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Digestaqure Question

Pamela48

By Pamela48
in Coping with Celiac Disease

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Pamela48 Newbie
Pamela48
Posted

Hi everyone,

I have been following this forum for over a year now and have finally decided to register. Your post have really helped me this last year. I was diagnosed in February of 2009 at the age of 48 after having spent 7 days in the hospital. My GP thought it was IBS so she sent me to a GI who said he wanted to do an endoscopy, he took several biospy and then was happy with the results he received at our local labs so he sent them on to the UCSF and they said most defintely celiac. When I went for my results I had never even heard of celiac, he handed me a paper that kind of explained it and said to not eat anything with gluten and that was it, so I did my own research and with the help of my wonderful husband and youngest daughter I have been gluten free since, however a year later I am still having problems, so my GP sent me to new GI who had just moved into our city and he decided to do another endo and my first colonoscopy and he discovered I have a very twisted colon and my small intestine has not healed, so he told me to do more research. That is why I decided to register and ask a question. A good friend of mine discovered this website about digestaqure and it says it has this pill you take that can heal your villi. So has anyone heard of this or tried it. Your advice would be greatly appreciated.

Once again all of your post have really helped me through this last year and when other family memebers don't understand what your going through, I have always come to this forum and you all understand.

Thank you for listen,

Pam

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sa1937 Community Regular
sa1937
Posted

I pulled up the DigestaQure website and came away feeling that if sounds too good to be true, it probably is. And I couldn't find anything about it on this forum. If it was that good, I think someone here would be shouting it from the rooftops.

ETA: Corrected spelling

kareng Grand Master
kareng
Posted

I googled it on the web. Looks like lots of complaints.

I don't know why the GI just said your colon is a twisted mess. See what you can find out yourself? You haven't healed your small intestine? He won't help you any further? A "miracle cure" pill isn't what you need. You need a new GI who knows what Celiac is.

IrishHeart Veteran
IrishHeart
Posted

okay....Let me get this straight...your GI doctor told YOU to do more research?? :blink: about what??

(ARRGH...for pete's sake!! )

You need a new doctor.

There is no magic bullet, I am afraid.

The only "cure" is a gluten-free diet and healing time. (And a doctor who knows what the hell he/she is talking about.)

Tell your GP this "doctor" is not knowledgeable about celiac and you need someone else right now to look at your endoscopy/colonoscopy test results and treat you properly.

Leli Newbie
Leli
Posted

DigestaCure looks like a gell cap of aloe and prebiotics (things the good gut bacteria need.) Shouldn't hurt and might help. Depends how much they charge for it.

If you've been ill for a while and your intestinal villi haven't recovered, you'll probably be having difficulty absorbing the nutrients you would need to heal. Are you taking any supplements?

Leli Newbie
Leli
Posted

Oh! I meant to say Hi! and, I'm new here too, but I went straight to look up DigestaCure. This is a great site, isn't it? I just found it, and while I wouldn't wish these problems on anyone, I'm still glad I'm not alone with all of this.

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    • trents
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      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
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      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
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