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Testing 6 And 7 Yr Old


mommyto2kids

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mommyto2kids Collaborator

I got diagnosed3 months ago. How urgent is it to get them tested. 6 yr old is always hungry and very strong willed stubborn, not sure if it is moody. But her strong personality stands out. 7 yr old son reacts to sugar and food dye. He is hyper quite often and hungry a lot too. In my gut I think 6 yr old has it because of the extreme hunger and very strong personality, I don't know. Sometimes moody. She is always in a frenzy for the next thing to eat. She's been this way since age 3. Do I call the ped of an apt and discuss it with him? What is the urgency or can I wait? Not sure. I feel like I'm poisening them with bread since I don't know.


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mommida Enthusiast

I would get them tested as soon as possible. School physicals are due soon too. Parent guilt over the frustration of the situation would be over too. You can all go gluten free together. (You'll bond like you never imagined.)

Roda Rising Star

I had my two boys tested about a month after I was diagnosed and both were negative on blood work. Oldest boy(10.5) has been tested two more times. Youngest son(6.5) was tested again last Nov. (it was two yrs since his first test) and he had a positive Iga ttg. I declined a gi consult and scope on him. He has been gluten free since. Oldest son has consistently had negative blood work. His new allergist is highly suspect that he is still at least gluten intolerent. He feels strongly because of some of his past symptoms and his brother and I having celiac. He has a gi consult the end of this month and I and going to urge for them to do a scope/biopsy. Of course if it comes back positive then gluten free for good. If negative then I will trial him a good three months gluten free then challenge him. I strongly feel he needs to be gluten free.

Yup Apprentice

I heard from one of the top specialist in my city that parents should start screening their little ones by the age of 6.

mamabear272 Explorer

I just had my 18 & 6 year old boys tested. My 19 year old daughter has yet to test. Still waiting for results but I would definitely test the kids. Just my opinion.

Mummyto3 Contributor

Considering that this disease attacks the intestine and can make kids feel very poorly, I would get your kids tested asap. My daughter is celiac disease and now I'm awaiting the boys results, they're 3 and 7 my daughter is 9. Both my hubby and I tested neg with bloodwork.

AmyE Newbie

My boys are extremely small. My 6 year old is shorter than a 3 year old. My 9 year old is the size of a 5 year old. Their ped scoffs at my insistence of celiac even though I have it. We are their only voice!!! Go for it


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mamabear272 Explorer

My boys are extremely small. My 6 year old is shorter than a 3 year old. My 9 year old is the size of a 5 year old. Their ped scoffs at my insistence of celiac even though I have it. We are their only voice!!! Go for it

Gosh! I think I'd be finding a new doctor for my kids if I were you.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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