Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Restaurant Cards

violentlyserene

Recommended Posts

violentlyserene Rookie
violentlyserene
Posted

I've been wanting to make a reference card for people when they ask what I can't eat or most especially, for use in restaurants. I think I've finally got things narrowed down enough to cover everything but would really appreciate opinions from people who've got experience (i'm not gluten free quite yet, still waiting on the biopsy). The exceptions list came from the Dummies site.

The contents:

I cannot have anything with wheat, rye, barley, malt or flour in the ingredient name

Exceptions Alcohol (distilled), Caramel color, Citric acid, Dextrin, Flavoring extracts, Hydrolyzed plant protein (HPP),Hydrolyzed vegetable protein (HVP), Maltodextrin, Modified food starch, Mono- and diglycerides, Starch (in food), Vanilla (extract), Vinegar (except malt vinegar),Wheat grass,Yeast (except brewer

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kellynolan82 Explorer
kellynolan82
Posted

The contents:

I cannot have anything with wheat, rye, barley, malt or flour in the ingredient name

Exceptions Alcohol (distilled), Caramel color, Citric acid, Dextrin, Flavoring extracts, Hydrolyzed plant protein (HPP),Hydrolyzed vegetable protein (HVP), Maltodextrin, Modified food starch, Mono- and diglycerides, Starch (in food), Vanilla (extract), Vinegar (except malt vinegar),Wheat grass,Yeast (except brewer

violentlyserene Rookie
violentlyserene
Posted
  • Author

Oats may be worth mentioning above too. A number of celiacs have problems with this.

I have a link to a guide from the Coeliac Society of Australia that may be useful. I wouldn't copy it verbatim though, particularly since I'm suspecting you're based outside of Australia. Also be wary of Wheat Maltodextrin, Wheat Glucose Syrup, Wheat Dextrose and Wheat Caramel Coloring.

Also avoid wheat starch. Yeast can sometimes come in contact with wheat too. Sorry to pounce on this (it's a great start), but the only Exception that I would consider definitely safe is Distilled Alcohol.

I'm not concerned with oats for now but I'll keep that in mind for the future. The exceptions are US only as I recall. The site didn't have specific sources though.

Lisa Mentor
Lisa
Posted

I've been wanting to make a reference card for people when they ask what I can't eat or most especially, for use in restaurants. I think I've finally got things narrowed down enough to cover everything but would really appreciate opinions from people who've got experience (i'm not gluten free quite yet, still waiting on the biopsy). The exceptions list came from the Dummies site.

The contents:

I cannot have anything with wheat, rye, barley, malt or flour in the ingredient name

Exceptions Alcohol (distilled), Caramel color, Citric acid, Dextrin, Flavoring extracts, Hydrolyzed plant protein (HPP),Hydrolyzed vegetable protein (HVP), Maltodextrin, Modified food starch, Mono- and diglycerides, Starch (in food), Vanilla (extract), Vinegar (except malt vinegar),Wheat grass,Yeast (except brewer’s yeast), flour where source is specified

Please make sure my food does not touch anything that has touched a gluten containing item to avoid cross contamination. This include washing hands before changing to new gloves, getting new utensils for making my food, and washing down the grill.

Check out...

Open Original Shared Link

ElseB Contributor
ElseB
Posted

I'm not concerned with oats for now but I'll keep that in mind for the future. The exceptions are US only as I recall. The site didn't have specific sources though.

I'd be inclined to include oats, given that even if you can tolerate oats, we can't eat "regular" oats. You'd be at risk of eating things made with regular oats, oat flour, oat bran, etc. Just a suggestion....

violentlyserene Rookie
violentlyserene
Posted
  • Author

I'd be inclined to include oats, given that even if you can tolerate oats, we can't eat "regular" oats. You'd be at risk of eating things made with regular oats, oat flour, oat bran, etc. Just a suggestion....

Oh I know, I don't ever eat anything with oats and that's why i'm not concerned with adding it. Do you think the washing instructions are okay?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,913
    • Most Online (within 30 mins)
      7,748
    patanddiane
    Newest Member
    patanddiane
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.