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Retail Therapy - Celiac Style


Poppi

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Poppi Enthusiast

So I'm mildly peeved at my husband. His work is sending him away on a course and he's floating about the house all happy that he gets to spend a whole week in Ottawa in a nice hotel with $100 a day for food and entertainment. :angry: I'm insanely jealous. I want to get away from the kids and home too.

So in a fit of poutiness I just spent a bunch of money ordering cake mixes, cookies and donuts from Kinnikinnick. :huh: I probably shouldn't have done that. It's funny because a few months ago I would have spent that $100 on yarn or spinning fibre but now it's bread, donuts and cake mix. :lol:


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Strawberry-Jam Enthusiast

I know the feeling. Whenever I come across a new food I cannot eat--either when I discovered I couldn't have soy and had to give away/throw out 1/3 of my food, or whenever I discover a new thing that upsets my stomach for some reason--I go grocery shopping and spend at LEAST $50 on food that I CAN have. Doesn't stop the frustration of wasting money on food it ends up I can't have anyway, but it makes me feel a little better, anyway.

adab8ca Enthusiast

sometimes you just have to treat yourself!!!

Poppi Enthusiast

But I want to go to Ottawa. A whole week without kids or laundry. :angry: No fair.

K8ling Enthusiast

Oh man a whole week??? I'm only 3 months into a 9 month deployment and I keep wishing I had a DAY... man.. what would I do with a week by myself??

*swoon*

love2travel Mentor

My husband gets to go to places such as London, Paris and San Francisco for meetings for about ten days at a home with his job so I truly understand! Sometimes they invite spouses, too, which is wonderful. They get SPOILED at these things. In Paris next year they have rented the entire Palace of Versailles for dinner! We've been aboard aircraft carriers, in the Justice rooms in London, etc. Absolutely amazing. Plus the spouses get to go to castles, on garden and home tours, take cooking classes, go to vineyards...thankfully all that happened before I was diagnosed! But next year in Paris will be interesting with celiac disease, going to the best restaurants. Knowing their management and travel teams I will be very well taken care of.

Anyway, somehow I justify my deserving things when I have accomplished something or when I have bad fibromyalgia/herniated disc pain days (which is pretty much 24 hours a day) or when I am alone. When that happens, my husband orders me several books from my Amazon wishlist. He does this each time he goes away. He is too sweet! I don't really splurge on gluten-free stuff but I DO splurge on great artisan cheeses, decadent truffle dishes, fabulous sea salts, exotic spices... On the other hand, it does not take much to please me! I love the small things, too. :)

So, enjoy your treats because you really do deserve it! :P You must have at least two treats per day so that is 14 treats (or batches of treats!).

bbuster Explorer

So I'm mildly peeved at my husband. His work is sending him away on a course and he's floating about the house all happy that he gets to spend a whole week in Ottawa in a nice hotel with $100 a day for food and entertainment. :angry: I'm insanely jealous. I want to get away from the kids and home too.

So in a fit of poutiness I just spent a bunch of money ordering cake mixes, cookies and donuts from Kinnikinnick. :huh: I probably shouldn't have done that. It's funny because a few months ago I would have spent that $100 on yarn or spinning fibre but now it's bread, donuts and cake mix. :lol:

You go girl!!!

It's funny, my husband took the kids and they are all visiting his family for a week. So besides my regular work schedule (9-10 hrs M-F) what do you think I am doing? Mowing the lawn, pulling weeds, mulching trees, planting flowers, organizing and cleaning the pantry, drawers, closets; house painting projects, carpet cleaning, stocking up on groceries, laundry, various other cleaning projects, and doing all of the planning for our vacation. And of course reading up on forum topics! Well, I also called my mom, coordinated a family gift for an upcoming nephew's wedding, and collected and donated gluten-free items for tornado victims in Joplin (not too far away from here). So see, it's not ALL about me (LOL).


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    • daniellelawson2011
      Thank you for the welcome and reply. The first test was tissue transglutaminase IGA and it was normal. The second test just simply says IGA and it was 638. You definitely answered my question, it sounds like im negative for celiac since the 1st test was normal, and that another condition has caused the abnormal result of the IGA. That's exactly what I was wondering. Im almost positive I have MS and I've read results are higher like that with early onset. Or it could be IBS. Hopefully the visit with the neurologist will give me even more answers and point to a final diagnosis. I really appreciate you taking the time to reply and for helping. Thank you so much!
    • trents
      Welcome to the forum, @daniellelawson2011! First, we need to deal with terminology here. When you refer to the "ttg" test I take that to mean the ttg-iga. And when you refer to the "iga" test I take that to mean total iga since the magnitude of the score would suggest that. Total iga is not a test for celiac disease per se. It is run in order to check for iga deficiency. If you are iga deficient, then the ttg-iga and other iga tests that are specific for celiac disease will be abnormally low and this would potentially produce false negatives. You are not iga deficient but, rather, your total iga is abnormally high. This can suggest underlying health conditions, some of them can be serious in nature.  https://labs.selfdecode.com/blog/high-iga/ "High IgA usually points to chronic infections or inflammation, though many disorders can raise its levels. High IgA does not cause symptoms. People show symptoms from their underlying health problem." One thing I might add and that is you must have been eating normal amounts of gluten for weeks/months prior to the blood draw for antibody testing. Testing while on a gluten free or gluten reduced diet will not yield valid results. Also, here is a primer outlining the various antibody tests that can be ordered to check for celiac disease:  
    • daniellelawson2011
      After struggling with many different symptoms for years with no diagnosis, I decided to do my own research and I stumbled upon an article about celiac disease. I asked my PCP to order a ttg and iga. The results: the iga was high at 638. The ttg was negative. Of course I will discuss with my doctor, but i would like to hear from people that have went through the process of diagnosis to maybe give me some insight on what this means and where to go from here. Also of note, i had a brain mri which showed white lesions which arent typical at 44 years old. I have many MS symptoms. I go to the neurologist on Tuesday, but just curious if anyone knows if there is a correlation between iga and MS. I appreciate any help! Thanks!
    • Joe R
      Thank you for your advice. I appreciate the help. 
    • nanny marley
      Thankyou so much for your reply I decided to skip the senna has I've already had very loose stools last few days I've cut my portions down on the low fiber diet too and drinking lots of liquid has I just thought it would be wise to listen to myself too I've probably already done wat the senna would of done myself naturally by drinking clear apple juice which if not on the diet I would have to avoid anyways has I don't tolerate many fruit juices so I'm sure I've done the right thing I did try to contact the department on my letter but weirdly enough it was ringing but then after a while saying wrong number 🤷 but again I'm positive I've done the right thing I'm going to take today very lightly too with low portions and more liquids so yes thankyou for that advise I am very nervous but I have had time to think and read other peoples experiences and not all are bad there is some good advise and reassuring information from people who do these all the time so I'm trying my best to be positive so I can at least settle my mind knowing im doing this to help my own health has this year has been a rollercoaster for me cutting out gluten and lactose was a good idea but I still get flare ups and other symptoms so it definitely is worth a check like you said it was the calprotein that prompted the doctor to refer me again thankyou for your reply it's means a lot for someone to take the time to listen and respond and give uplifting advise  especially to me just now has I'm a bundle of nerves inside getting closer to tomorrow prep so thankyou for that 🙏
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