Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casin Allergy? Advice On Cyrex Labs? What To Do?!


That GF Girl

Recommended Posts

That GF Girl Rookie

Hello

I have been gluten-free for about year. Brain fog and most digestive issues cleared up. Have adrenal insuff so have to eat lots of protein and that has included dairy to sustain energy and take tons of supplements.

Thought the dairy might be giving me probs so gave up dairy for a couple weeks about 6 mos ago and didnt notice any chgs. I do eat lots of dairy and am wondering if maybe the dairy is inhibiting all the supplements I am taking. Thus, I am not getting as favorable results to them and not absorbing so still dealing with fatigue. The other issue is I am having stomach issues again. Just plain upset nervous stomach sometimes crampy and sometimes loose stools. I have to eat every 3 hrs with hypoglycemic symp so thats where the dairy was so convenient along with my other foods. I eat nuts too but wonder if they too are bothering me. Has anyone used Cyrex labs and the panel 4 to determine if there are other foods that bother some gluten sensitive people? It is an expensive test and was recommended for me to have done. I cant imagaine no butter- How do I bake gluten-free? And no Yougert or cottage cheese? These are main stays in my refrigerator.

Need a hand with this one.. the Cyrex test deals with some specific foods like casin, quoina, chocolate, potatoes etc I have had "normal " lab allergy testing and it showed about 8 years ago a milk allergy and every else too. Then about 2 yrs ago hardly allergic to anything including milk how are normal lab tests via blood for accuracy?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RollingAlong Explorer

The blood tests are known to have a high rate of false positives. I have not heard a lot about the Cyrex tests, but I doubt they are any more accurate. I think these sorts of tests can be helpful if some one needs encouragement to look into dietary issues, ad they can give you a place to start, but you still have to confirm the results with an elimination and challenge.

Consider your supplements too. I think they are not always "gluten free enough" for some people. My spouse feels much better without them. At the very least, stop them all for a week and add them back in, one at a time, very slowly, to check for problems.

If you do get rid of dairy, you could try ghee (butter melted and the protein, casein, removed). It has vitamin K2, which is important for your bone health and mineral metabolism in general.

I have done some dairy free baking; check out Elana's Pantry blog ora vegan baking cookbook. I am not a big baker, though. The Paleo diet seems to suit my spouse.

good luck; keep us posted!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.