Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vaseline Replied To My Email


CarolinaKip

Recommended Posts

CarolinaKip Community Regular

Thought I'd share!

Thank you for writing us regarding Vaseline Pure Petroleum Jelly .

All Vaseline Lotions are Gluten Free EXCEPT Vaseline Total Moisture, which contains Avena Sativa (Oat) Kernel Protein - That oat derivative may contain 3-4% gluten, yielding a final concentration of 0.00003 - 0.00004%.

Our research staff continues to review existing products and develop new ones based on both consumer preferences and latest findings.

We will certainly report your comments to our research and marketing staff.

Sincerely,

Your friends at Vaseline


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Well, you wouldn't be able to detect that level with any test available. 0.00004% is 400 parts per billion. The best available test detects 5 parts per million, more than ten times that amount. Just saying.

CarolinaKip Community Regular

Well, you wouldn't be able to detect that level with any test available. 0.00004% is 400 parts per billion. The best available test detects 5 parts per million, more than ten times that amount. Just saying.

I know, but for what it's worth, I thought I'd pass on. This could help some newbies. I know we need to check everything all the time.

rosetapper23 Explorer

As for the amount of gluten they quoted to you, they are referring to the amount in the one ingredient, which is then probably diluted (a small amount add to a large amount of other ingredients); hence, the apparent "questionable" figure.

psawyer Proficient

I really don't want to start another McFries debate, but it comes down to the same issue. If you start with an ingredient that has detectable gluten, and dilute it over and over to the point that the best available tests can not detect any gluten in the end product, is that product "gluten-free?"

I eat McDonalds fries from time to time.

lizard00 Enthusiast

I really don't want to start another McFries debate, but it comes down to the same issue. If you start with an ingredient that has detectable gluten, and dilute it over and over to the point that the best available tests can not detect any gluten in the end product, is that product "gluten-free?"

I eat McDonalds fries from time to time.

I ate them just recently and regretted it severely an hour later. So, I guess it comes down to what you personally feel you can handle. Maybe it was the grease? IDK. But I know that I will not eat McDo's fries again any time soon.

Peter makes a good point, and unfortunately, there is no standard answer at this point. I guess there *technically* is, but so many people beg to differ... including myself. Honestly, I would stay away from the product because I knew that. I rub my hands on my face or touch my mouth waaaay too much to feel like that is a chance I could take, even knowing that the chance is smaller than miniscule.

gflooser Contributor

...and remember, it's just the one vas. total whatever it said. all the rest if fine. i use it all the time!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
Greebo115 Rookie

I know this topic is old, that is the reason I sent an email to check the current status.......

When I got this reply, I was (and still am) suffering the aftermath of an accidental glutening, so I an particulary irritable, however, I think once I'm feeling better, I'll still find their reply useless and condescending! Really, since I told them I have Coeliac disease, do they really need to send me an email that attempts to educate me about the disease?! And how do they expect my doctor to know the origin of their ingredients if they don't even know? Grrrrrrrr....

It also seems that they need educating about the fact that I don't need to sit there with a spoon, eating their lip, hand or face products by the mouthful to ingest it.......jeez!

Copied and pasted email reply below

Hello from Vaseline

Dear Diane,

Thank you for your recent email.

As this is a medical condition, we would strongly suggest you speak to your doctor, dermatologist or the coeliac society ( http://www.coeliac.co.uk/ ) in the UK.

Ceoliac disease is an autoimmune disorder of the small intestine that occurs in genetically predisposed people of all ages from middle infancy. Coeliac disease is caused by a reaction to gliadin, a gluten protein found in wheat and manifests itself in the intestines.

As cosmetic products do NOT enter the blood stream and thus should not enter the intestines where as to cause the inflammatory reaction of the lining, cosmetic products containing gluten and wheat derived ingredients should not affect the person UNLESS they have a skin allergy to such protiens.

All ingredients are listed on the back of pack but unfortunately, we are unable to confirm complete trace absence due to many ingredients being derived from plant sources. Please speak to your doctor first and get advice.

I hope you find this information useful.

Kind regards,

Joti Singh

Careline Advisor

Takala Enthusiast


"Cosmetics don't enter the bloodstream.... ?"   Not unless they are ingested, duh ! but the residue is always on your hands and anywhere else it's applied.  My one dog got in several licks on my cheek tonight (a sneaky kiss, I don't encourage this) when I was in the car and she put her paws up between the seats and was excited when we started off again.  Good thing it wasn't the other dog with the allergies, or we'd have had a reaction.  But that didn't happen, because I was careful to be sure to wear coconut oil moisturizer and topcoated it with sunscreen, making sure both were gluten free.  I can't imagine glopping this sticky stuff on myself and then doing food prep if it were not gluten free, just as I cannot imagine using wheat germ oil as a lip gloss.  

  • 4 years later...
Barbie Wickham Explorer

In regards to the MacDonald French Fries - I was informed somewhere in this forum that they toss a handful of regular all purpose flour onto the frozen fries before cooking in deep fryer. Why? It stops them from sticking together. 

Also, another big “hidden gluten” can be in Sushi Rice, Dr. Tom O’Bryan did a podcast about Japanese restaurants that also will add a handful of flour in the rice because it makes it stickier and therefore it’s easier to form Sushi Rolls.... 

I highly recommend watching any of Dr. Tom O’Bryans podcast regarding Celiac, Gluten Sensitivy and DH... he makes such common sense of what our bodies go through when we ingest Gluten! 

Best of all to all of you (and me!) as we try to navigate the Gluten Landmines and find some relief for DH....

BarbieAnn

Barbie Wickham Explorer
On 5/26/2011 at 8:31 PM, lizard00 said:

 

I ate them just recently and regretted it severely an hour later. So, I guess it comes down to what you personally feel you can handle. Maybe it was the grease? IDK. But I know that I will not eat McDo's fries again any time soon.

 

Peter makes a good point, and unfortunately, there is no standard answer at this point. I guess there *technically* is, but so many people beg to differ... including myself. Honestly, I would stay away from the product because I knew that. I rub my hands on my face or touch my mouth waaaay too much to feel like that is a chance I could take, even knowing that the chance is smaller than miniscule.

 

Ennis-TX Grand Master
1 hour ago, Barbie Wickham said:

In regards to the MacDonald French Fries - I was informed somewhere in this forum that they toss a handful of regular all purpose flour onto the frozen fries before cooking in deep fryer. Why? It stops them from sticking together. 

Also, another big “hidden gluten” can be in Sushi Rice, Dr. Tom O’Bryan did a podcast about Japanese restaurants that also will add a handful of flour in the rice because it makes it stickier and therefore it’s easier to form Sushi Rolls.... 

I highly recommend watching any of Dr. Tom O’Bryans podcast regarding Celiac, Gluten Sensitivy and DH... he makes such common sense of what our bodies go through when we ingest Gluten! 

Best of all to all of you (and me!) as we try to navigate the Gluten Landmines and find some relief for DH....

BarbieAnn

You responded to a very old post might start a new thread for this debate. As to McDonald Fries, in canada it seems they are mostly Gluten free from what other posters say. Here in the US they use Hydrolyzed Wheat in the beef flavorings they add to them I would not doubt some stores have the practice of using wheat flour in them for non stick......

The sushi rice wheat issue would be a cheap restaurant things. The dedicated Japanese owned ones I have talked to use just salt, Mirin, rice vinegar, sometimes sugar. It would be "blasphemes" to ruin a high end sushi with wheat flour from their standpoint ESPECIALLY at some of these restaurants....sushi chefs go through YEARS of training and apprentice ship before being allowed to be a offical sushi chef in a Japanese restaurant.

kareng Grand Master
2 hours ago, Barbie Wickham said:

In regards to the MacDonald French Fries - I was informed somewhere in this forum that they toss a handful of regular all purpose flour onto the frozen fries before cooking in deep fryer. Why? It stops them from sticking together. 

Also, another big “hidden gluten” can be in Sushi Rice, Dr. Tom O’Bryan did a podcast about Japanese restaurants that also will add a handful of flour in the rice because it makes it stickier and therefore it’s easier to form Sushi Rolls.... 

I highly recommend watching any of Dr. Tom O’Bryans podcast regarding Celiac, Gluten Sensitivy and DH... he makes such common sense of what our bodies go through when we ingest Gluten! 

Best of all to all of you (and me!) as we try to navigate the Gluten Landmines and find some relief for DH....

BarbieAnn

McDonalds is very strict about thier products.  They would never allow someone to "throw a handful of flour" in with the fries.  Consistency is very important to Mc Donalds.  They send secret shoppers who write up a store if the pickles aren't on the patty correctly.  Mc Donalds fries have been tested and come up gluten-free.  The "hydrolyzed whet" is used in a tiny amount in the first step of the fries.  There is an explanation in this forum - actually its been explained many times.

 

Not saying anyone should eat them.

 

cyclinglady Grand Master
2 hours ago, Ennis_TX said:

You responded to a very old post might start a new thread for this debate. As to McDonald Fries, in canada it seems they are mostly Gluten free from what other posters say. Here in the US they use Hydrolyzed Wheat in the beef flavorings they add to them I would not doubt some stores have the practice of using wheat flour in them for non stick......

The sushi rice wheat issue would be a cheap restaurant things. The dedicated Japanese owned ones I have talked to use just salt, Mirin, rice vinegar, sometimes sugar. It would be "blasphemes" to ruin a high end sushi with wheat flour from their standpoint ESPECIALLY at some of these restaurants....sushi chefs go through YEARS of training and apprentice ship before being allowed to be a offical sushi chef in a Japanese restaurant.

 

2 hours ago, kareng said:

McDonalds is very strict about thier products.  They would never allow someone to "throw a handful of flour" in with the fries.  Consistency is very important to Mc Donalds.  They send secret shoppers who write up a store if the pickles aren't on the patty correctly.  Mc Donalds fries have been tested and come up gluten-free.  The "hydrolyzed whet" is used in a tiny amount in the first step of the fries.  There is an explanation in this forum - actually its been explained many times.

 

Not saying anyone should eat them.

 

This is not really a response to KarenG or Ennis, but to anyone in general as both have made excellent comments and I thought I would add my two cents (that and I am working on my iPad and I am not so tech-savvy nor have time!) 

Although McDonalds  corporate does have excellent policies and practices in place, each restaurant is franchised.  It is up to the individual owner to insure that all corporate standards are being met.   Most do an excellent job job or they would lose their franchise (and boy, do they make money and they do NOT want to lose the franchise); however, individual employees who are mostly paid minimum wage, do come into the picture.  Mistakes are made, kids goof off, etc.  Now that food allergies are getting more attention, I am sure McDonalds is taking action to prevent injuries or lawsuits, but nothing in life is perfect.  

I have had two family members work at McDonalds.  The celiacs do not eat at McDonalds (we do order coffee).  We pretty much avoid most fast food because we think it is not healthy for anyone (personal opinion).  We prefer dedicated gluten-free restaurants, or those that are recommended by celiac groups, and high-end restaurants where our food can be prepared to our needs, and where we can talk to the chef.  The non-celiacs?  They are still devoted to McDonalds.  They appreciate the quality and consistency no matter where they are in the world and can handle a few mistakes (e.g. pickle location on the sandwich).  

@Barbie Wickham— I encourage you to read the books and published data from celiac research centers about the gluten free diet instead of a chiropractor.  I am sure Dr. Bryan is trained to adjust your back, but stick to experts who are well respected in the celiac disease field.  Here is a list:

Open Original Shared Link

Talk to the managers and chefs.  If you do not feel comfortable, then do not eat at that particular restaurant or just order a drink to be sociable.    Go with your gut feeling, especially if you are super sensitive or have DH.   Like those credit card commercials, sometimes just piece of mind is priceless.  

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,410
    • Most Online (within 30 mins)
      7,748

    Nicola mcculloch
    Newest Member
    Nicola mcculloch
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Pablohoyasaxa
      I feel your pain. Grain and gluten intolerant. Hang in there. This forum is very helpful
    • ElisaL
      IDK how common it is but it does happen. I'm celiac, allergic, and intolerant to the fiber in grains. (Fodmaps) So not only do I get sick from cross contamination, also gluten free wheat statch/fiber, and beauty products with wheat will get me. While I don't stop breathing the full body hives and short breath are not fun. Then once I make through that me and the bathroom become reacquaint. Sigh if I didn't feel so much better with the restrictions on my diet I'd feel sorry for myself. Least it makes for some good jokes about how the gremlin that lives in my gut really hates wheat. 
    • Wends
      Hi Dora77. “Questions I Need Help With” “1. Is it realistically safe to eat food my mom cooks…” YES - you wouldn’t be here if it wasn’t for your mother. Trust she still knows how to take the best care of you in her own way. Mishaps and cross contamination may happen - will happen on occasion, in fact - that’s life. But for the bulk of it as long as you’re aware of cc and try to avoid it for the most part, don’t sweat the small stuff! See the gluten free diet as a process. Own the process, Do Not let the process own you! “2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or school desks? Or like if i went to the gym, I would be touching stuff all the time, so there will be small amounts of gluten and those would get transferred on my phone if I touch my phone while in the gym. But I want to knos if it would be enough to do damage.” NO - this is OCD brain at its best! Hijacking your thoughts and justifying it because of the very real fear of gluten contamination. That’s OCD all over. Like a devil in the driving seat. Fears that are based on some kind of reality are hard to argue with. Boss it back! Recognise this for what it is. OCD using fear of gluten as its excuse to keep you entrapped. Own the OCD in this scenario, don’t let it own you. Normal cleanliness rules apply. Washing your hands before you handle food you’re putting in your mouth is fine. Washing after the gym is normal. Once daily cleansing wipe of your phone etc. Even if you did go rubbing your hands all over surfaces and licking them there might be a trace exposure to gluten possible. But I’m guessing you don’t usually do that sort of thing. Even if you inadvertently were to ingest trace gluten - it won’t be enough to do damage, no. It takes weeks to months of at least a few hundred milligrams of gliadin daily for the innate immune system followed by the adaptive immune system in coeliac disease to kick in and start producing antibodies and cause villous atrophy. “3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy?” Only biopsy, as the gold standard of diagnosis, can tell for certain if villi have recovered. Having said that video capsule etc. can give an indication of any inflammation. “4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust?” Assuming your employer provides all necessary PPE - appropriate mask and overalls etc. All you can do is take the precautions that are advised according to risk assessments and regulations of the relevant industry governing bodies? (I don’t know what this would be in the USA. Sorry. But there’s safety and governing regs in the UK for this sort of thing. Assuming it would be very similar over the pond in fairness). “5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.)” This comes down to personal threshold of gluten tolerance. People that are highly sensitive may need certified products. Especially those with dermatitis herpetiformis - the skin manifestation of gluten sensitivity. Listen to your body on this one. “6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?” This one is easy - when following a strict gluten free diet, avoid products that say May contain traces of gluten. But it does not have to be labelled gluten free. There are many foods naturally gluten free. Having said that, there is nuance and personal tolerance threshold. If you’re super sensitive “may contain gluten” labelling is a godsend. But this kind of labelling is more aimed at informing customers with type 1 food hypersensitivity/ allergy reactions. The company is basically legally covering themselves, because there may be a risk of cross contamination. Not to be confused that it means there is cross contamination. In addition to products being labelled gluten free. Many products that are labelled can still contain gluten by the way - in fact any processed products labelled gluten free can still contain the allowable level of gluten (up to 20 parts per million according to Codex). A study was done not too long ago that showed gluten free processed products such as cereals, breads, flours etc. can and some are in fact contaminated and have above the legal allowable amount of gluten in them. While most gluten free products are fine for most celiac patients and tolerated, highly sensitive patients fail to heal fully if relying on processed gluten free products. The trace gluten exposure adds up for someone eating a typical western diet of gluten free cereal for breakfast, gluten free sandwich for lunch, gluten free pasta or pizza for dinner for example day after day, week after week. This is why, at least in the beginning after diagnosis, the gluten free diet should be one of whole real food - food that does not require a label. Meats, oily fish, eggs, beans, natural gluten free complex carbohydrates and vegetables according to custom and taste. Limit fruit as fructose worsens leaky gut and has been hypothetically linked to increased OCD and ADHD - Professor Richard Johnson published study on this recently. “7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful?” NO and YES. What you listed as your current, limited diet is nutrient poor. Correct it as soon as possible for your own sake and future health! Ditto what others have replied regarding vitamin and minerals that are lacking in malabsorption syndromes like celiacs and need replenishing. Gluten free products are not fortified. You were likely healthier, dare I say it, on a gluten containing diet for this reason. Your brain , and gut for healing and maintenance, needs lots of nourishment from omega 3s, B complex vitamins, folate, B12, iron, selenium etc. Meats, fish, natural fats that come with, do not fear - the brain is made of fat. Limit sugar, seed oils, and high glycemic cereals and fruit like bananas unfortunately as they can cause blood sugar highs and lows that can worsen anxiety in some people. Refined carbohydrates should be limited for the same reason. Fructose and simple sugars in excess feed the unhealthy gut bugs that wreak havoc with anxiety disorders like OCD. White potatoes can be problematic for some, also. It can take six weeks of elimination to see improvements. Note, consult your physician regards insulin adjustment if you reduce carbohydrates in the diet. Dr Bernstein diabetes protocol has worked for thousands. Ketogenic and low carbohydrate diets for mental and neurological conditions have shown improvements. Limited studies have and are being conducted under metabolic psychology and nutritional psychology. In a good proportion of anxiety disorders, mental, and neurological conditions including dementias, the brain is lacking nutrition and usable energy, not a drug. Similar in many autoimmune conditions, including celiacs, the prevailing hypothesis is that gut inflammation and resultant permeability allowing exposure to antigens begets triggering the genetically susceptible immune system response. Modern lifestyle exposure, one of the biggest being the food we choose to eat plays a huge role. Avoid ultra processed products, high in seed oils, refined grains, and sugar. Not just gluten can cause a leaky gut. Fructose, alcohol, egg white lysozyme, emulsifiers, added gums, the list goes on. “8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if it’s gluten or something else but our dish washer doesnt seem to make it completely clean.” If in doubt have your own cutlery set, plate and dishes etc. for your sole use that you handwash yourself. Carry a camping fork/spoon set when out and about if needed. “9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.” That’s a classic OCD fear. Nothing to do with gluten as such. OCD brain is using gluten as the excuse here. I personally have the habit of using a cleansing wipe or dust cloth on my phone, nightly, that eases this sort of worry. For example a micro fibre dust cloth will do the trick, keep one on your nightstand? They are antibacterial as particles cling to the cloth. “10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? Even if no crumbs fall onto my keybaord, i mean because of invisible gluten on their fingers.”  NO. But again these OCD thoughts are hard to argue with. If in doubt, just a quick wipe with a cloth daily should suffice. Normal cleanliness practice. But if you don’t, or forget, don’t sweat the small stuff. “11. Does medication/supplements have to be strictly glutenfree? One company said they couldn‘t guarantee if their probiotics don’t contain traces of gluten.” Better if it is gluten free, yes. “12. I had bought supplements in the past, some of them say glutenfree and some of them dont(like the brand „NOW“ from iherb). I bought them and used them when i wasnt washing my hands so often, are they still safe? As I touched and opened them after touching door knobs, water taps etc. It was like a year ago when i bought those and even though i was eating gluten-free, I never worried about what i touch etc.” Still safe if do not explicitly contain gluten grains / derivatives AND if within the use by and use within dates. “I know this post is long. I’m just extremely overwhelmed. I’m trying to protect myself from long-term health damage, but the OCD is destroying my quality of life, and I honestly don’t know what’s a reasonable level of caution anymore.” Really hope these replies to your questions help. Just remember, in the midst of overwhelming thoughts and darkness under OCD clouded vision, the light and sunshine is always shining above. Take a moment or two when you are able in each day - even if it’s last thing at night - to meditate. Focus on something that you enjoy and appreciate. Or sit in a quiet space and try to relax and tune in to your higher self. Ask for guidance and soothing from your guardian angel. Over time it works but don’t worry if your brain is anxious. Eventually it will quieten down some. Try to focus on a real food, nutrient dense and naturally gluten free diet, this will help your anxiety and future health in the long run. Please eat real food - not cornflakes and sandwiches. Eat a steak, eggs or fish for example. Gluten exposures may happen, but don’t sweat it, dust yourself off so to speak, and carry on with a natural gluten free diet as best you can. Own your OCD don’t let it own you! Similarly, when it comes to a gluten free diet for celiac disease, own the process, don’t let it own you! You’re 18. That’s great. I’ve been managing OCD since childhood (in my 40s now. Many years of research, trial and error so to speak. Diet makes a difference. To quote Doc Brown to teenagers Marty and Jennifer, ‘ …your future hasn’t been written yet. No one’s has. It’s whatever you make it. So make it a good one.’
    • maryannlove
      Unfortunately not going to be able to let you know how Amneal is working because I still have almost 3 month supply of Mylan.  Had annual appointment with endocrinologist last week (though get scripts for blood work more often) and since was on my last refill, she sent new script to pharmacist.  Staying on my Mylan until it's gone.  (I tend to build up a supply because after trying a couple of endocrinologists for my Hashimotos, one finally got my thyroid regulated by my taking only six days a week instead of adjusting the strength which had me constantly up and down.  Will be forever grateful to her.  Apparently high percentage of folks with Celiac also have Hashimotos so all this relevant/helpful on Celiac.com.    
    • KimMS
      Thanks for sharing this! Have you started taking the Amneal? I'm curious how it's going for you. My pharmacy gave me the option of Accord, Macleod or Amneal. I didn't realize that Amneal was formerly Lannett, or I might have chosen that one. However, I did read some anecdotal reports that some people had side effects with Amneal, so I chose Accord. I have been taking it for 3-4 weeks and the past 10 days I have developed extreme fatigue/sluggishness, joint pain and some brain fog. I don't know if it is the new levo med, but nothing else has changed. Has anyone else taken Accord levo? Any issues? It seems to fall into the "no gluten ingredients, but we can't guarantee 100%, but it's likely safe category." I'm wondering if it is worth switching to Amneal or at least getting my thyroid levels checked. If the med is causing my symptoms, I'm guessing it's not because of gluten but maybe the potency is different from Mylan and I need different dosing. Accord was recalled for lower potency, but my pharmacist said the pills I have were not part of that lot.  
×
×
  • Create New...