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Digestaqure Question

Pamela48

By Pamela48
in Coping with Celiac Disease

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Pamela48 Newbie
Pamela48
Posted

Hi everyone,

I have been following this forum for over a year now and have finally decided to register. Your post have really helped me this last year. I was diagnosed in February of 2009 at the age of 48 after having spent 7 days in the hospital. My GP thought it was IBS so she sent me to a GI who said he wanted to do an endoscopy, he took several biospy and then was happy with the results he received at our local labs so he sent them on to the UCSF and they said most defintely celiac. When I went for my results I had never even heard of celiac, he handed me a paper that kind of explained it and said to not eat anything with gluten and that was it, so I did my own research and with the help of my wonderful husband and youngest daughter I have been gluten free since, however a year later I am still having problems, so my GP sent me to new GI who had just moved into our city and he decided to do another endo and my first colonoscopy and he discovered I have a very twisted colon and my small intestine has not healed, so he told me to do more research. That is why I decided to register and ask a question. A good friend of mine discovered this website about digestaqure and it says it has this pill you take that can heal your villi. So has anyone heard of this or tried it. Your advice would be greatly appreciated.

Once again all of your post have really helped me through this last year and when other family memebers don't understand what your going through, I have always come to this forum and you all understand.

Thank you for listen,

Pam

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sa1937 Community Regular
sa1937
Posted

I pulled up the DigestaQure website and came away feeling that if sounds too good to be true, it probably is. And I couldn't find anything about it on this forum. If it was that good, I think someone here would be shouting it from the rooftops.

ETA: Corrected spelling

kareng Grand Master
kareng
Posted

I googled it on the web. Looks like lots of complaints.

I don't know why the GI just said your colon is a twisted mess. See what you can find out yourself? You haven't healed your small intestine? He won't help you any further? A "miracle cure" pill isn't what you need. You need a new GI who knows what Celiac is.

IrishHeart Veteran
IrishHeart
Posted

okay....Let me get this straight...your GI doctor told YOU to do more research?? :blink: about what??

(ARRGH...for pete's sake!! )

You need a new doctor.

There is no magic bullet, I am afraid.

The only "cure" is a gluten-free diet and healing time. (And a doctor who knows what the hell he/she is talking about.)

Tell your GP this "doctor" is not knowledgeable about celiac and you need someone else right now to look at your endoscopy/colonoscopy test results and treat you properly.

Leli Newbie
Leli
Posted

DigestaCure looks like a gell cap of aloe and prebiotics (things the good gut bacteria need.) Shouldn't hurt and might help. Depends how much they charge for it.

If you've been ill for a while and your intestinal villi haven't recovered, you'll probably be having difficulty absorbing the nutrients you would need to heal. Are you taking any supplements?

Leli Newbie
Leli
Posted

Oh! I meant to say Hi! and, I'm new here too, but I went straight to look up DigestaCure. This is a great site, isn't it? I just found it, and while I wouldn't wish these problems on anyone, I'm still glad I'm not alone with all of this.

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      By Scott Adams · Posted

      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
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      By trents · Posted

      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
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    • MicG
      Test interpretations

      By MicG · Posted

      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
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      By trents · Posted

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