Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take To Get Off Of Everything?

revenant

Recommended Posts

revenant Enthusiast
revenant
Posted

I'm having a real hard time getting off of every food intolerance I have. Right now I'm so stuck on nightshades, have been for 5 months, and I feel irritable and sick every day. In general I'm afraid to be food-intolerance-free because there will be nothing to hide behind anymore.

I'm wondering how long it took you to go 100% free from all of the food intolerances you are aware of. Did you get 'stuck' on giving up the last one?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eatmeat4good Enthusiast
eatmeat4good
Posted

Gluten is definitely out...since I get immediately and violently ill.

The other intolerances I have had a hard time accepting and getting rid of.

Whenever I do get off of all the top 8 allergens, plus nightshades, fructose and all grains, I feel great!

But sustaining that diet is extremely hard and I inevitably give in to "testing" dairy or soy or whatever it seems I want to eat at the moment of weakness.

It is a process.

I think it is probably due to the years of malabsorption, like the experts here say, and hopefully some of those intolerances will disappear the longer we are gluten free.

I understand your struggle because I am there too.

Hopefully it will get easier and the days of feeling really good will make it worth giving up the foods that are bad for us. Then you won't have to hide behind anything but your smile, because you will feel good again.

srall Contributor
srall
Posted

I"m in the same boat as EM4G. If something makes me violently ill, like gluten, corn, bananas, I won't touch it. But I know I have inflammation and allergy symptoms with cashews, dairy, caffeine, wine and soy...but I don't really feel like death warmed over when I ingest them so I feel like I'm feeling worse than I should be because I'm weak-willed. It would be easier if these other foods made me bed-ridden like gluten. So...every morning I begin with a fresh round of resolve. If I really stay off these foods, I feel much better. But it takes a long time to figure everything out.

  • 3 months later...
Februaryrich Rookie
Februaryrich
Posted
  On 6/6/2011 at 7:11 PM, srall said:

I"m in the same boat as EM4G. If something makes me violently ill, like gluten, corn, bananas, I won't touch it. But I know I have inflammation and allergy symptoms with cashews, dairy, caffeine, wine and soy...but I don't really feel like death warmed over when I ingest them so I feel like I'm feeling worse than I should be because I'm weak-willed. It would be easier if these other foods made me bed-ridden like gluten. So...every morning I begin with a fresh round of resolve. If I really stay off these foods, I feel much better. But it takes a long time to figure everything out.

How do you figure everything out? I've been gluten-free for a little while now. I'm definitely better but I know I can be even better.

mushroom Proficient
mushroom
Posted

For me it took about 2-1/2 years to get it all sorted. It really depends on what your individual intolerances are, whether they are lone foods or specific families (as in lectins, e.g., nightshades, legumes). A food and symptom diary helps lots because often the reactions are delayed. You may find that 2-3 days after eating x you always get y. So you stop eating x and y goes away (hopefully). :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,984
    • Most Online (within 30 mins)
      7,748
    Aikend
    Newest Member
    Aikend
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Scott Adams · Posted

      It sounds like your gastroenterologist is becoming increasingly confident that celiac disease is the likely diagnosis based on both your older and newer lab results. Her suggestion to call each Monday for possible cancellations is actually a great strategy—especially given how long the wait is until your August 29th appointment. It’s also a good sign that she’s advocating for you to be seen sooner, which shows she’s taking your case seriously. The fact that some labs might not have been drawn yet due to overlap with your functional health doctor’s upcoming testing adds a layer of confusion, but that’s unfortunately common when multiple providers are involved. Hopefully, the GI’s...
    • cristiana
      Worried about being isolated

      By cristiana · Posted

      Thanks for sharing that film, @trents.  I am not sure how I missed that film as I see it is a few years old, but it is very good.  I think you should be fine if you take your own packed lunch and eat it from your own lunchbox etc.  Might be worth doing a lunchtime recce to see how cramped the room is before making a decision - for all you know, there may be other people  there who don't eat gluten?
    • cameo674
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By cameo674 · Posted

      The GI doc messaged me this afternoon that she believes that the new blood work added to the old is definitely  looking like a celiac diagnosis is in my future.  She wants to me to call into scheduling each Monday to see if I can get my August 29th appointment moved up due to cancellations.  I have never had a doctor recommend that.  She also said there were additional labs that she requested still out that have not come back yet; so, they may have been missed drawing those since the functional health doctor has a whole slew of labs that I am suppose to be waiting until August 27th to do. I am still waiting to hear on whether or not she will allow me to do pill prep versus the typical...
    • Alibu
      Latent celiac, need to go gluten free, advice on kitchen "reset?"

      By Alibu · Posted

      Well, I've made if from the pre-diagnosis forum to here!  I've been diagnosed with "latent" or "potential" celiac and my doctor has suggested me to go gluten-free before my appointment with him in October (first available, LOL).  My ttg-iga was 152, my EMA was positive, I have the gene, but my biopsy was negative (and he took 12 samples), so it makes sense to go gluten free to see if I improve. I know the basics - I can find lists of things to avoid, I know about hidden dangers, etc. all of that.  Where I'm struggling is just STARTING.  I need to go shopping and stock up on some staples.  My goal is to not try to find gluten-free alternatives, but to focus on naturally gluten-free foods like...
    • Scott Adams
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Scott Adams · Posted

      It’s great that you were finally able to see a gastroenterologist—and even luckier to get in the same day as your referral! It sounds like your GI is taking a very thorough approach, which is reassuring given your complex symptoms and history. The confusion around your different tissue transglutaminase (tTG) antibody results is understandable. The variation between your December and June labs may be due to multiple factors, including differences in the lab performing the test (Quest vs. Mayo Clinic), the specific assay used, and the amount of gluten you had been consuming before each test. Antibody levels can drop significantly when gluten is reduced or eliminated from the...
×
×
  • Create New...