Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Gluten Intolerance? Also, Is Enterolabs A Good Idea?


kaygato

Recommended Posts

kaygato Explorer

I'm an 18 year old female who just finished her first year of college. Needlesss to say, things didn't go so well academically because of many reasons. Part of my issues in academics/life are caused by a lack of motivation, and ADD/mild depression that may be behind it. I'm going to take classes at my local community college for a semester of two to bring my GPA up, and am now really interested in dietetics and how food can affect behavior.

Here are my possible symptoms of gluten intolerance:

1. overweight as a kid...craved sugar and carbs

2. slow and sluggish, teachers wanted me tested for ADD

3. moody as a child

4. worn out by lower levels of stress than most people

5. need 9-12 hours of sleep

6. have no motivation to do anything

7. foggy brain...take forever to do things when I get started

8. slight cold and heat intolerance

9. irritable moods since 13-14

10. no sex drive/lack of sensitivity down there (since early teens)

I've been pretty burned out these last few years. I recently gave up coffee and now I feel even more exhausted, but I think coffee has been making me worse so it's probably good I gave it up.

I'm also getting testing done for my thyroid, because some of my symptoms overlap with thyroid issues and I want to know if there is anything autoimmune going on there.

So...should I try a gluten free diet? I saw some mentions of Enterolabs on this forum and wondered if that was a reputable place for testing. I'd almost prefer that method than having to "gluten up" for the blood test done by a doctor. Also, does enterolabs test for other food allergies? I suspect I could have other food intolerances going on and it may not be gluten.

Any advice would be appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CruiseWriter Apprentice

I would say you more than likely have a thyroid problem and should get your levels checked ASAP. Don't know about the gluten intolerance issue,but it sounds like thyroid problems to me....I've been on thyroid meds for 3 years now and zoomed from a size 10 to a 20-22. I had problems in school,too,and at 37,still struggling to finish college. I think you will start to feel better once you're on thyroid meds and while I can't say for sure you have thyoid problems,you have a lot of hypo symptoms going on.

Try the gluten-free diet and see if you feel better;I started the diet a month ago,although my GI is useless and can't diagnose me. I have not seen a huge difference,except some of the bloating is gone.

I'm an 18 year old female who just finished her first year of college. Needlesss to say, things didn't go so well academically because of many reasons. Part of my issues in academics/life are caused by a lack of motivation, and ADD/mild depression that may be behind it. I'm going to take classes at my local community college for a semester of two to bring my GPA up, and am now really interested in dietetics and how food can affect behavior.

Here are my possible symptoms of gluten intolerance:

1. overweight as a kid...craved sugar and carbs

2. slow and sluggish, teachers wanted me tested for ADD

3. moody as a child

4. worn out by lower levels of stress than most people

5. need 9-12 hours of sleep

6. have no motivation to do anything

7. foggy brain...take forever to do things when I get started

8. slight cold and heat intolerance

9. irritable moods since 13-14

10. no sex drive/lack of sensitivity down there (since early teens)

I've been pretty burned out these last few years. I recently gave up coffee and now I feel even more exhausted, but I think coffee has been making me worse so it's probably good I gave it up.

I'm also getting testing done for my thyroid, because some of my symptoms overlap with thyroid issues and I want to know if there is anything autoimmune going on there.

So...should I try a gluten free diet? I saw some mentions of Enterolabs on this forum and wondered if that was a reputable place for testing. I'd almost prefer that method than having to "gluten up" for the blood test done by a doctor. Also, does enterolabs test for other food allergies? I suspect I could have other food intolerances going on and it may not be gluten.

Any advice would be appreciated!

GlutenFreeManna Rising Star

I'm an 18 year old female who just finished her first year of college. Needlesss to say, things didn't go so well academically because of many reasons. Part of my issues in academics/life are caused by a lack of motivation, and ADD/mild depression that may be behind it. I'm going to take classes at my local community college for a semester of two to bring my GPA up, and am now really interested in dietetics and how food can affect behavior.

Here are my possible symptoms of gluten intolerance:

1. overweight as a kid...craved sugar and carbs

2. slow and sluggish, teachers wanted me tested for ADD

3. moody as a child

4. worn out by lower levels of stress than most people

5. need 9-12 hours of sleep

6. have no motivation to do anything

7. foggy brain...take forever to do things when I get started

8. slight cold and heat intolerance

9. irritable moods since 13-14

10. no sex drive/lack of sensitivity down there (since early teens)

I've been pretty burned out these last few years. I recently gave up coffee and now I feel even more exhausted, but I think coffee has been making me worse so it's probably good I gave it up.

I'm also getting testing done for my thyroid, because some of my symptoms overlap with thyroid issues and I want to know if there is anything autoimmune going on there.

So...should I try a gluten free diet? I saw some mentions of Enterolabs on this forum and wondered if that was a reputable place for testing. I'd almost prefer that method than having to "gluten up" for the blood test done by a doctor. Also, does enterolabs test for other food allergies? I suspect I could have other food intolerances going on and it may not be gluten.

Any advice would be appreciated!

Enterolabs is somewhat controversial on this board. Be aware that they do NOT diagnose celaic disease. Their tests only identify whether you have a "gluten sensitivity". I think they also have gene tests, which will only tell you your risk of developing celiac, not whether you actually have it. Enterolab also is usually not covered by most insurance plans and it's expensive. So if you have insurance it would be better to go through a doctor for the testing. You will need to do that testing before goign on a gluten-free diet. If you don't have insurance and don't care about having a doctor diagnosis then you can use Enterolab. They are an option for people that need a test but don't have any insurance or people that go gluten free and then decide they want some form of testing to stick with the diet or to convince their family.

Many people without insurance and without a need for a positive celaic test however have just "tested" themselves by eliminating gluten. If you strictly cut out gluten for a few months and then try to add it back in and have a clear reaction then you have a problem with gluten. You don't need a dr to tell you to avoid something if it makes you sick. Only you can know however if you would stick to it without a dr diagnosis. The good news is also that you can be tested for other thigns (like your thyroid) while gluten free. The only tests going gluten-free will affect is the celiac tests--which could show up as false negative if you are gluten-free at the time of testing. I had most of those symtpoms you listed prior to going gluten free. If I had known what I know now I would have opted to ask my dr for a blood test prior to trying the diet, but I am still very strict because my reactions are severe.

Meg123 Explorer

If you find gluten is not your problem, and your thyroid is ok, you could be Insulin Resistant. All of your symptoms sound like a lot of mine (but I've also got others too) and I am severely Insulin Resistant.

a simple blood sugar test, even a fasting one or even a glucose tolerance test is not nec enough to find it. You will need to make sure you have a 'fasting insulin level blood test'.

For years the dr's always tested my blood sugar, but not the insulin levels.

All the best.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.