Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Would Rice Chex Make My Mouth Burn?

kagm

Recommended Posts

kagm Newbie
kagm
Posted

I feel like even though it is gluten free, I am still feeling the pain of gluten food. When I eat bread my mouth burns and now when I eat rice products (not plain rice) like Rice Chex, Rice cakes, etc my mouth burns too. I know it's only been like 4 days since I went back on gluten free food after my endoscopy, but I still feel TERRIBLE. Does anyone have good starting places...recommended books or blogs that suggest different daily menus? Should I just do chicken, veggies, and fruit for a while?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


viviendoparajesus Apprentice
viviendoparajesus
Posted

Since you are eating processed rice there can be cross contamination with gluten especially since chex makes wheat chex too. real rice would probably be better than the processed rice. though there is something to be said for avoiding all grains till you have time to heal. dr bateson-koch's book recommends a mostly raw diet and limiting grains, nuts, and beans since they have to be cooked. another issue with rice is you could be allergic. because of the damage gluten did to my gi tract i have food that is not digested and leaks out so i developed an allergy to rice, but i hope it will be ok once i am healed because i have read that properly digested food is rendered nonallergenic. another issue with rice is cross reactivity. i tested fine for rice but for yeast and buckwheat my body acts like it is gluten. i feel good eating veggies, chicken, fish, fruit, nuts, beans with limited amounts of grain. i am still trying to figure out what works best. i am not sure of a sight that suggest possible different daily menus. it really stinks that to get the positive lab requires exposure to and damage from gluten. best wishes!

psawyer Proficient
psawyer
Posted

Wheat Chex are made in a different facility from the other Chex cereals. The facility where the gluten-free Chex products are made does not make any products which contain gluten.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Since you are eating processed rice there can be cross contamination with gluten especially since chex makes wheat chex too. real rice would probably be better than the processed rice. though there is something to be said for avoiding all grains till you have time to heal. dr bateson-koch's book recommends a mostly raw diet and limiting grains, nuts, and beans since they have to be cooked. another issue with rice is you could be allergic. because of the damage gluten did to my gi tract i have food that is not digested and leaks out so i developed an allergy to rice, but i hope it will be ok once i am healed because i have read that properly digested food is rendered nonallergenic. another issue with rice is cross reactivity. i tested fine for rice but for yeast and buckwheat my body acts like it is gluten. i feel good eating veggies, chicken, fish, fruit, nuts, beans with limited amounts of grain. i am still trying to figure out what works best. i am not sure of a sight that suggest possible different daily menus. it really stinks that to get the positive lab requires exposure to and damage from gluten. best wishes!

I thought the gluten-free Chex varieties were made in a separate facility from their gluten containing chex? Perhaps I am mistaken.

For the OP: perhaps you are sensitive to something else in the cereal like the BHT chemical used to preserve it. It never hurts to go all natural however and not eat processed foods. Especially in the beginning of your diet--it will speed your recovery.

IrishHeart Veteran
IrishHeart
Posted

The gluten-free Chex may not be the problem.

My mouth/throat burns all the time. It can be caused by a B- vitamin deficiency (several B vitamins, in fact) due to malabsorption and may take some time to clear up. Several doctors--and some folks on here--told me this and I have read it in various articles. The mouth, throat, esophagus are all impacted by inflammation too--and may burn.

It could also be a reaction to preservatives-- as GFManna suggests. A whole foods diet works for many of us in the beginning. Also, many avoid dairy.

Unfortunately, healing the small intestine takes a long time--and various symptoms take longer to disappear. Sorry. I wish mine would "just go already" too!! :angry:

And even though some people can tolerate a raw food diet (as suggested above) others simply cannot digest raw veggies and/or fruits. I still cannot digest raw veggies.

Here's the thing---Everyone's GI tract is different and you will have to try various foods to see what works best for YOU.

Variety in your diet is good.

Since you asked...

A few good books for "newbies" are:

Living Gluten Free for Dummies--Danna Korn

The First Year / Celiac Disease--Jules Dowler Shepard

and if your insurance covers it, a nutritionist who understands celiac may be able to help you with a dietary plan.

Hang in there!

IrishHeart Veteran
IrishHeart
Posted

I thought the gluten-free Chex varieties were made in a separate facility from their gluten containing chex? Perhaps I am mistaken.

For the OP: perhaps you are sensitive to something else in the cereal like the BHT chemical used to preserve it. It never hurts to go all natural however and not eat processed foods. Especially in the beginning of your diet--it will speed your recovery.

RE: the BHT

This guy has an opinion about the BHT they use as a preservative in the chex--as opposed to it being the gluten. see what you think.

http://gluten-free-b...ontroversy.html

  • 3 weeks later...
LetGoddoit Newbie
LetGoddoit
Posted

I was wondering ... Even though some cereals say they are gluten free..does it mean they are wheat free?...Ive heard the mixed tocopheryl in cereals is made from wheat...anyone know?

I can eat a gluten free cereal and have symptoms for days and look on box and see the words mixec tocopheryl.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Coinkey Apprentice
Coinkey
Posted

I was wondering ... Even though some cereals say they are gluten free..does it mean they are wheat free?...Ive heard the mixed tocopheryl in cereals is made from wheat...anyone know?

I can eat a gluten free cereal and have symptoms for days and look on box and see the words mixec tocopheryl.

A quick internet search brings me to the conclusion that tocopherols can be derived from many different sources- the main ones being soy and wheat. Either your gluten-free cereal isn't truly gluten-free or you have a problem with soy derivatives as well.

T.H. Community Regular
T.H.
Posted

I was wondering ... Even though some cereals say they are gluten free..does it mean they are wheat free?...Ive heard the mixed tocopheryl in cereals is made from wheat...anyone know?

I can eat a gluten free cereal and have symptoms for days and look on box and see the words mixec tocopheryl.

Is the burning new? If it is, I'd start keeping a food journal and noting when this happens, and keep track of the ingredients. If you are in the United States, I believe corn is the most common source of tocopherols, actually, although I wouldn't swear to that. In the EU, I think wheat is a more common source.

The burning sounds a lot like an allergic reaction, yeah, but it could be to anything, honestly. Not usually a celiac reaction. And a lot of celiacs start reacting more to foods they were allergic to before, once they go gluten free.

That happened to me, where I had no idea I was allergic to foods - no burning mouth, no hives, nothing. Now, I get burning mouth with some foods, and pain and other issues with others that now test as an allergy.

Part of the problem can come if these are more prevalent in gluten free foods, or if they are less processed in gluten free foods (so more allergens are present). That was my case with sugar cane, which is less processed in most gluten free foods, and eating gluten free processed foods would cause me a lot more problems.

Potatoes, gums(guar, xanthan), corn, eggs, and sugar cane are typically more prevalent in gluten-free foods than in their gluten filled equivalents.

psawyer Proficient
psawyer
Posted

If the tocopherols were derived from wheat, then that would have to be disclosed on the label as "wheat" under US federal law (FALCPA). Perhaps you have an issue with tocopherols that is not related to gluten.

LetGoddoit Newbie
LetGoddoit
Posted

Ive read so much about if its gluten free doesnt always mean wheat free.

That a product can be gluten free and have wheat in it as long as they take the gluten out of the wheat.

This is so confusing. Cause I only have a flare if I have had wheat. Mine are severe so I know when it happens..thats forsure.:((

color-me-confused Explorer
color-me-confused
Posted

I've found Rice Chex to be a rather abrasive cereal. It needs a good soaking in milk otherwise I find it's very tough on the tongue and inner cheeks.

modiddly16 Enthusiast
modiddly16
Posted

I've never heard of a prodcut claiming to be gluten free that has wheat in it, do you have any examples? I have heard of a product that can claim to be wheat free but isn't gluten free but never the other way around.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748
    Miyasato
    Newest Member
    Miyasato
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.