Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Embarrassing Question


New-To-This

Recommended Posts

New-To-This Rookie

I have an embarrassing question to ask all those who are not celiac but eat gluten free because of a family member. I find that if I go out with friends now and have a pizza or something with wheat in it, I get severe gas. And I mean severe! Not an few minor farts, but long ones every minute or so, and this lasts for hours after eating gluten. If I hold it in, I end up with cramps. This is accompanied by bloating as well. Is this normal? I have had to ask to eat "same" foods and my friends say, you don't have to eat that way, your husbands not here. Is this a side affect of being of glutens and then going back on them? I used to get gas like this on donut fridays at work. To the point I was in severe pain from holding it back. I always thought it was the sugar and bread from the krispy cremes, now I'm not so sure. When I passed on the donuts on Fridays I seemed fine most of the time. Am I a silent sufferer because I don't get the other symptoms that so many celiacs show?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast

I have an embarrassing question to ask all those who are not celiac but eat gluten free because of a family member. I find that if I go out with friends now and have a pizza or something with wheat in it, I get severe gas. And I mean severe! Not an few minor farts, but long ones every minute or so, and this lasts for hours after eating gluten. If I hold it in, I end up with cramps. This is accompanied by bloating as well. Is this normal? I have had to ask to eat "same" foods and my friends say, you don't have to eat that way, your husbands not here. Is this a side affect of being of glutens and then going back on them? I used to get gas like this on donut fridays at work. To the point I was in severe pain from holding it back. I always thought it was the sugar and bread from the krispy cremes, now I'm not so sure. When I passed on the donuts on Fridays I seemed fine most of the time. Am I a silent sufferer because I don't get the other symptoms that so many celiacs show?

Well, fortunately or unfortunately I think you are a potential celiac or at the least are gluten intolerant. Your body is telling you that it does not like gluten. From what I understand, once you go gluten free, you get more sensitive and what your body was able to tolerate becomes intolerable. I used to get terrible gas, bloating and cramps from Krispy Cremes and I thought it was the grease.

You may have other symptoms that go away if you totally eliminate gluten.

At least you know how to manage the diet, right? Good luck!

domesticactivist Collaborator

I used to think fat was what did it. Boy, was I wrong! Now I eat way more fat without any problem. I actually haven't dared try eating gluten on purpose since Christmas. At the time we'd been "gluten-free" for about a month, but I'd been cheating and eating other grains and getting cc'd. We've been extremely vigilant ever since the new year. Part of me wants to try it just to see what would happen. We ate at my mom's last week. My son wasn't there so I thought I'd try eating someone else's cooking. We had salmon, salad, and strawberries - all things I eat at home, except the fish was farmed, the fruit not organic, and the red pepper on the fish was a powdered thing. (would have declined had I known it wasn't actually red pepper!) of course all utensils and cookware were cc'd. But it took over three days for my digestion to return to normal. I felt a lot like I did before the diet, and

not in a good way.

cahill Collaborator

I would suggest going totally gluten free. Sounds as if you could be celiac or at the very least gluten intolerant.

Being gluten lite would effect any type of testing so some of your choices are :

go back on gluten fully (the equivalent 3 to 4 slices of bread daily for 3 months) so you can be tested,

or have genetic testing done to see if you have the celiac gene

or go totally gluten free without official testing.

ravenwoodglass Mentor

It does sound like you have an issue with gluten. If someone doesn't have problems they wouldn't get symptoms when they consume it after having been gluten free. You could do the 3 month gluten challenge and then test but your body is really giving you the answer and you would still have up to a 30% chance of a false negative. As far as gene testing goes that can sometimes just add to the confusion. There are folks that have one of the 2 most common celiac associated genes and never develop celiac and there are diagnosed celiacs that don't have one of those two celiac associated genes. Gene testing can be part of the picture but it is not diagnostic. Your reaction to gluten, however, is.

Juliebove Rising Star

I don't think that's normal. I went totally gluten-free when my daughter did. Eventually I went back to eating regular pretzels, occasional bread and Cinnamon Toast Crunch cereal. Doesn't cause any problems for me. I do still eat gluten-free pizza and pasta.

New-To-This Rookie

Thanks for the honest answers. I know I can live with the gluten free diet, it just means I need to follow it when I go out with family and friends even if the dear hubby is not with. After I put this out here it got worse for a few hours, I was passing gas every minute or two. I went to the spare room to sleep just so I wouldn't gas my poor husband. Than I could let it flow freely so to speak. Forutnately I did not get the severe cramps that I used to get. So A lesson learned. I read somewhere a few months ago women over 40 are at risk of becoming gluten intolerant even if the never had a problem with it before. I feel this is do to the grenetic changes they continue to make on our foods so they can mass produce them. I grow my own garden and use heritage vegetables whenveer I can find them. So that helps, and I raise my own chickens both for our meals and for laying eggs, plus we raise our own turkeys too. An organic turkey is soooo much taster than a store bought. I don't know if I could ever go back.

Again thanks for your answers and have a great week!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

Hope the diet goes really well for you!

OH, you might want to take some care with the poultry - most of the time the feed is full of lovely, lovely gluten, sigh. I know of a few people on farms who had to start wearing a mask when feeding, because the dust from the feed in the air was enough to inhale, get down the throat, and swallow a little. Not fun!

  • 1 month later...
Ev7777 Apprentice

Try taking an anti-gas medication when you eat foods with gluten and see if that helps in social situations.

mushroom Proficient

Try taking an anti-gas medication when you eat foods with gluten and see if that helps in social situations.

I shouldda bought shares in whatever company makes Gas-X :blink:

ravenwoodglass Mentor

Try taking an anti-gas medication when you eat foods with gluten and see if that helps in social situations.

That might help the gas symptom but it won't stop damage from being done. If you do go this route do make sure the antigas med is gluten free but IMHO better to simply avoid the gluten as eventually you may go from just having gas to having D. That is no fun if you are out for a pleasant night with freinds or family.

allceliacs Newbie

I'm with all the other comments. Obvious gluten intolerance and yes, I too should have bought stock in Gas-X. Best med for a Celiac!

viviendoparajesus Apprentice

I agree sounds like you are at least gluten intolerant. I have gluten intolerance and celiac's minus the official diagnosis because my doctor and I did not want to expose me to gluten for the test given the false negatives and the obvious harm gluten was doing to me at that point. My boyfriend heard about the benefits of going gluten-free, so he tried going gluten-free with me. When he went back to eating gluten on occasion, he did not have any noticeable problems. I have to agree that you must have some problem with gluten even if it is not as severe as celiac's you seem to have gluten intolerance or gluten sensitivity. If I were you I would avoid gluten. I would only take an anti-gas medication if needed after cross contamination. There are also enzyme products that help with digesting small amounts of gluten from cross contamination, but it does not allow people with gluten problems to eat gluten without negative repercussions. Best wishes!

cap6 Enthusiast

That sounds a lot like me. My gas was so bad that it seemed like a constant flow. Since going gluten-free it is little to none. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748

    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.