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Partner May Have celiac disease?


rgarton

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rgarton Contributor

Okay, I got diagnosed with celiac disease in January, just after me and my partner moved in together. He was hugely supportive and we brought all new cooking equipment and he went gluten-free with me. He didn't have any withdrawals, and said he felt good, better than he had done in a while in fact.

So then he went out with his work friends to Pizza Express, enough said, he came back and his stomach was huge, looked 3 months pregnant! My partner is very slim normally! And he was so uncomfortable, i massaged his stomach for nearly half an hour until he fell asleep, he had bad dreams that night. The next day he was constipated but then suffered loose stools later on (sorry tmi!) Again he had pizza a few weeks later, and had exactly the same reaction. Now last weekend for no seeming reason he had D for nearly two days, not uncomfortable just tender abdomen, no fever or anything else, he said he felt absolutely fine otherwise... I found out he ate normal bread at his lunchtime. Is it me or is this more than enough to think he probably has at least an intolerance?

Oh and for males out there, did you notice any E.D with gluten? He is 33 and i am 21 (don't say anything please i love him dearly and age really doesn't matter to me) and he said he had never been able to have more than one orgasm a day, even with himself. Then when we both went gluten free he can get it up and stay up about 4-5 times a day, he is over the moon to say the least but can this be to do with being gluten free too? And when he ate gluten he couldn't really get it up or stay up for a couple of days.

I'd love any feedback or experiences. Thanks.


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kareng Grand Master

You two may be a match made in heaven! He does sound like he might have Celiac, too.

I'm a girl so I haven't exeprienced the ED. I have seen it posted on here several times that that improves with gluten free. Use the google search in the top right corner & see what you find.

It might be a big age difference for some people. I think its more being at the same stage in life. Many men don't grow up as fast as women.

Good luck.

RollingAlong Explorer

Is he willing to see a doctor?

There have been some threads on ED, but they can be a bit hard to search for. Try E.D., testosterone, viagra and sex for starters.

My husband's ED resolved with these things - gluten free, casein free, soy free and the Paleo diet.

The soy was important because he had a lot of tests done, including a biopsy, and none of the standard celiac tests were positive. He also used the tests from Enterolab and they were positive. He realized that were not based on published research; he just used them to convince himself to try these big diet changes. His main doc is supportive of the diet change.

Other tests - he did have low testosterone (this turned out to be temporary) and mild osteopenia. The replacement testosterone gel (Androgel) was soy based and he improved when he quit using it. His testosterone was fine after a few months of the diet change. He also saw a big (yeah, I mean it literally) improvement in the ED shortly after giving up casein.

Testosterone is important for bone health and blood sugar (diabetes) as well as the ED. I would advise him to get a thorough checkup and to investigate the possibility of celiac. And not to overlook the possibility that the tests are imperfect and they don't yet have a good idea how to check for non-celiac-gluten sensitivity. It is possible he only only needs to change his diet. It is also possible that he needs to keep an eye on his blood sugar and his vitamin D and K (for his bones).

You can start reading about the Paleo diet (and search for ED threads) here: Open Original Shared Link

I will be happy to answer any questions you might have.

rgarton Contributor

Is he willing to see a doctor?

There have been some threads on ED, but they can be a bit hard to search for. Try E.D., testosterone, viagra and sex for starters.

My husband's ED resolved with these things - gluten free, casein free, soy free and the Paleo diet.

The soy was important because he had a lot of tests done, including a biopsy, and none of the standard celiac tests were positive. He also used the tests from Enterolab and they were positive. He realized that were not based on published research; he just used them to convince himself to try these big diet changes. His main doc is supportive of the diet change.

Other tests - he did have low testosterone (this turned out to be temporary) and mild osteopenia. The replacement testosterone gel (Androgel) was soy based and he improved when he quit using it. His testosterone was fine after a few months of the diet change. He also saw a big (yeah, I mean it literally) improvement in the ED shortly after giving up casein.

Testosterone is important for bone health and blood sugar (diabetes) as well as the ED. I would advise him to get a thorough checkup and to investigate the possibility of celiac. And not to overlook the possibility that the tests are imperfect and they don't yet have a good idea how to check for non-celiac-gluten sensitivity. It is possible he only only needs to change his diet. It is also possible that he needs to keep an eye on his blood sugar and his vitamin D and K (for his bones).

You can start reading about the Paleo diet (and search for ED threads) here: Open Original Shared Link

I will be happy to answer any questions you might have.

I think he'll go and see a doctor if i show him this, i also spoke to my doctor today and she agrees that it could definatly have a part to play! Thanks for all the info, very much appreciated! x

  • 3 weeks later...
mybellemichelle Newbie

He could have celiac. I've also heard of people who gave up gluten (not for medical reasons) and then after a while, would feel sick after eating gluten again.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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