Thanks For The Support

[Jenniferxgfx]

I'm new here, but I've been reading for awhile and not really posted myself. Your experiences and insight have been really helpful to me.

I've come to realize that gluten (wheat in general) is bad for me, and it's taken some time to get in to see a GI doc to get a biopsy. I finally saw her on the 15th and she scheduled an endoscopy for July 18. Up till the 15th, I'd been eating "gluten lite" for a month or so and was really feeling an improvement in some of my debilitating symptoms (like fibromyalgia pain and asthma), and coming to see how my stomach hurt only after meals that cottoned wheat. I committed to going on a "gluten bender" for the next month, and tried really hard to get in several wheat servings a day. (another symptom is severe gerd with nausea and I've been eating very little for about 18months. I've lost 30% of my body weight in that time, between my appetite, D, and vomitting. It's been hard to eat enough gluten for testing.)

Anyhow! So I got word of a cancellation and I'm having my endoscopy Monday! I've never looked forward to a test before in my life. In fact, I have PTSD from my medical experiences, so this is a pretty big step. I'm so glad to possibly have answers. I've had years of being told I'm too fat, too lazy, too sensitive, and worry too much and if I'd just lose weight, exercise, and suck it up, my symptoms would go away. I have a permanent back injury, but there's a million other things that improve without gluten in my life. You've shown me I'm not the only one, and I'm not a hypochondriac. Regardless of Monday's results, gluten will be out of my life, and my quality of life will improve. Thank you so much for sharing your experiences and understanding!

[Jenniferxgfx]

Sorry for those typos. I don't have much energy and am online from my phone while resting. Autocorrect has a mind of it's own!

[rosetapper23]

You go, girl! Please let us know how your tests turn out...

[Hawthorn]

I've had years of being told I'm too fat, too lazy, too sensitive, and worry too much and if I'd just lose weight, exercise, and suck it up, my symptoms would go away.

Aren't people just darlings? I've had this too, and thanks to this kind of thing can now add lack of confidence to the list.

The good news is for me at least, off the gluten these symptoms disappeared for me. The weight was starting to come off and I was getting to the point where I wanted to exercise because I felt able to.

Good luck and hope you feel normal again soon

[mommida]

I'm wishing you fast and steady healing! I'm glad you have your mind set on going gluten free after the test no matter what the doc may say. Gluten lite may have healed some of the damage that would have diagnosed you.

The most hurtful comments were from doctors pre-diagnoses. Accusations of anorexia, you're too high strung, perfectionist syndrome, depression, and whatever goof ball comment instead of HELPING me.

These doctors would have said stupid crap if you were the perfect weight, over weight, or under weight. The just weren't trained to find the cause of your symptoms, only to push pills.