Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wheat Intolerance Vs Gluten Intolerance


zentex

Recommended Posts

zentex Newbie

I am beginning to suspect that my intolerance/allergy is to wheat only and not gluten. How would I go about fleshing this out?

I've been gluten free (or so I thought) since April 2011. Now I find out from another thread that I've been regularly consuming malt with zero ill effects.

I know for sure that wheat is a problem. When I went gluten-free many, many symptoms "magically" went away and I felt much better. Then I accidentally ate something with breading on it and I got sick. The breading was wheat, corn meal, salt and pepper only.

Where do I go from here? How do I go about experimenting with barley and rye? Or should I just keep on keepin' on as I am now?

I surely do miss real beer (hint, hint)!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Well, since most beer contains barley malt, start there but make sure it is not a wheat beer you are drinking. Or you could make a vegetable soup and put some pearl barley in it. Rye is hard to test on it's own.

GlutenFreeManna Rising Star

Try some pearled barley or see if you can buy rye flour and make some bread/crackers from that with no other flours. I happen to have both a wheat allergy and gluten intolerance. I know about the wheat allergy becuase it showed up on allergy testing. However I also know I have a problem with at least barley because I got very sick when I ate soup with barley in it and the items with malt in them DO bother me. I've never tested rye because I don't really run into it as an ingredient on it's own ever.

mamaw Community Regular

Have you had any testing done? Bloodwork,scope? You say you now think you may only have a wheat allergy---but then you say you have been gluten-free for a few months then ate something with breading & got ill... And when you are on the gluten-free diet you feel better? Confusing.

Plus you say you have no ill effects from malt in beer? You may not have any outward issues but how do you know what is happening in your intestinal tract? There are many who have celiac & present with no symptoms at all. It is very hard for these people because they can't put their finger on anything that makes them feel or see this illness. It is like a phantom illness & very hard to be gluten-free...these this is slient celiac...

I would reconsider & get testing done if you haven't done so. Remember for an accurate test you need to be consuming wheat & gluten ...

There are some truly good tasting beers that are gluten-free.. Green's, Dam Estrella are a couple of beer drinkers favs.........

Reba32 Rookie

it is entirely possible to have a wheat intolerance or allergy, and not a gluten intolerance. If you think wheat and wheat only is the problem, then by all means, have a few sips of beer. (personally just to be safe I wouldn't drink an entire bottle just yet!). Just make sure not to have anything else that day that would typically trigger a reaction. If you don't have an immedaite reaction, wait a day and try again, see what happens.

What sort of reaction do you get from wheat? Intestinal? Nausea? Pain? Hives? Headache? Look for any of these same reactions when you test other gluten sources. If there's no reaction, then it probably is just the wheat.

Skylark Collaborator

Well, since most beer contains barley malt, start there but make sure it is not a wheat beer you are drinking. Or you could make a vegetable soup and put some pearl barley in it. Rye is hard to test on it's own.

There are imported pure rye breads you can find at a lot of big grocery stores. They are tiny loaves with very thin slices. There are also pure rye crackers like Wasa crisps and Finn crisps. I thought I could eat rye when I did my elimination diet. I don't react to it immediately like wheat. I definitely felt better once I got off all gluten though.

I'm pretty sure it's possible to be allergic to wheat only.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748

    Jenny0384
    Newest Member
    Jenny0384
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.