Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is Normal?

raesue

Recommended Posts

raesue Rookie
raesue
Posted

I'm not sure of the correct place to pose a question about everyone else.

Kind of gross question:

Is it "normal" to have frequent, almost daily, constipation with cramps that rapidly transforms into extreme urgency and diarrhea?

Is it "normal" for this diarrhea to involve such things as undigested food, malabsorbed fat, mucus, and blood?

Do these things happen when there is nothing wrong with a person?

Was I lying when I told my daughter that she had to have blood work because most peoples tummies do NOT hurt everyday and diarrhea is NOT supposed to be the normal form of bowel movement.

Seriously, can we have all these issues without there being anything wrong with us?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

No, what you describe is not what I would consider normal.

kareng Grand Master
kareng
Posted

I suppose you could have these things if they are a normal response to something like eating potato chips and soda all day. With a reasonablly healthy diet, this is not normal. Its not how the parts were made to function.

Judy3 Contributor
Judy3
Posted

I'm not sure of the correct place to pose a question about everyone else.

Kind of gross question:

Is it "normal" to have frequent, almost daily, constipation with cramps that rapidly transforms into extreme urgency and diarrhea?

Is it "normal" for this diarrhea to involve such things as undigested food, malabsorbed fat, mucus, and blood?

Do these things happen when there is nothing wrong with a person?

Was I lying when I told my daughter that she had to have blood work because most peoples tummies do NOT hurt everyday and diarrhea is NOT supposed to be the normal form of bowel movement.

Seriously, can we have all these issues without there being anything wrong with us?

What you have described is me before I was diagnosed with Celiac and went gluten free.. :unsure:

IrishHeart Veteran
IrishHeart
Posted

I think you already know this is not how a normal GI system works...perhaps you want us to tell you that you are doing the right thing by having your daughter tested?

You are doing the right thing by having your daughter tested. ;)

No one should have that going on every single day. (well, I did... but now I know WHY) And now, it doesn't happen anymore.

raesue Rookie
raesue
Posted
  • Author

I'm wanting to be told something other than "its all in your head". i was even straight called crazy yesterday. my incredibly supportive boyfriend/father of the five year old child occasionally doubled over in pain from cramps thinks a negative blood test is sufficient reason to forget all of this. he even suggested I let him support us and.go back to school or at least begin socializing more with friends to get myself to stop creating health problems for myself and dragging our daughter into it. I'm making sure I'm not just missing something here in that my experiences are lesser or different than those of you who can actually prove something is really going on with you.

raesue Rookie
raesue
Posted
  • Author

What I really want is scientific proof to throw in his face and scream STFU! or maybe I just want to rant. In his mind, no tangible evidence = nothing there

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

I'm wanting to be told something other than "its all in your head". i was even straight called crazy yesterday. my incredibly supportive boyfriend/father of the five year old child occasionally doubled over in pain from cramps thinks a negative blood test is sufficient reason to forget all of this. he even suggested I let him support us and.go back to school or at least begin socializing more with friends to get myself to stop creating health problems for myself and dragging our daughter into it. I'm making sure I'm not just missing something here in that my experiences are lesser or different than those of you who can actually prove something is really going on with you.

Many people have negative test results. If you want statistics to present to him--I am sure it's on this site somewhere. My doctor told me it was almost 30% of the time.

That's why so many people remain sick and in pain--reliance on a test that renders false negatives all the time. I am one of dozens on here who will tell you horror stories of what happened to us because our tests were negative and people said it wasn't the gluten. But we knew better.

Some of the people who are seriously ill from gluten intolerance never get "proof"--i.e. any test results that shows positive--but ALL of us know that symptoms such as the ones you describe are NOT NORMAL--in a child or in an adult.

Do not listen to what others say to you. If you think your child is ill from gluten (or you, for that matter--I do not know your health situation) and you feel she may do well without gluten in her diet, then take it out and see if she starts to feel better.

That's all the proof you need.

I know you want the piece of paper with positive test results on it so you can say "I told you so!"...I felt that way once, too....and even WITH that proof, it did not change a thing. No doctor has ever "apologized to me" (except one) or said "Oh wow--you were right all those years and you're not crazy..gee, sorry!..." Seriously, who gives a rat's butt what others think?

Your daughter's health is all that matters. Proof or no proof--recovery from illness is the best "revenge"....then you can say "I told you so" if you want.

Do what's best for you and for her.

raesue Rookie
raesue
Posted
  • Author

My daughter's symptoms aren't that bad.... yet. She sounds like I did at her age, though, and I'm pretty miserable at this point. By experimentation with diet, we both seem much better gluten free. When our results came in, I gave her the choice whether to adhere to the diet or not. She chose chicken nuggets from burger king. It was the first gluten meal for both of us in 4 days. She decided to go gluten free after her first trip to the bathroom. The next morning she still wanted gluten food the next morning, and we both had frosted mini wheats. The evening, we lined up at the bathroom at the same time. That night, she complained of hemorrhoid like symptoms. This was two days ago. She has since been with my parents for the weekend, and my mom is to be keeping a food journal for me.

I don't think she's seriously ill at this point, but I believe she is headed that direction. It's just so much easier to be angry and defensive over your child than yourself. I'm afraid it does seem necessary to have her diagnosed to be taken seriously by the school. I realise I could just pack her lunch in future years and be good, but she's starting kindergarten where I know there will be daily snacks in the classroom.

IrishHeart Veteran
IrishHeart
Posted

There are chicken nuggets that are gluten-free. There are cereals that are gluten-free. You can eat the foods you love. As for snacks, there are Mommies on here that deal with these easily on a daily basis and I am sure they would be more than happy to share their ideas with you. Read under the sections on children, baking and cooking, and recipes, etc. and get yourself a few good books on living gluten free.

School administrators and teachers are used to dealing with kids with food allergies and food intolerances. They don't need a certificate or proof.YOU JUST TELL THEM SHE CANNOT HAVE GLUTEN. PERIOD. They HAVE to take you seriously!

Anyone she stays with? Just tell them the same the thing. You're in charge of her health.

It's not a big deal, really. Just tell them your daughter is on a gluten free diet and that you can send gluten-free cupcakes or whatever other snacks with her to school--for her and to share. I believe that play-doh is an issue as well.

This is not a difficult lifestyle. Fast food is an absolute gluten-filled landmine, however and you really have to stop eating at burger king.

You sound as if you have been living with illness yourself for quite some time, hon. Yet you keep eating foods that send you to the bathroom?...well, frankly, asking her what she wants and then watching her--and you--- race for the bathroom--is a lot like hitting yourself over the head with a giant hammer. Soon, you will realize that it feels good when you stop. ;)

Best wishes.

cahill Collaborator
cahill
Posted
I'm making sure I'm not just missing something here in that my experiences are lesser or different than those of you who can actually prove something is really going on with you.

It took me 40+ years of testing,unnecessary procedures, unnecessary drugs,unnecessary suffering and pain, 40 +years of doctors suggesting I was making things up.Some of the docs actually telling me I was crazy, a hypochondriac BEFORE I was FINALLY officially diagnosed by a wonderful,open minded GI doc.

Many here do not have a "official" diagnoses.That does not stop them from doing what they need to do to be well.

A gluten free diet does not need a doctors order nor do you need a prescription.

I would encourage you to have all the testing done on your daughter before she goes gluten free though,, it is much better to have all the testing done before she goes gluten free than having to do a gluten challenge later on

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,002
    • Most Online (within 30 mins)
      7,748
    Trish Haddock
    Newest Member
    Trish Haddock
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      i am australian. we do have plenty of substitutes, but most are very expensive compared to the originals. i believe i'll just stick to home cooked meals and not have many treats at all. it's sad but it's just so much easier. also, ive heard far too many horror stories of people ordering gluten free food from restaurants and cafés, explicitly telling servers and kitchen staff that cross contamination is a strict no go, and they still get very sick. until i find a reasonably priced fully gluten free kitchen somewhere, i am not eating out for my safety and sanity.
    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      thank you all for the kind words and support. it truly means a lot. i know i will adapt, it really just is a grieving process right now though. looking forward to feeling healthier!
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Wends · Posted

      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
×
×
  • Create New...