Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy A Bigger Problem After Going Gluten-Free?


TexasJenn

Recommended Posts

TexasJenn Newbie

Has anyone had a bigger problem with dairy after going gluten-free? I have been gluten-free for 2 1/2 weeks after being diagnosed with Celiac, and dairy has my stomach more upset than ever. My Celiac symptoms were not GI related, but I have been lactose intolerant since about age 10. I stopped drinking straight milk at that time, but still cook with it, eat cheese and yogurt daily, and occassionally would have a glass of milk or milk in my cereal. The straight milk sends me right to the bathroom (sorry if TMI) but it was easily dealt with, and I only considered it a minor problem. Now it seems any milk whatsoever brings on more stomach pains and bathroom issues than I'm used to dealing with. I was just wondering if it had to do with going gluten-free.

I guess I'll give up dairy for now, too (except yogurt and cheese... can't live without those!). I know that Celiac causes lactose intolerance, and that after my intestines have healed I can probably reintroduce dairy. I was just curious if it is normal to have MORE problems after going gluten-free.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

Has anyone had a bigger problem with dairy after going gluten-free? I have been gluten-free for 2 1/2 weeks after being diagnosed with Celiac, and dairy has my stomach more upset than ever. My Celiac symptoms were not GI related, but I have been lactose intolerant since about age 10. I stopped drinking straight milk at that time, but still cook with it, eat cheese and yogurt daily, and occassionally would have a glass of milk or milk in my cereal. The straight milk sends me right to the bathroom (sorry if TMI) but it was easily dealt with, and I only considered it a minor problem. Now it seems any milk whatsoever brings on more stomach pains and bathroom issues than I'm used to dealing with. I was just wondering if it had to do with going gluten-free.

I guess I'll give up dairy for now, too (except yogurt and cheese... can't live without those!). I know that Celiac causes lactose intolerance, and that after my intestines have healed I can probably reintroduce dairy. I was just curious if it is normal to have MORE problems after going gluten-free.

Thanks!

Some of us have had to give up dairy products after going gluten-free. Maybe I had a lactose problem before but it definitely became more pronounced. I did have GI problems, which led to my diagnosis.

I still use Lactaid milk but have started eating more cheese, especially hard cheeses like cheddar. While they work for some people, Lactaid tablets never did much for me. Oh, how I missed cheese, much worse than giving up gluten. One of these days I'm going to test milk again (when I don't have to go anywhere for a couple of days).

You might want to give up dairy for now and then introduce it later as many are able to do that successfully after they have healed.

Monklady123 Collaborator

I did. But for me it's the lactose not the casein. So I can have yogurt and cheese with no problem. I've discovered that I can have about 3/4 cup of milk if I take a Lactaid pill. So I still have that once in awhile on my cereal. You might try that before you give it up entirely.

mushroom Proficient

I had to give up milk, cream, ice cream and frozen yogurt as a result of gluten, but can eat them all just fine now.

GFinDC Veteran

At 2.5 weeks your body has not really adjusted to the diet yet. Your diet has most likely changed significantly, and that means your gut flora are changing, your intestines are possibly healing and things are not settled down. So giving the dairy a pass for a while (3 months) is not a bad idea. If it helps, keep it out.

georgie Enthusiast

I oly discovered I was lactose intolerant after giving up Gluten. C was my symptom of Gluten and D is my symptom of Lactose so they cancelled ach other out pre dx ;)

I gave up dairy for 2 years ... longest years of my life ! Then I had hydrogen breath tests which showed it was only lactose. I am fine with butter, cream, hard cheeses and lactose free milk.

anabananakins Explorer

I only realised that I had a problem with lactose after I sent gluten free, though I did know from childhood that weetbix (breakfast cereal) and milk made me bloated. Once I stopped having non-stop stomach aches from gluten I realised that the yoghurt I was eating was the culprit with the occasional but bad stomach ache i still experienced. I drink a lot of lactose free milk, and eat cheddar cheese, but I don't really eat much other dairy anymore. It helps with weight loss since I used to want to eat massive amounts of greek yoghurt (it worked out quite well that all the things I used to crave are now verboten!) Still, it's not anywhere near as bad as a gluten reaction so I'll splurge occasionally on icecream or a smoothie.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Harpgirl Explorer

I did. But for me it's the lactose not the casein. So I can have yogurt and cheese with no problem. I've discovered that I can have about 3/4 cup of milk if I take a Lactaid pill. So I still have that once in awhile on my cereal. You might try that before you give it up entirely.

I'm confused about lactose and casien. Twice in my life (not now), I was lactose intolerant. I had terrible cramping and bloating. I labeled it as "severe" because I couldn't eat milk, butter, cheese, or even a bite of bread without a reaction (I realize now, that the bread issue could have been the gluten). My mom is lactose intolerant but can eat butter, cottage cheese, yogurt, etc.

What exactly is the difference between lactose and casein? Did I just have a reaction to both at the same time?

GFinDC Veteran

Lactose is a sugar, casein is a protein. The fun part is, you can have a problem with one or the other or both. Most hard cheese would be mainly protein, (casein) as the lactose is et up during the making of the cheese. So you can try eating hard cheeses and see if they are ok. You may end up being able to eat cheese with no problem, but not able to eat milk, which has lactose sugar in it. There is no way to tell without testing yourself. But it is not good to try such a test until you have your system pretty settled down and stable. And are good with the gluten-free diet and understand how to eat right. You might want to do a search on elimination diets and get the general idea first. They are a system of adding foods in a controlled manner so that you can understand the ones that cause problems. many of these food intolerance issues are not easy to identify.

TexasJenn Newbie

Thanks, everyone. I may try the Lactaid milk and see if that helps. I never thought about the lactose symptoms and the celiac symptoms opposing each other and cancelling each other out. Perhaps that is what I had going on, so now that I'm gluten-free the lactose symptoms are more severe. Interesting...

Thanks again! I'm so new at this, I have much to learn!

Monklady123 Collaborator

Thanks, everyone. I may try the Lactaid milk and see if that helps. I never thought about the lactose symptoms and the celiac symptoms opposing each other and cancelling each other out. Perhaps that is what I had going on, so now that I'm gluten-free the lactose symptoms are more severe. Interesting...

Thanks again! I'm so new at this, I have much to learn!

One thing about the Lactaid milk -- I found it to be too sweet. I forget why that is...someone did explain it to me, but I can't remember. :P But I just couldn't drink it, even on cereal. So now I use regular skim milk and take a Lactaid pill as soon as I start eating. This works well, as long as I don't have too much milk at once. 3/4-1 cup is my limit, but that's plenty for a bowl of cereal. :)

Harpgirl Explorer

Lactose is a sugar, casein is a protein. The fun part is, you can have a problem with one or the other or both. Most hard cheese would be mainly protein, (casein) as the lactose is et up during the making of the cheese. So you can try eating hard cheeses and see if they are ok. You may end up being able to eat cheese with no problem, but not able to eat milk, which has lactose sugar in it. There is no way to tell without testing yourself. But it is not good to try such a test until you have your system pretty settled down and stable. And are good with the gluten-free diet and understand how to eat right. You might want to do a search on elimination diets and get the general idea first. They are a system of adding foods in a controlled manner so that you can understand the ones that cause problems. many of these food intolerance issues are not easy to identify.

Ah! Thanks for the info. :) If it happens to me again, I'll be prepared to do some experimenting...

anabananakins Explorer

One thing about the Lactaid milk -- I found it to be too sweet. I forget why that is...someone did explain it to me, but I can't remember. :P But I just couldn't drink it, even on cereal. So now I use regular skim milk and take a Lactaid pill as soon as I start eating. This works well, as long as I don't have too much milk at once. 3/4-1 cup is my limit, but that's plenty for a bowl of cereal. :)

Hahaha, the sweetness is my favourite part! I am an avid milk drinker now :-)

Someone explained it to me too...but I also do not remember. Something about the different sugar it ends up containing (the enzyme changes it from lactose to something?)

I can have small amounts of regular milk in tea if need be, but it doesn't taste right anymore :)

sa1937 Community Regular

I've found Lactaid milk to be too sweet, too. Works fine for me using it on cereal or in recipes for baked goods, which usually have a bit of sugar in them anyway (thinking bread here). Other than that, I wouldn't want to use it in something savory and I really don't drink milk by itself.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      46

      Supplements for those Diagnosed with Celiac Disease

    2. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

    3. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    4. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    5. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.