Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Lecithin

DianeSeekingInfo

Recommended Posts

DianeSeekingInfo Rookie
DianeSeekingInfo
Posted

Do those of you with soy intolerance also have a problem with "soy lecithin" in all cases? This ingredient seems to be in all chocolate except for Enjoy Life Bars and just curious of any of you who are normally sesitive to soy can tolerate this "soy lechithin" in small quantities? Thanks for any insight you might have.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Korwyn Explorer
Korwyn
Posted

I cannot tolerate soy lecithin either. It seemed to be a cumulative effect at first, but now I seem to react to it almost immediately, and if it is in tea, I react to it within minutes.

butterfl8 Rookie
butterfl8
Posted

If it is in tea, bad news. So far, I'm okay with chocolate coatings--so, very small amounts, in very limited doses, preferably spaced out.

-Daisy

alex11602 Collaborator
alex11602
Posted

My daughter has a problem with all soy so she can't handle it in the chocolate, but we did just see that Lindt 90% dark cocoa has no dairy or soy in the ingredients. I loved that one beforehand so we will be trying it soon for the girls and I.

DianeSeekingInfo Rookie
DianeSeekingInfo
Posted
  • Author

My daughter has a problem with all soy so she can't handle it in the chocolate, but we did just see that Lindt 90% dark cocoa has no dairy or soy in the ingredients. I loved that one beforehand so we will be trying it soon for the girls and I.

Thanks so much for these replies. Very helpful and based on this will continue to avoid. Thanks for helping me deal with craving that could have had bad consequences and keep me motivated towards healthier way of life! Will look for this Lindt bar, to be sure. :) Thanks Again!

DianeSeekingInfo Rookie
DianeSeekingInfo
Posted
  • Author

My daughter has a problem with all soy so she can't handle it in the chocolate, but we did just see that Lindt 90% dark cocoa has no dairy or soy in the ingredients. I loved that one beforehand so we will be trying it soon for the girls and I.

News Flash! Wanted to make sure you knew this--when I went to check this bar out on (Company Name Removed - They Spammed This Forum and are Banned) (I have to avoid 8 Main Allergens, not just wheat and soy)--I saw this and wated to let you know: "Safety Information

May contain traces of peanuts / tree nuts/soy bean/milk"

alex11602 Collaborator
alex11602
Posted

News Flash! Wanted to make sure you knew this--when I went to check this bar out on (Company Name Removed - They Spammed This Forum and are Banned) (I have to avoid 8 Main Allergens, not just wheat and soy)--I saw this and wated to let you know: "Safety Information

May contain traces of peanuts / tree nuts/soy bean/milk"

Thank you so much! I guess I will have to keep looking:( We are avoiding gluten, dairy, soy, eggs, fish, bananas, sweet potatoes and she can only tolerate little amounts of corn, so thank you again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DianeSeekingInfo Rookie
DianeSeekingInfo
Posted
  • Author

Thank you so much! I guess I will have to keep looking:( We are avoiding gluten, dairy, soy, eggs, fish, bananas, sweet potatoes and she can only tolerate little amounts of corn, so thank you again.

I can relate. It can be so hard to find good products that fit our needs. I found a "protein" bar called NuGo Free Dark Chocolate--it's gluten, soy and dairy free--they actually taste pretty good--decent chocolate flavor especially if you are otherwise limited and have a decent protein profile (I am vegan and have difficulty getting enough each day) they have some ohter flavors as well. I get them on Amazon. If you find any other products that are clean, please advise and I will do the same. Good luck! I feel for you!!!! :)

padma Newbie
padma
Posted

Thank you so much! I guess I will have to keep looking:( We are avoiding gluten, dairy, soy, eggs, fish, bananas, sweet potatoes and she can only tolerate little amounts of corn, so thank you again.

I am convinced since tracking the foods that I react to, that there is a BIG difference between organic and non-organic. The two main differences are pesticide residues and GMO's. Pesticide residues create a reaction of their own. Some are neurotoxins, which are some of the worst for me. PAN is a data base to look up fruits and vegetables and find out what they are sprayed with in the US. If you click on each pesticide listed you can see the symptoms caused by them. If they are from out of the country they can very well have DDT on them. That includes chocolate and coffee. DDT's half life in the body is 50 years!

An example is bananas. My mouth breaks out almost immediately with a non-organic banana. If it is truly organic (like I can find in Hawaii grown in a friend's yard) my mouth doesn't break out. Lately, some of the organic bananas I bought at WF made my mouth break out, so don't think they are really organic. Same goes for chocolate. I can tolerate organic, but not non-organic. Also, chocolate is a nut and I think I react to most nuts, some worst than others.

GMO's are another issue. I don't have proof right now, but I have noticed that more people reacting to corn which is mostly GMO now. I don't think our digestive systems were created to handle these different molecules. The newest research on GMO's shows they are showing up in Mom's blood and baby's blood. Yikes. An example is I can eat organic corn tortillas, but react to non-organic ones. Weird. It could be the organic factory has no chance of cross contamination. I am hyper sensitive celiac.

For protein, I found a great organic sprouted brown rice powder that is highly bioavailable. I love the vanilla flavor. Super clean. Found it on the internet. Also found a new sprouted tofu by Wildwood for those who tolerate soy beans. I can't usually digest regular tofu, but this one is great. I just finished my second container of it and no reactions! Wow. The sprouting turns the soy bean into a vegetable which is much easier to digest. Then they process it into tofu. So it is a very different product. My blood tests were negative for soy allergies, so think my reactions were because of the digestibility of regular tofu.

padma Newbie
padma
Posted

I cannot tolerate soy lecithin either. It seemed to be a cumulative effect at first, but now I seem to react to it almost immediately, and if it is in tea, I react to it within minutes.

Pacific Organic Foods makes a great tasting organic almond milk. Almonds are one of the heaviest sprayed crops and they are all irradiated now (new law), so organic is best. They list on the box "Gluten free". I have been drinking it for 2 or 3 months now with no reactions. Plus it is delicious and low in carbs. I switched from an organic soy milk because the soy milk had too many sugar carbs.

  • 3 weeks later...
NoodleUnit Apprentice
NoodleUnit
Posted

I seem to be getting this too. Was a gradual build up at first, but now it's within half an hour, I generally have to go lie down for a while, my body starts to ache, neuro symptoms, weakness, headaches and irritability. Most of it goes fairly quickly, but I get left with the neuro stuff for days after. I just got done yesterday by a gluten-free crispbread in fact.

I cannot tolerate soy lecithin either. It seemed to be a cumulative effect at first, but now I seem to react to it almost immediately, and if it is in tea, I react to it within minutes.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    2. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result. I am interested to know, is your gastroenterologist concerned? Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous...
    3. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease...
    4. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
    5. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,193
    • Most Online (within 30 mins)
      7,748
    Loiswxm333
    Newest Member
    Loiswxm333
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.