Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestaqure Question

Pamela48

By Pamela48
in Coping with Celiac Disease

Recommended Posts

Pamela48 Newbie
Pamela48
Posted

Hi everyone,

I have been following this forum for over a year now and have finally decided to register. Your post have really helped me this last year. I was diagnosed in February of 2009 at the age of 48 after having spent 7 days in the hospital. My GP thought it was IBS so she sent me to a GI who said he wanted to do an endoscopy, he took several biospy and then was happy with the results he received at our local labs so he sent them on to the UCSF and they said most defintely celiac. When I went for my results I had never even heard of celiac, he handed me a paper that kind of explained it and said to not eat anything with gluten and that was it, so I did my own research and with the help of my wonderful husband and youngest daughter I have been gluten free since, however a year later I am still having problems, so my GP sent me to new GI who had just moved into our city and he decided to do another endo and my first colonoscopy and he discovered I have a very twisted colon and my small intestine has not healed, so he told me to do more research. That is why I decided to register and ask a question. A good friend of mine discovered this website about digestaqure and it says it has this pill you take that can heal your villi. So has anyone heard of this or tried it. Your advice would be greatly appreciated.

Once again all of your post have really helped me through this last year and when other family memebers don't understand what your going through, I have always come to this forum and you all understand.

Thank you for listen,

Pam

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sa1937 Community Regular
sa1937
Posted

I pulled up the DigestaQure website and came away feeling that if sounds too good to be true, it probably is. And I couldn't find anything about it on this forum. If it was that good, I think someone here would be shouting it from the rooftops.

ETA: Corrected spelling

kareng Grand Master
kareng
Posted

I googled it on the web. Looks like lots of complaints.

I don't know why the GI just said your colon is a twisted mess. See what you can find out yourself? You haven't healed your small intestine? He won't help you any further? A "miracle cure" pill isn't what you need. You need a new GI who knows what Celiac is.

IrishHeart Veteran
IrishHeart
Posted

okay....Let me get this straight...your GI doctor told YOU to do more research?? :blink: about what??

(ARRGH...for pete's sake!! )

You need a new doctor.

There is no magic bullet, I am afraid.

The only "cure" is a gluten-free diet and healing time. (And a doctor who knows what the hell he/she is talking about.)

Tell your GP this "doctor" is not knowledgeable about celiac and you need someone else right now to look at your endoscopy/colonoscopy test results and treat you properly.

Leli Newbie
Leli
Posted

DigestaCure looks like a gell cap of aloe and prebiotics (things the good gut bacteria need.) Shouldn't hurt and might help. Depends how much they charge for it.

If you've been ill for a while and your intestinal villi haven't recovered, you'll probably be having difficulty absorbing the nutrients you would need to heal. Are you taking any supplements?

Leli Newbie
Leli
Posted

Oh! I meant to say Hi! and, I'm new here too, but I went straight to look up DigestaCure. This is a great site, isn't it? I just found it, and while I wouldn't wish these problems on anyone, I'm still glad I'm not alone with all of this.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      321

      Terrible Neurological Symptoms

      The conversion factor for mg/dl and mmol/L is 18. So 5 = 90, 7 = 126, and so on. In the US, blood sugar regulations now are the same as what we use in the UK except for this difference in units. In terms of how they compare in the past, the numbers today that I quoted are stricter than they used to be. Blood sugar numbers for +1 and +2 hour postprandial are...
    2. Known1
      - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      18

      Diagnosed Marsh stage 3C in January 2026

      @knitty kitty For me, the flushing lasts about 10 hours and not just 60-90 minutes after consuming the vitamins. I am 10-days into taking this already. My urine is neon colored around the clock and I drink between 1/2 to 3/4 of a gallon of water per day. I'll stick with 2 a day for now, but am honestly quite hesitant to do so. I am curious, where...
    3. knitty kitty
      - knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
      18

      Diagnosed Marsh stage 3C in January 2026

      Oh, dear, the niacin flush! I've heard repeatedly that the worse the flush, the more your body needs the niacin. If you stick with it, the flushing will not be as bad in a few days. Another way to correct low Niacin level is to take 100 mg of Niacin (nicotinic acid, the flushing kind) every three hours for several days. I've done this myself, and...
    4. knitty kitty
      - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      321

      Terrible Neurological Symptoms

      @HectorConvector, Step off the gas. I'm in the U. S. That was what I remember my doctor telling me thirty years ago. Things may have changed since then. If I've "misremembered," I apologize. I'm human. Things are different on the other side of the pond. Here we go by mg/dl. The smaller incremental changes are more noticeable using mg/dl....
    5. Known1
      - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      18

      Diagnosed Marsh stage 3C in January 2026

      @knitty kitty Holy smokes, that Life Extension B-Complex is burning me up. My multi-vitamin already has 25mg of Niacin. The b-complex adds another 100mg on top of that. My face, neck, and ears look like the Cardinal I use for my profile pic. I have been on the b-complex for 10-days now and it seems to get a bit worse with each passing day. I think I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,590
    • Most Online (within 30 mins)
      7,748
    Danny Mc
    Newest Member
    Danny Mc
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      The conversion factor for mg/dl and mmol/L is 18. So 5 = 90, 7 = 126, and so on. In the US, blood sugar regulations now are the same as what we use in the UK except for this difference in units. In terms of how they compare in the past, the numbers today that I quoted are stricter than they used to be. Blood sugar numbers for +1 and +2 hour postprandial are measured from the beginning of a meal in these official numbers. In regards to the thiamin supplement I have: it says it is thiamine mononitrate. I had not until now been aware there were different types (it seems I find that is the case with everything, including the magnesium I take!) and this one I have is the only one available in my local stores. I know it makes my pee smell strong when I take it which would seem to indicate my body is absorbing enough that the remainder gets ejected, but I could be wrong. Of course, I'm willing to try anything reasonable to correct this long standing condition, whatever it might be so I will try and get thiamin hydrochloride. Back on the note of diabetes (potentially) I haven't had the blood test for a while and I did notice ingrown toenail type infections a few times in the last 3 years that kept coming back. I heard that diabetes caused high urination. But eating sugar and elevated blood sugar causes the opposite in me. If I eat a lot of sugar I retain water, like big time. If I ate a bunch o sugar in the afternoon say, I can produce little enough urine that I can go over 12 hours and have nowhere near enough urine to need to void in that time or longer which seems abnormal.       
    • Known1
      Diagnosed Marsh stage 3C in January 2026

      By Known1 · Posted

      @knitty kitty For me, the flushing lasts about 10 hours and not just 60-90 minutes after consuming the vitamins.  I am 10-days into taking this already.  My urine is neon colored around the clock and I drink between 1/2 to 3/4 of a gallon of water per day.  I'll stick with 2 a day for now, but am honestly quite hesitant to do so. I am curious, where are you reading "the worse the flush, the more your body needs the niacin"?  I have been searching for that, but haven't found that anywhere.  
    • knitty kitty
      Diagnosed Marsh stage 3C in January 2026

      By knitty kitty · Posted

      Oh, dear, the niacin flush!  I've heard repeatedly that the worse the flush, the more your body needs the niacin.  If you stick with it, the flushing will not be as bad in a few days.   Another way to correct low Niacin level is to take 100 mg of Niacin (nicotinic acid, the flushing kind) every three hours for several days.  I've done this myself, and found the flushing is very short lived.   Stay hydrated.  The B's are water soluble, so if not needed, they'll be excreted. Hang tight, you'll be okay!
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      @HectorConvector, Step off the gas. I'm in the U. S.  That was what I remember my doctor telling me thirty years ago.  Things may have changed since then.  If I've "misremembered," I apologize.  I'm human.  Things are different on the other side of the pond.  Here we go by mg/dl.  The smaller incremental changes are more noticeable using mg/dl.   Also, I adopted a Ketogenic diet.  Ketogenic diets don't spike blood glucose as much, and therefore return to fasting levels sooner.  My own experience is my postprandial blood glucose level returned to fasting levels an hour after the end of a meal on a Ketogenic diet.  I was asking if the thiamine you take is thiamine hydrochloride or Benfotiamine or Thiamine TTFD.  Thiamine Mononitrate is not well absorbed nor utilized by the body.  I learned that amounts larger than 100 mgs of thiamine hydrochloride needs to be taken in thiamine deficiency.   500mgs thiamine hydrochloride is recommended by the World Health Organization for several days and look for health improvement.  Thiamine is safe and nontoxic even in higher amounts. When thiamine is taken in high doses, there's a big change in energy availability, especially in the brain, where pain is registered.  A twenty percent increase in dietary thiamine results in an eighty percent increase in brain function.  Thiamine has analgesic properties.   I learned about high dose thiamine from Dr. Derek Lonsdale and Dr. Chandler Marrs through their website hormonesmatter.com.  I have taken high dose thiamine to correct my deficiency about fifteen years ago.  I could feel myself dying, I was so sick and in pain.  I was grasping at straws.  No harm, no foul, just to try it and see, right?  I tried it and that made all the difference.  High dose thiamine made astounding health improvements within a very short period of time for me.  I wonder if 500 mg of thiamine hydrochloride would have the same effect on you.
    • Known1
      Diagnosed Marsh stage 3C in January 2026

      By Known1 · Posted

      @knitty kitty Holy smokes, that Life Extension B-Complex is burning me up.  My multi-vitamin already has 25mg of Niacin.  The b-complex adds another 100mg on top of that.  My face, neck, and ears look like the Cardinal I use for my profile pic.  I have been on the b-complex for 10-days now and it seems to get a bit worse with each passing day.  I think I am going to drop down to taking 1/2 of the serving size.  In other words, 1 capsule instead of 2.  Hopefully dropping to one does the trick. Have you noticed any side effects from that B-complex?  It is WAY over the daily recommended values: Thanks for your time, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.