Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help!

JewelZZZ

Recommended Posts

JewelZZZ Newbie
JewelZZZ
Posted

My son tested positive for celiac with the blood tests and he has all the symptoms he was so sick that i did cut him back from the gluten a little bit but not alot . We were never much for bread eaters anyway . His biopsy just came back and was negative . he has all the signs though and tested positive with blood tests and he has been feeling better for the 2 weeks he has been off of it? what does this mean?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


txplowgirl Enthusiast
txplowgirl
Posted

Hi Jewell, welcome to the forum!

He has Celiac, he had positive tests. As far as the biopsy is concerned, Depending on how many places were biopsied they could have missed the damaged areas (after all there is at least 22 feet of intestine)or his Celiac was caught in time before any damage was done. He needs to be kept gluten free for sure.

JewelZZZ Newbie
JewelZZZ
Posted
  • Author

Hi Jewell, welcome to the forum!

He has Celiac, he had positive tests. As far as the biopsy is concerned, Depending on how many places were biopsied they could have missed the damaged areas (after all there is at least 22 feet of intestine)or his Celiac was caught in time before any damage was done. He needs to be kept gluten free for sure.

thank you !! I have been so confused why cant he get the diagnosis then? Yhey did say he had gastritis the good news is no chrons . Phew !

JewelZZZ Newbie
JewelZZZ
Posted
  • Author

Hi Jewell, welcome to the forum!

He has Celiac, he had positive tests. As far as the biopsy is concerned, Depending on how many places were biopsied they could have missed the damaged areas (after all there is at least 22 feet of intestine)or his Celiac was caught in time before any damage was done. He needs to be kept gluten free for sure.

PS He is 11 and is only forty pounds !!

WinterSong Community Regular
WinterSong
Posted

Hi JewelZZZ and welcome! Yes, your son has Celiac, and that would probably account for him being underweight. The problem is that some doctors will not officially give out a diagnosis without both a positive biopsy and blood test. But as txplowgirl said, they may have missed the area. And it is possible to have false negatives. But there are no false positives. Your son definitely needs to go on a 100% gluten free diet. So welcome to the board - hope he continues to feel better!

JewelZZZ Newbie
JewelZZZ
Posted
  • Author

Hi JewelZZZ and welcome! Yes, your son has Celiac, and that would probably account for him being underweight. The problem is that some doctors will not officially give out a diagnosis without both a positive biopsy and blood test. But as txplowgirl said, they may have missed the area. And it is possible to have false negatives. But there are no false positives. Your son definitely needs to go on a 100% gluten free diet. So welcome to the board - hope he continues to feel better!

Thank you so much i really feel better . If it is not celiac then what could it be ? I have been so perplexed and confused about all of this . I am very happey to find this forum. Thank you again !!
nora-n Rookie
nora-n
Posted

I have heard of cases with bacteria overgrowth where the biopsy was falsely positive for celiac and the blood test was negative, but symptoms and blood test positive and biopsy negative just means that they missed the area, switched samples or someone misread the biopsy.

Many have gotten ahold of the biopsy report, and it did say blunted villi or increased IEL

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,625
    • Most Online (within 30 mins)
      7,748
    Adrian Moten
    Newest Member
    Adrian Moten
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.