Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Connection To Celiac And Urinary Urgency?


concernedmamma

Recommended Posts

concernedmamma Explorer

Prior to diagnosis, we were concerned about diabetes since our son drank so much and peed so much!

We have seen an improvement now that he is gluten free, but definitely see an increase in his urinary frequency when he has gotten severely glutened (meaning more than with traces, but taking a bite of something full of gluten)- like several times an HOUR, all day. And he has NO ability to hold it- we have seconds from when he tells us he has to go until his pants are wet.

On a normal day he still has very little ability (maybe up to 5 min?) to hold his urine. On a drive to my parents house on the weekend, he HAD to go- we stopped beside the highway and he went..... but it is such a small amount- I don't understand how he has to go SO bad when there is such a small amount of urine in his bladder. If we don't stop, he will wet himself and is SO upset about it.

Does this have anything to do with Celiac? I mentioned it to the GI who kind of rolled her eyes at me ( we won't be following up there, our Pediatrician will be following us- our choice). I forgot to ask his ped at his last appointment.

If it makes any difference- he has been gluten free over a year now, and is 6 years old. Has been potty trained since 3yrs (not night trained until a bit past 5).

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Maggie Mermaid Apprentice

Does he drink any soft drinks? Some people's bladders are sensitive to something in soft drinks. There's something in the soft drinks that irritates the bladder and causes the urge for frequent urination.

concernedmamma Explorer

Does he drink any soft drinks? Some people's bladders are sensitive to something in soft drinks. There's something in the soft drinks that irritates the bladder and causes the urge for frequent urination.

Thanks Maggie- but no, soft drinks are not something that he drinks- perhaps at a birthday party, but that is it....

dilettantesteph Collaborator

Urinary incontinence is a symptom of untreated celiac and is one of my glutening symptoms.

T.H. Community Regular

Urinary incontinence is a symptom of untreated celiac and is one of my glutening symptoms.

Well I will be darned - I was just thinking about this today! I've kind of wondered if this might be one of my symptoms, since when I get gluten, I feel thirsty as heck, drink tons of water, but it seems to go right through me and I have to pee constantly.

I'm on a road trip now, got glutened, and...let's just say I am familiar with many road-side rest stops now, LOL.

I just kind of thought it was me, though! :P

shadowicewolf Proficient

i used to be like that before i went gluten free >< It was soooo annoying. I'd have to go every half hour, and it didn't matter how much i drank... it would still happen.

Mummyto3 Contributor

I would check for urine infections. There are some kids with small bladders and some with large (my daughter), so it could be something to do with that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



weluvgators Explorer

Frequent, urgent needs to urinate are a common symptom of gluten exposure for 2 out of 4 of the gluten intolerants in my family (the two with the most "classic celiac" symptoms and genetics). Cross contamination can trigger a bout of frequent, urgent needs to get to the toilet for us. I am still trying to understand it better, but I think my bladder might just have some spasms with gluten exposure. Our needs to urinate in these situations seem to be independent of our fluid intake.

  • 8 months later...
quincy Contributor

Frequent, urgent needs to urinate are a common symptom of gluten exposure for 2 out of 4 of the gluten intolerants in my family (the two with the most "classic celiac" symptoms and genetics). Cross contamination can trigger a bout of frequent, urgent needs to get to the toilet for us. I am still trying to understand it better, but I think my bladder might just have some spasms with gluten exposure. Our needs to urinate in these situations seem to be independent of our fluid intake.

I know this is an old thread, and since there are MANY threads on this topic, I thought I would just respond to this one rather than start a new topic

I have been gluten free for almost 2 years. Just prior to my diagnosis I went through a bout of pressure, urgency and frequency. Urologist could not find any infections but did a CT scan. nothing showed up as unusual. Eventually it went away but now it has come back and with a vengeance.

alot of celiacs also have IC and I have suspected this. My prostate is not enlarged though I do have alot of calcification. I have no blood in urine and urine cytology is negative for cancer cells. I really don't want a cystoscopy right now, I am too upset about these symptoms.

if anyone has gone through this even after going gluten free, I would love to hear your story. It really helps to learn that I am not alone. I worry that it is something serious which doesn't help the situation.... thanks

dilettantesteph Collaborator

It still happens to me when I get accidental gluten contamination.

  • 2 weeks later...
xjrosie Apprentice

It is also a sign for diabetes and with having already been diagnosed with Celiac Disease, you should have your kid tested. Although, I'm sure by now you would know.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,571
    • Most Online (within 30 mins)
      7,748

    Ygomez
    Newest Member
    Ygomez
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.