Any Connection To Celiac And Urinary Urgency?

[concernedmamma]

Prior to diagnosis, we were concerned about diabetes since our son drank so much and peed so much!

We have seen an improvement now that he is gluten free, but definitely see an increase in his urinary frequency when he has gotten severely glutened (meaning more than with traces, but taking a bite of something full of gluten)- like several times an HOUR, all day. And he has NO ability to hold it- we have seconds from when he tells us he has to go until his pants are wet.

On a normal day he still has very little ability (maybe up to 5 min?) to hold his urine. On a drive to my parents house on the weekend, he HAD to go- we stopped beside the highway and he went..... but it is such a small amount- I don't understand how he has to go SO bad when there is such a small amount of urine in his bladder. If we don't stop, he will wet himself and is SO upset about it.

Does this have anything to do with Celiac? I mentioned it to the GI who kind of rolled her eyes at me ( we won't be following up there, our Pediatrician will be following us- our choice). I forgot to ask his ped at his last appointment.

If it makes any difference- he has been gluten free over a year now, and is 6 years old. Has been potty trained since 3yrs (not night trained until a bit past 5).

Thanks!

[Maggie Mermaid]

Does he drink any soft drinks? Some people's bladders are sensitive to something in soft drinks. There's something in the soft drinks that irritates the bladder and causes the urge for frequent urination.

[concernedmamma]

  On 7/13/2011 at 7:20 AM, Maggie Mermaid said:

Does he drink any soft drinks? Some people's bladders are sensitive to something in soft drinks. There's something in the soft drinks that irritates the bladder and causes the urge for frequent urination.

Thanks Maggie- but no, soft drinks are not something that he drinks- perhaps at a birthday party, but that is it....

[dilettantesteph]

Urinary incontinence is a symptom of untreated celiac and is one of my glutening symptoms.

[T.H.]

  On 7/13/2011 at 7:16 PM, dilettantesteph said:

Urinary incontinence is a symptom of untreated celiac and is one of my glutening symptoms.

Well I will be darned - I was just thinking about this today! I've kind of wondered if this might be one of my symptoms, since when I get gluten, I feel thirsty as heck, drink tons of water, but it seems to go right through me and I have to pee constantly.

I'm on a road trip now, got glutened, and...let's just say I am familiar with many road-side rest stops now, LOL.

I just kind of thought it was me, though!

[shadowicewolf]

i used to be like that before i went gluten free >< It was soooo annoying. I'd have to go every half hour, and it didn't matter how much i drank... it would still happen.

[Mummyto3]

I would check for urine infections. There are some kids with small bladders and some with large (my daughter), so it could be something to do with that.

[weluvgators]

Frequent, urgent needs to urinate are a common symptom of gluten exposure for 2 out of 4 of the gluten intolerants in my family (the two with the most "classic celiac" symptoms and genetics). Cross contamination can trigger a bout of frequent, urgent needs to get to the toilet for us. I am still trying to understand it better, but I think my bladder might just have some spasms with gluten exposure. Our needs to urinate in these situations seem to be independent of our fluid intake.

[quincy]

  On 7/17/2011 at 7:45 PM, weluvgators said:

Frequent, urgent needs to urinate are a common symptom of gluten exposure for 2 out of 4 of the gluten intolerants in my family (the two with the most "classic celiac" symptoms and genetics). Cross contamination can trigger a bout of frequent, urgent needs to get to the toilet for us. I am still trying to understand it better, but I think my bladder might just have some spasms with gluten exposure. Our needs to urinate in these situations seem to be independent of our fluid intake.

I know this is an old thread, and since there are MANY threads on this topic, I thought I would just respond to this one rather than start a new topic

I have been gluten free for almost 2 years. Just prior to my diagnosis I went through a bout of pressure, urgency and frequency. Urologist could not find any infections but did a CT scan. nothing showed up as unusual. Eventually it went away but now it has come back and with a vengeance.

alot of celiacs also have IC and I have suspected this. My prostate is not enlarged though I do have alot of calcification. I have no blood in urine and urine cytology is negative for cancer cells. I really don't want a cystoscopy right now, I am too upset about these symptoms.

if anyone has gone through this even after going gluten free, I would love to hear your story. It really helps to learn that I am not alone. I worry that it is something serious which doesn't help the situation.... thanks

[dilettantesteph]

It still happens to me when I get accidental gluten contamination.

[xjrosie]

It is also a sign for diabetes and with having already been diagnosed with Celiac Disease, you should have your kid tested. Although, I'm sure by now you would know.