Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Testing

kallie

Recommended Posts

kallie Rookie
kallie
Posted

Hi everyone! I am new here. I have figured out that I have some kind of gluten and milk sensitivities. I have bad digestive problems, water retention, headaches, hair loss that all disappear as soon as i stop eating gluten and dairy. I was recently diagnosed with iron deficiecy. Does anyone have any experience with the enterolab tests? Are they easy to do? Will my insurance cover them? I have stopped all gluten and most dairy so should I resume eating gluten before the test?

Any resposes would be very much appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest barbara3675
Guest barbara3675
Posted

You don't have to go back to eating dairy or gluten to do the Enterolab tests. They are not difficult if you follow the instructions very carefully. I did the complete panel with the gene testing too and feel it was so worth it. My results came back in a little less than two weeks via email. I had tested negative on a blood test from the doctor's office, but positive for dairy and gluten through Enterolab. Now that I have been gluten-free for nearly a year, the dairy thing has gotten a lot better. I can do most all processed dairy, but still use rice milk on my cereal. I never drink milk so that isn't an issue. I have a granddaughter who has celiac disease and I feel much better now that I don't eat gluten. I no longer have pains in my stomach and before I either had diarreah or consitpation and now that is completely resolved.

Hope you do the Enterolab thing....I think those tests will be the gold standard in the years to come. Barbara

Rachel--24 Collaborator
Rachel--24
Posted

Can Enterolab dx Celiac Disease or do they just all come back as gluten intolerant? With the gene test does this identify whether a person has celiac disease or not? I know if you dont have the gene then you cant have celiac disease but if you DO have the gene how do you know whether you actually have Celiac or not? I'm confused about this. I'll be getting results from Enterolab in a few weeks.

-Rachel

KaitiUSA Enthusiast
KaitiUSA
Posted

An Enterolab tests for gluten sensitivity but also for malabsorption and tTG and those would indicate celiac. If you have the gene you have the predisposition for it and can have it activated at any time but it won't say whether it is activated at that time. If you don't have the gene you are 99.99% likely not to get celiac and it that case you could be gluten intolerant though. There are also genes for gluten intolerance.

kallie Rookie
kallie
Posted
  • Author

Thanks for your responses. Has anyone had any luck getting insurance to cover this? I am a student and very poor right now. Thanks!

bmorrow Rookie
bmorrow
Posted

My insurance covered everything except the genetic testing. My daughter and I have both tested with EnteroLab, and are very pleased with them. The tests are very easy. Good Luck!

Bune Newbie
Bune
Posted

Beverly

How did you get your insurance to cover it? did you work directly with Enterolab and then submit a claim.?

Brenda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bmorrow Rookie
bmorrow
Posted

EnteroLab sent me a coded invoice and I then filed the claim with my insurance company. I am in a HMO, so it would only play 60%, but that is better than nothing.

  • 3 months later...
DianeByrd Apprentice
DianeByrd
Posted
EnteroLab sent me a coded invoice and I then filed the claim with my insurance company. I am in a HMO, so it would only play 60%, but that is better than nothing.

<{POST_SNAPBACK}>

Wow! Can you give me any tips on getting my HMO to pay? I have Blue Cross and the medial group has denied the request to pay, so I'm appealing to the insurance company directly. With Blue Cross HMO, the medical group is responsible for paying for labwork. I haven't yet ordered the tests, hoping to first get approval.

Diane

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,690
    • Most Online (within 30 mins)
      7,748
    Aless25
    Newest Member
    Aless25
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.