ask me if I've been diagnosed and then dismiss that I have a gluten intolerance or inconclusive results from testing. Dr. Ngo gets it. And he understands that those of us with inconclusive test results need to understand.

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    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
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      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
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