Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Some Input


lizard00

Recommended Posts

lizard00 Enthusiast

I thought I would pose this question here since you are some of the most knowledgable folks I know. My son's teacher emailed me a couple of weeks ago that he had been going to the bathroom a lot. So we talked about it, and a couple of days later when I asked him about it again, he said he went at the appropriate times.

There are some days where I think he goes to the BR alot, and then some where I don't notice it. So of course, my radar was up for diabetes. :( Recently, he's been saying he's cold. Today he wore a long sleeved shirt out it was 90 degrees out (and humid!).

And he's hungry ALL of the time! I figured it was cause he was a 6 yr old growing boy, but he is always looking for something to eat, and he loves, loves, loves starchy stuff.

Any thoughts? Even my husband, who is usually not the alarmist, is wondering if we should take him to the doc.

As a side note: he was tested for celiac about 3 yrs ago, and it was negative. I was ok with that, since he really wasn't experiencing any symptoms, he was growing fine, etc. I mainly had him tested because I had recently been diagnosed, and I knew he carried the gene.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stanleymonkey Explorer

get himr retested, and for anemia, my SIL is aneamic and feels the cold

tests are unreliable in young kids so now he's a bit older it may give you a psoitive

or even just remove gluten and see what happens, unless you need a diagnosis for insurance reasons, or to get cooperation with his school for glutren free lifestyle

def go to the doc, and ask for retesting

kareng Grand Master

I had a 4-7 yr old who always went if he was given the opportunity, passed the house bathroom or got bored shopping.

I would go to the doc & see about the diabetes and a UTI. They tested mine for the UTI because they said it doesn't always bother boys like it does girls. Mine was all negative, just a quirky boy. My boys find the A/C cold when just sitting still. They spend a lot of time , 1 outside working & camping the other in a poorly cooled office & no A/C warehouse.

lizard00 Enthusiast

I had a 4-7 yr old who always went if he was given the opportunity, passed the house bathroom or got bored shopping.

I would go to the doc & see about the diabetes and a UTI. They tested mine for the UTI because they said it doesn't always bother boys like it does girls. Mine was all negative, just a quirky boy. My boys find the A/C cold when just sitting still. They spend a lot of time , 1 outside working & camping the other in a poorly cooled office & no A/C warehouse.

We were at my my mom's last night and she and her husband don't turn on the air... ever. He wanted a blanket. :ph34r: Last night was milder than it has been, but the house was by NO means cold. It's just odd that he's always so cold.

I'm thinking he needs to go. I just am unsure if the two are related. I emailed his teacher and asked how the bathroom situation was going... never heard back, but it is the end of the year. I'll see her on Tuesday so I'm going to ask her about it again.

kareng Grand Master

We were at my my mom's last night and she and her husband don't turn on the air... ever. He wanted a blanket. :ph34r: Last night was milder than it has been, but the house was by NO means cold. It's just odd that he's always so cold.

I'm thinking he needs to go. I just am unsure if the two are related. I emailed his teacher and asked how the bathroom situation was going... never heard back, but it is the end of the year. I'll see her on Tuesday so I'm going to ask her about it again.

The cold parts a bit odd. I had 2 6 yr old boys & bathroom stuff can be an issue. Maybe thyroid for the cold part? I hope it's about yearly check-up time. The 2 things may be separate things - lucky you! :unsure:

cassP Contributor

i agree with everyone above- get him retested- it could have been triggered since then... or maybe there's enough abs now to show up.

also- i often (towards the end of my gluten days) felt like i was getting a bladder infection. i HONESTLY think that if i had continued to eat gluten- i may have developed Interstitial Cystitis. it seems like some of the autoimmune people i know have this- i wonder if it's common in ai disease.

also- i know its more common in women, and not common in childhood- but thyroid disease is still possible- and is often in those with autoimmune genes in the family. i was not diagnosed till i was 38- BUT i had Beau's Lines on my thumbnails ever since i was 8!!! and they did not go away untill 30 years later- after being on meds for a month!! so may be a good idea to check his thyroid- (a complete panel- and maybe also TPO abs)

Mummyto3 Contributor

A sensitivity to cold could be thryoid related. That's how I was, I'm now on medication. I'd also check for diabetes and anemia. Do see a dr and discuss whats been happening and if it isn't mentioned, then ask about possibilities of thyroid issues, diabetes and anemia x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



domesticactivist Collaborator

Definitely get him tested for celiac, diabetes and thyroid issues. Oh, and one kind of anecdotal thing about the bathroom visits - I always needed to pee a lot, and have always had problems regulating blood sugar, but diabetes screening came back negative. Once we switched to the GAPS diet I stopped needing to pee all the time and I don't have those big blood sugar spikes and crashes any more.

Cara in Boston Enthusiast

I was told that my negative son needs to be tested every two years regardless of symptoms. MD said bring him in earlier if he has any symptoms before that. (Younger son has celiac disease - biopsy and I had a positive blood test but negative biopsy)

Cara

Darn210 Enthusiast

Just a story to share on bathroom visits . . . in first grade when my son starting going to school full time (Kindergarten was part time), I noticed my son started having to go to the bathroom quite often. I took him to the doc and had him checked for a UTI which was negative. She said it was common that kids have a tendancy to mess up their ability to tell when they need to go. It starts off by holding it too long . . . repeatedly . . . like not wanting to go to the bathroom in school. Then when they do go, they don't empty their bladders all the way because they've lost the ability/sensation to tell if it's empty. Stress on the stretched out bladder muscles from constant full bladders can also lead to muscle spasms that give them an urgency to go. This all resulted in my son having to go to the bathroom ALL the time.

There was a medication to help with the spasms but the doc wanted us to try some "retraining" first and that took care of it so no medication was required.

We were suppose to send him to the bathroom every hour whether he needed to go or not. When he went to the bathroom, he was suppose to empty his bladder, wait a couple of minutes, try to go again (since he couldn't actually tell if his bladder was empty), also try bending over to help empty the bladder. I can't remember how long we did this . . . a week maybe . . . then started letting the interval get a little longer and longer.

We also added mini lectures/reminders about waiting too long to "go".

Hope your situation is something as benign as this. I would check with the doc, though, too.

shayre Enthusiast

My son had a UTI too, but he was potty training at the time. And it was for the reason stated above, and he just had to quit holding it. I have 2 boys, and they are ALWAYS hot! The clothes come off as soon as they come in the door. I have a hard time keeping clothes on them! I find that to be odd for a little boy to be cold so much. I am cold all of the time, but then I'm a grown up with multiple autoimmune issues...thyroid being one of them. Although my thyroid has been testing normal. Not to throw this in the mix, but if he is genetically prone to autoimmune issues...Lupus people are cold a lot too. I recently joined their forum, and they all complain about being cold. I'm sure that's not an issue, but just throwing it out there. My Endo and GI doc both said that the positive gene testing for celiac disease just really meant...that i was prone to autoimmune diseases in general...no matter how they decide to manifest themselves. I'd definitely get him checked anyway. Little boys should be warm from all of their energy...I would think.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.