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Poppi

Hypothetical Question

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We went tenting and tramping at Mt. Lassen during the time (as I later found out) I had a giardia infection :blink: - quelle horreur!! :ph34r: The night-time flashlight excursions were the worst but I did not run into any bears - the explosions probably drove them off :lol:


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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We went tenting and tramping at Mt. Lassen during the time (as I later found out) I had a giardia infection :blink: - quelle horreur!! :ph34r: The night-time flashlight excursions were the worst but I did not run into any bears - the explosions probably drove them off :lol:

holymotherofpearl!!...I had a giarddia infection back in 1999...that is no fun AT all.... :huh:

yikes....just had this image of you in the woods, flashlight in mouth, balancing precariously........poor 'shroom.... :unsure:

From what I know of you, you made the best of it, no doubt!


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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yikes...let's hope there aren't any more Damiens!! :unsure:

Fructose causes what kind of reaction, may I ask? I'm trying to figure out why I am bloated still...I feel much better and it's not gluten doing it...but...I have a bit of a pouch going down there (I had been stick- thin preDX...

edited...scratch that... I read about fructose malabsorption...I don't think that's it..!maybe I am just gaining weight :D

the fructose in enough of an amount will bloat me up like too much lactose, and make me feel like im gonna get major "D", but the D usually doesnt come till the following day. if too much fructose- it give me HORRIFIC intestinal cramping- just like gluten- and i will be hunched over pillows and heating pad for the rest of the night :(


1986- Elevated Speckled ANA/no Lupus.negative Sjorgens

2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.

no biopsy (insurance denied)

6/2010- Enterolab Gene Test:

HLA-DQB1 Allele 1 0302

HLA-DQB1 Allele 2 0302

HLADQ 3,3 (subtype 8,8)

7/2010- 100% Gluten Free

8/2010- DH

10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

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the fructose in enough of an amount will bloat me up like too much lactose, and make me feel like im gonna get major "D", but the D usually doesnt come till the following day. if too much fructose- it give me HORRIFIC intestinal cramping- just like gluten- and i will be hunched over pillows and heating pad for the rest of the night :(

Poor baby...that's awful.

I read that it is often secondary to celiac...is that right? any chance you can tolerate fructose down the road??


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Poor baby...that's awful.

I read that it is often secondary to celiac...is that right? any chance you can tolerate fructose down the road??

i hope to be able to eat it all again someday. it's also possible that maybe i have SIBO ??? a girl i met on twitter used to have severe fructose malabsorption, then she went RAW VEGAN (still gluten free), and she no longer has a fructose problem- but she's also a vegetarian who has no issues with soy. im a big time meat eater- and i have to avoid soy.

maybe i could add a good amount of raw... maybe im lacking enough enzymes.. ???


1986- Elevated Speckled ANA/no Lupus.negative Sjorgens

2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.

no biopsy (insurance denied)

6/2010- Enterolab Gene Test:

HLA-DQB1 Allele 1 0302

HLA-DQB1 Allele 2 0302

HLADQ 3,3 (subtype 8,8)

7/2010- 100% Gluten Free

8/2010- DH

10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

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Ditto for me. No soy or dairy and I need the protein from meat right now as I lost so much weight and muscle mass. My friend is a vegan/soy girl and has kept her MS at bay doing that. She's very healthy!

Raw vegetables are still difficult for me to digest. I used to love snacking on cut up vegs all day long.. When I was very ill (preDX) I could not keep anything in, I was starving and dehydrated, so my sweetie purchased a juicer for me, figuring all that good stuff would be something I could tolerate and I would get the nutrients I needed.

What a mistake! The beet, celery, apple and carrot combo---was like pouring battery acid down there. :blink: Everything burned and then, came out with such force...well, you get the picture, Apparently, even the "raw" goodness was too much in an inflamed GI tract. I simply could not digest it. have been afraid to try too many raw vegs ever since.

I did try lettuce and tomato and some cuke the other day. No problem!! And all fruit is okay now, except for citrus--yikes! Still ouchy.

All this to say.....you do use probtioics don't you? They have been an enormous help for me. Almost all my GI issues have cleared up except for the burning sensation in my mouth, tongue and other "areas" :unsure: but even that is calming down!

I can tell from your posts, you are so pro-active about your health, so I imagine you have thought of everything by now!

But if you do suspect a SIBO, you may want to ask for the test.

Best wishes, cass!! :)


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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thanku irish girl :)

im very into health, but dont always eat how i preach... i have company in town again and we wanted pf changs- so i got it... so far so good... but i DO have to get back OFF the soy for the thyroid.

anyways... i guess i could ask for a SIBO test- but im afraid of it being a fiasco ... i already have a few more battles before that with my PCP & Endo..


1986- Elevated Speckled ANA/no Lupus.negative Sjorgens

2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.

no biopsy (insurance denied)

6/2010- Enterolab Gene Test:

HLA-DQB1 Allele 1 0302

HLA-DQB1 Allele 2 0302

HLADQ 3,3 (subtype 8,8)

7/2010- 100% Gluten Free

8/2010- DH

10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

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