Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Symptoms...


Seeleeack

Recommended Posts

Seeleeack Newbie

Hello there. I'm 21 and have had occasional diarrhea for the past 15 months. I don't know if stress was the trigger but when it started I was under major stress. My diarrhea came out of the blue, and I was having it 2-3 times a day for a few weeks, I had a stool test and a blood test which were normal. My doctor said it was IBS. Since then my condition has improved, but I still get diarrhea once every 2-3 weeks. I only ever get it after a dinner, never breakfast or lunch. I'm asking whether this could be celiac as I do eat a lot of gluten. What seems to happen now is a constant cycle - I'll have diarrhea after a dinner, then the next few days my stools are perfectly normal, and then they gradually get softer (colour is usually lighter and they start to smell quite foul and float more) and more frequent until the next bout of diarrhea, then they're back to normal again and the cycle continues. I was wondering whether if this could be a build up of gluten over the days, that my body then flushes out? How long does gluten take to affect you? Is it possible for a build up over the course of a couple of weeks that would then cause diarrhea or is it normally an instant thing? I also get quite bad gas particularly at night. Could I have Celiac? Thank you.

Edit: I've read online that anxiety/depression is a symptom also - I have been suffering with severe anxiety for the past 8 or so months, i've been recently put on beta blockers which have helped me a great deal, so is anxiety a sign of celiac? I also get brain fog now and then also.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Seeleeack Newbie

Anyone??

ravenwoodglass Mentor

Your D pattern was the same as mine was for years. Until it became a daily and then a day and night occurance. Ask your doctor to run a celiac panel, including a total IGA and then when you are done with testing for celiac go ahead and give the diet a good strict try and see if that helps your problems.

Seeleeack Newbie

thank you for the response, I was looking at foods high in gluten, and nearly all of them on the list have caused me problems!

GottaSki Mentor

Ravenwoodglass's answer is perfect - great advice - just wanted to add that anxiety/depression can be symptoms of Celiac Disease.

Goof Rookie

I definitely agree on the blood tests! Since it's so minimally invasive, it's a good idea to check. The flag went up when you said you're getting the brain fog, which was one of my symptoms that stood out after a while. I also had mood swings, too. So it definitely can affect the way your brain works.

AVR1962 Collaborator

My suggestion is to request a test for Celiac. However,realize the result smay not be accurate and you still may have an intolerance and the test will be negative. Personally, after the test if you can have one done, then I would go off glutens and dairy. Docs noramlly have you stay off for 2 months......I was able to tell in 3 weeks. Then choose one of the other to try first....load for 3+ days and see if you can notice anything. Then whether you notice anything or not, go off whicever one you tried first.....if no reaction try the other. If you did have a reaction wait at least 3 days before trying the other so you know which one, if any, is giving you trouble. Dairy intolerance is the most common, gluten ranks next and then high fructose (according to my gastro doc).....I have all 3!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pain*in*my*gut Apprentice

I definitely agree on the blood tests! Since it's so minimally invasive, it's a good idea to check. The flag went up when you said you're getting the brain fog, which was one of my symptoms that stood out after a while. I also had mood swings, too. So it definitely can affect the way your brain works.

The brain fog caught my eye, too. Sometimes I feel drunk after eating gluten! Get the blood tests....that would be a good place to start!

Seeleeack Newbie

okay I shall get tested, thank you for the advice!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.