Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestaqure Question

Pamela48

By Pamela48
in Coping with Celiac Disease

Recommended Posts

Pamela48 Newbie
Pamela48
Posted

Hi everyone,

I have been following this forum for over a year now and have finally decided to register. Your post have really helped me this last year. I was diagnosed in February of 2009 at the age of 48 after having spent 7 days in the hospital. My GP thought it was IBS so she sent me to a GI who said he wanted to do an endoscopy, he took several biospy and then was happy with the results he received at our local labs so he sent them on to the UCSF and they said most defintely celiac. When I went for my results I had never even heard of celiac, he handed me a paper that kind of explained it and said to not eat anything with gluten and that was it, so I did my own research and with the help of my wonderful husband and youngest daughter I have been gluten free since, however a year later I am still having problems, so my GP sent me to new GI who had just moved into our city and he decided to do another endo and my first colonoscopy and he discovered I have a very twisted colon and my small intestine has not healed, so he told me to do more research. That is why I decided to register and ask a question. A good friend of mine discovered this website about digestaqure and it says it has this pill you take that can heal your villi. So has anyone heard of this or tried it. Your advice would be greatly appreciated.

Once again all of your post have really helped me through this last year and when other family memebers don't understand what your going through, I have always come to this forum and you all understand.

Thank you for listen,

Pam

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sa1937 Community Regular
sa1937
Posted

I pulled up the DigestaQure website and came away feeling that if sounds too good to be true, it probably is. And I couldn't find anything about it on this forum. If it was that good, I think someone here would be shouting it from the rooftops.

ETA: Corrected spelling

kareng Grand Master
kareng
Posted

I googled it on the web. Looks like lots of complaints.

I don't know why the GI just said your colon is a twisted mess. See what you can find out yourself? You haven't healed your small intestine? He won't help you any further? A "miracle cure" pill isn't what you need. You need a new GI who knows what Celiac is.

IrishHeart Veteran
IrishHeart
Posted

okay....Let me get this straight...your GI doctor told YOU to do more research?? :blink: about what??

(ARRGH...for pete's sake!! )

You need a new doctor.

There is no magic bullet, I am afraid.

The only "cure" is a gluten-free diet and healing time. (And a doctor who knows what the hell he/she is talking about.)

Tell your GP this "doctor" is not knowledgeable about celiac and you need someone else right now to look at your endoscopy/colonoscopy test results and treat you properly.

Leli Newbie
Leli
Posted

DigestaCure looks like a gell cap of aloe and prebiotics (things the good gut bacteria need.) Shouldn't hurt and might help. Depends how much they charge for it.

If you've been ill for a while and your intestinal villi haven't recovered, you'll probably be having difficulty absorbing the nutrients you would need to heal. Are you taking any supplements?

Leli Newbie
Leli
Posted

Oh! I meant to say Hi! and, I'm new here too, but I went straight to look up DigestaCure. This is a great site, isn't it? I just found it, and while I wouldn't wish these problems on anyone, I'm still glad I'm not alone with all of this.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. MoniqueCham
      - MoniqueCham replied to MoniqueCham's topic in Related Issues & Disorders
      3

      Celiac Disease, Lymphocytic colitis and Bowel rupture

      Thanks for your reply Scott! A long time ago I realized I didn’t fit neatly into uncomplicated celiac disease. Over the years I’ve been diagnosed and treated for SIBO, pancreatic insufficiency and diagnosed with Stage 2 liver fibrosis. I think all the complications occurred because of the refractory celiac disease. When I hit menopause my gut issues seemed to ...
    2. HelenH
      - HelenH replied to HelenH's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Malt vinegar

      Thank.you both
    3. Scott Adams
      - Scott Adams replied to HelenH's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Malt vinegar

      Yes, unfortunately malt vinegar can definitely trigger a strong reaction in people with celiac disease. Malt vinegar is typically made from barley, which contains gluten, and unlike distilled white vinegar, it is not considered gluten-free. Even a small amount — especially if you’ve been strictly gluten-free for years — can cause a more intense reaction becau...
    4. Scott Adams
      - Scott Adams replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      55

      Supplements for those Diagnosed with Celiac Disease

      A diagnosis of Refractory Celiac Disease Type 2 is a lot to absorb, especially if you feel like the severity wasn’t clearly communicated earlier. It’s understandable to feel shocked and frustrated. RCD Type 2 does require close specialist care, often with a gastroenterologist who has experience managing complex celiac cases, and sometimes coordination wit...
    5. Scott Adams
      - Scott Adams replied to MoniqueCham's topic in Related Issues & Disorders
      3

      Celiac Disease, Lymphocytic colitis and Bowel rupture

      I’m so sorry you’ve been through all of that — that’s an incredibly complex history. While methotrexate is widely used at low weekly doses for autoimmune conditions, it can, in rare cases, cause serious gastrointestinal side effects, including ulceration, mucosal injury, or even perforation. That said, a spontaneous sigmoid rupture from methotrexate at 15 m...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,550
    • Most Online (within 30 mins)
      7,748
    Franie Wehrung
    Newest Member
    Franie Wehrung
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • MoniqueCham
      Celiac Disease, Lymphocytic colitis and Bowel rupture

      By MoniqueCham · Posted

      Thanks for your reply Scott! A long time ago I realized I didn’t fit neatly into uncomplicated celiac disease. Over the years I’ve been diagnosed and treated for SIBO, pancreatic insufficiency and diagnosed with Stage 2 liver fibrosis. I think all the complications occurred because of the refractory celiac disease. When I hit menopause my gut issues seemed to calm down and because I was stable I made the mistake of not following up with my gastroenterologist. Then other autoimmune problems flared and I tried the methotrexate. It worked like a charm for my skin condition… then my sigmoid colon ruptured. Strange but my autoimmune skin condition remains in remission after 6 months off the medication. We have a very long waiting list to get back into see my GI doctor… I was an emergency referral but am still waiting 6 months after the perforation. I need more surgery to fix a fistula that has formed and to reconnect my colon… I have a colostomy at present. I became a dietitian who specializes in bowel diseases but have never met anyone who’s had so many complications with celiac disease. I have a brother and son who also have been diagnosed. My mother had 4 autoimmune diseases including a vasculitis that eventually resulted in her death and it was my father who had the HLA DQ2 gene. Think I inherited some tendencies from each of them. Thanks again for your response… it feels a little lonely dealing with GI issues when I work so hard to remain gluten free.   
    • HelenH
      Malt vinegar

      By HelenH · Posted

      Thank.you both
    • Scott Adams
      Malt vinegar

      By Scott Adams · Posted

      Yes, unfortunately malt vinegar can definitely trigger a strong reaction in people with celiac disease. Malt vinegar is typically made from barley, which contains gluten, and unlike distilled white vinegar, it is not considered gluten-free. Even a small amount — especially if you’ve been strictly gluten-free for years — can cause a more intense reaction because your body is no longer accustomed to exposure. Many people report significant symptoms after accidental ingestion, including abdominal pain, diarrhea, fatigue, or flu-like feelings. You’re not alone in that experience. It may help to be especially cautious with salad dressings, chips, sauces, and restaurant foods, where malt vinegar is sometimes used.
    • Scott Adams
      Supplements for those Diagnosed with Celiac Disease

      By Scott Adams · Posted

      A diagnosis of Refractory Celiac Disease Type 2 is a lot to absorb, especially if you feel like the severity wasn’t clearly communicated earlier. It’s understandable to feel shocked and frustrated. RCD Type 2 does require close specialist care, often with a gastroenterologist who has experience managing complex celiac cases, and sometimes coordination with hematology because of the immune cell changes involved. Focusing on nutrition is absolutely important — many people benefit from working with a registered dietitian who specializes in celiac disease to help address malabsorption, weight loss, and vitamin or mineral deficiencies. You’re doing the right thing by seeking information and support. Make sure you feel comfortable asking your care team direct questions about your biopsy results, treatment plan, and monitoring strategy — you deserve clarity and a coordinated approach.
    • Scott Adams
      Celiac Disease, Lymphocytic colitis and Bowel rupture

      By Scott Adams · Posted

      I’m so sorry you’ve been through all of that — that’s an incredibly complex history. While methotrexate is widely used at low weekly doses for autoimmune conditions, it can, in rare cases, cause serious gastrointestinal side effects, including ulceration, mucosal injury, or even perforation. That said, a spontaneous sigmoid rupture from methotrexate at 15 mg weekly is extremely uncommon. In people with celiac disease — especially refractory celiac — there can already be underlying intestinal inflammation or altered mucosal integrity, which might theoretically increase vulnerability, but there isn’t strong published evidence clearly linking stable celiac disease to a markedly higher risk of methotrexate-related bowel perforation. Other factors such as concurrent inflammation, vascular compromise, infection, steroid use, or microscopic colitis may also contribute. It would be reasonable to review the case with a gastroenterologist familiar with refractory celiac and possibly a rheumatologist, and to report the event as a potential adverse drug reaction. I’d also be very interested to hear if others in the community have had similar experiences.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.