Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Wheat Starch Allowed In Us?


Misa

Recommended Posts

Misa Rookie

Hiya

Did a print out of the food list on this site and noticed that wheat starch is not accepted as safe in the US and Canada! Over here in Scandinavia the health food stores and many supermarkeds stock products labelled glutenfree (rolls, bread, vaffles, pizza crusts, pancakes) which all are made of wheat starch. And it is totally accepted for celiac disease. Says on ingredients list that they contain 0.3 or 0.4% gluten per bread.

Any opinions would be much appreciated.

Misa :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

I do not allow my child to eat wheat starch. I've heard both sides of this. I think it's a good idea.

flagbabyds Collaborator

Different countries have different regulations on how much gluten can go into a product with it still saying that it is gluten free. I don't eat anything with the name wheat in it except buchwheat.

Guest nini

I wouldn't trust it... JMHO

tarnalberry Community Regular

There are a couple reasons for this, the primary one being that European nations have a standard to go by - the CODEX standard - that puts a quantifiable number on what amount of gluten is allowed to be in "gluten-free" foods. The US has no rule regulating this. In part, due to this, European food manufacturers have produced a wheat starch that is so highly processed to remove the proteins, that it can meet the definition for a "gluten-free" food. Because the US has no such standards, wheat starch here is not processed as rigorously, and has more gluten than the CODEX standard would allow.

Doctors in Europe, it seems, for the most part feel that a diet including foods made of CODEX standard wheat starch are safe for their patients. I do not know what testing (e.g. follow up blood testing, follow up biopsy, symptomatic results) they do to determine this, nor do I know how many servings of CODEX standard wheat starch per day were used in those tests.

Due to the lack of availability of more refined wheat starch in the US, and what is often seen as a stricter restriction on gluten-levels (by us on the board, anyway), it's not generally accepted as safe by a lot of US celiacs.

KaitiUSA Enthusiast

No wheat starch for me

Misa Rookie

So you wouldn't touch wheat starch even if the strict guidelines applied to the US....Hmm, this has got me thinking that I should perhaps stick with the rice crackers and buckwheat.....Best to be safe than sorry....Thanks for responding :D

Misa :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast

I have to agree with Tiffany. The wheat starch here isn't a high enough quality to be gluten free. I have a wheat starch story...

I licked the knife after frosting some gluten free cupcakes for my daughers birthday party. It was a different brand than I usually use and it was really tasty. So as I take a spoonful and pop it into my mouth, I casually look on the label and out popped the words WHEAT STARCH. I apparently grabbed the wrong flavor after reading all the labels at the store and ended up getting quite sick after just one spoonful of the frosting. Thank God I had my normal gluten-free frosting and extra cupcakes, so my daughter could still have a cupcake. But I was not very happy for the next week or so. I felt awful.

BTW, I found it very ironic that all her friends were eating gluten free cupcakes with gluten frosting! LOL :rolleyes:

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.